Hi all. Im back,
Posted , 3 users are following.
Hi everyone. It has been a long time since I have written or even looked at the forums. Me and another one of the posters on the forum kind of broke off and just started being our own cheer leading squad. I loved all the support here but to be honest it was making our depression and anxiety worse reading all the stories that didn't seem like there was an end. I am 6.5 months from diagnosis now. A little over 7 months since symptoms started. M (I will call the other poster) finally started feeling pretty normal and got her life back around 7 months. She was one of the lucky ones that could have a masseur come to her home, had a nanny for her child, her mother there every day, a therapist that would come to her home and a psychiatrist. I was not that lucky.....I still did as much as I could for my family even during my "bedridden" times. Her doctor put her on Klonapin to begin with and added Prozac too. Both were fairly small doses. I too started taking Klonapin. Some days it was the only way to make it through. If she were writing this herself she would recommend the Prozac. If I could handle taking it I probably would be.
I started feeling "better" around month 4 but this is a roller coaster of biblical proportions. I would have a good couple of days followed by 5 or 6 of not feeling so great. Progressively the good days started outnumbering the bad but not much. Getting over this is baby steps. Small, slow, excruciating baby steps. I wish I could say I was feeling normal again but I'm not. I actually had an almost 2 week stint where I was about 85%. Then I over did things and took some meds I probably shouldn't have and now I am back to suffering. The constant in this has been my digestive issues.....the internal vibrating and feeling of weakness. Brain fog. I had sleep issues really bad for a long time (so long my husband I had to start sleeping separate) but now I just have an occasional bad night. Like last night....kept waking up and had bad night sweats. At least my Ambien has started working again. I, like a lot of you have the heart rate issues. I was just at the ER a few days ago because of it but it could have been because of the diuretic making me dehydrated. (that was when this current bout of not feeling well started) I hadn't had the heart rate issues in about 2 months before this.
I want to go to my doctor about it all. I haven't seen him in a few months because he makes me feel like all this is in my head. That I should be over this now and wants to send me to see a psychiatrist since I don't do well on SSRIs. With the internal tremors/buzzing I have been thinking maybe I need to see a specialist, maybe I might have MS from this? I hear it is a possibility.
Most of all I guess I am just sick of feeling sick. I am tired of the anxiety that every little thing is mono. I am exhausted by trying to make sure I eat so I don't lose anymore weight (lost 20 pounds with the mono). Are there any good recovery stories. After M recovered she cut me off and blocked me. No clue why so I can't ask her if she is still feeling well etc etc. I did start taking elderberry.....zinc....vitamin C and D. I think it helps. Could just be coincidence. Please.....share some good stories, something to look forward to. Thanks 😃
0 likes, 3 replies
craig07920 Guest
Posted
Hi Wendi,
It is nice to see a post from you, I do hope that you are seeing some improvement. Unfortunately I can't seem to read all of your message, not sure if it's just my computer is appearing is a different kind of format to most of the messages on here and only able to read the start of some of your sentences.
Vitamins and herbs helped me a lot during recovery Wendi - a good strong multi-vitamin per day, immune boosting herbs like siberian ginseng, echinacea, and turmeric, a B complex/Co-enzyme Q10 vitamin per day (great for energy levels and nervous system), and higher doses of Vitamin C (1000mg-3000mg per day). Again sometimes just trial and error with finding things that work for you though, these are just from my own experience of things that helped me not any kind of expert in these areas.
Just a wee reminder Wendi that recovery can be very up and down with this thing and can take time and not to panic if still not feeling where you want to be or need to be. And remember you WILL get there and get fully better again with time, I truly believe that, and don't hesitate to go back to the doctor at any time with this. I do empathise with that sick of feeling sick feeling, I remember how much this virus made me weary and took confidence away, and it took time to rebuild again as my health recovered only thanks to God. And remember God is the great healer and I truly believe you are going to get through this and be well again Wendi. Thinking about you and message any time, hoping I can read in full any future messages you write. Hang in there and hoping for a good and settled day and period ahead.
Craig
Guest craig07920
Posted
Hi Craig, how do I delete my post?
craig07920 Guest
Posted
I'm not sure Wendi, I'm just a user of the forum here no idea on the administration of it! That post you made has come through normal though so maybe it was just a one off that previous one! Hoping you are feeling settled and stable today Wendi, hang in there.
Craig