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Hi all im new to this,i have been suffering with neck shoulder thigh an calf pain!

Posted , 8 users are following.

sevgul88448
sevgul88448

Constant pain in hips thighs an calfs,shooting pains in my arms,tingling in my head an constant headaches,depression for 9 months is this Fibromylgia?

0 likes, 15 replies

15 Replies

  • joan152
    joan152 sevgul88448

    Posted

    Hi,

    know where you are coming from it sure is horrible,have had this side pain for months in hospital Easter Sunday and Monday ECG Bloods CTC scan all negative ,but the depression is so bad cannot deal with it crying won't go out  .Are you on any meds,

    Love

    joan

    • sevgul88448
      sevgul88448 joan152

      Posted

      Hi Joan ,been on Anti Depressants since last May !Suffer with Anxiety also cant stop crying ,cant hold a conversation without bursting in to tears !Cant even manage suicide tried twice,Just been put on Nirtrypline at night times so far aint helped,sleeping maybe 2hrs a night an thats not deep sleep ,Dont know where to go from here !
    • joan152
      joan152 sevgul88448

      Posted

      Hi,

      no I don't know what to try, but lease promise you will not do anything sinister I know you feel that low but think of those who will miss you,stop beating yourself up you have an illness like any other even though people cannot see it,I have been crying all day and  had a friend call this afternoon and said I am to hard on myself and maybe that is what you are,keep posting on here it does help there is always somebody that will answer you.

      lve

      Joan

    • sevgul88448
      sevgul88448 joan152

      Posted

      Thankyou Joan,

      The pain was so unbearable last week that i took 8 to mant codeine tablets an also a muscle relaxant hoping in vain that it would knock me out ,it never worked my consultant did say i have the symptons of Fibro as all my blood tests came back negative for Athiritis! My Mental Health Worker said it makes sense with the depression an anxiety as tese are classic symptons ,i dont know much about it myself but have read alot !What Painkillers are you on an do they help ?

    • joan152
      joan152 sevgul88448

      Posted

      Hi

      i have not found any other than paracetamol GP wanted me on several antidepressants but cannot take any of them for the aide effects.

      Love

      Joan

       

  • vjl56
    vjl56 sevgul88448

    Posted

    Hi ladies. Right you dialog need to get to a rheumatologist for proper diagnosis and treatment. It took me years to find out what was wrong with me. Reactive arthritis and fibro great combo. I take pregabilin which a rheumy is most likely person to prescribe. Does it help with the pain? Well I think it helps me sore which is vital with fibro as lack of good deep sleep causes the vicious cycle of symptoms. You could try something alternative to help with the low mood/depression 5htp. But check out with person in health shop or pharmacist in case it doesn't go with other meds u take. I took ibuprofen for ages til it really started to hurt my stomach so manage in the occasional codeine at night right now. Good luck keep posting and get to see a specialist. If you feel this bad that's vital. VJ x
  • cerenan
    cerenan sevgul88448

    Posted

    Hi all ... I recommend you to do the tests given to all infectious diseases ... fibromyalgia, muscle pain, joint pain, migraine and other associated symptoms and causes infection ... I also had similar problems as you ... 

    detected in the blood Brucella ... it is important that the test was done Elisa kit or rose bengal ... 

    slow agglutination is not enough! 

    A big thumbs up! sorry for my English

    Viki

  • terig
    terig sevgul88448

    Posted

    hello sev....i feel your pain...i have been dealing with this for 13 years....now i am walking with a walker! i was tested for MS and it came back negative....one of my drs. called my symptoms...myofacial pain syndrome..
  • janet01833
    janet01833 sevgul88448

    Posted

    Sevgul, I have all of those things. My doctor sent me to a rhuematologist .After doing some tests he said its likely i have Fibro. Put me on a generic form of Lyrica called Gabapentin. I still have stiffness during day but it helps if im active. (not too active or I will pay dearly) What really made a difference is the pain down my legs feet and hips at night, It is next to none. I am supposed to take it three times a day but find it makes me too drowsy at work so I just take it before bed. I also take clonozapam for anxiety. Effexor for depression. I dont like taking pills but guess I need to suck it up. Doc said fibro pain is caused by our nerves that is why traditional pain meds like ibuprofen or strong tylenol do not work. What Im still struggling with is, I cant speak, my words are all mixed up and I cant remember things at all. Not even enough to have conversations because i forget the details halfway through. So I avoid talking to people. Does anyone else have this??? I hope you can find the right meds for you. No more codein. Hang in there!
    • joan152
      joan152 janet01833

      Posted

      Hi Janet,

      I think I have fibro, but never been said so,I take clonasapam which was put n for tremor but does not help with the pain my side and neck and shoulders,

      Just been crying so Husband made me go for half hour walk believe me that is a marathon as I don't go out and believe me feel like I have done a marathon.

      Cannot find any meds that help me.

      joan

       

    • janet01833
      janet01833 joan152

      Posted

      Hi Joan, How are you doing? I was thinking about you and how you said you cant stop crying and it brought me back to when i was put on a new anti depressant (zoloft)and in conflicted with my anxiety meds and caused me to have thoughts I dont normally have. I couldnt control the crying and im not usually a cryer. My husband drove me to the hospital and they admitted me for a wk. (guess thats standard when you have thoughts of suicide) While under their supervision they found the right combination of meds for me. Just thought id mention in case you're taking these types of meds. I know they dont help the pain though. By the way, is it just me or does anyone else forget their password EVERY time they log on...geeze!
    • joan152
      joan152 janet01833

      Posted

      Thanks Janet,

      not taking anything only clonasapam because I have essential tremor,went to Hospital for Botox injections have had them for about 20 years every 2 months but would not give me them because anxiety is to high .

      He is writing to GP but to be fair I cannot take any meds so it's from one to another.

      Having a bad time 3 years in August but hey ho lots of us like it not alone

  • jemini
    jemini sevgul88448

    Posted

    Hi sevgul,

    I haven't been diagnosed with fibro so I would like to get others opinions on the matter. One doctor i saw mentioned it but all since have been very dismissive. I have constant pain in my thigh and usually in my ankle too. I have been diagnosed with carpal tunnel syndrome and plantar faciitis, i have no energy and sometimes cannot even get out of bed because of exhaustion and pain.Despite a fairly high IQ, sometimes i can't string a sentence together. I have headaches and stomach problems too. My doctor has for the past few years ordered and reordered blood tests of all sorts and can't give me any answers. I must be a nightmare to live with and when i have to have time off work i get sarcastic remarks from one of my colleagues. I'm sure people think i'm a hypochondriac. Don't really know how long i can cope feeling so low. Hope you get some answers and help.

     

    • terig
      terig jemini

      Posted

      hi there...my husband had plantar fascitis for about 3 years...he had a coritsone shot that did help in hte beginning...he could hardly walk for those 3 years.....fibro...effects all of your body...relentlessly. hope this helps.
    • vjl56
      vjl56 jemini

      Posted

      Hi all the not managing a sentence or forgetting things is fibro fog. All very annoying. I too am ok if I move round gently. But oh it's such a fine line. I spent three hours on my allotment y'day. I came back and had a bath but I could barely move or speak and I wasn't doing heavy digging. Yet over Easter I went three days in a row and had no reaction at all. That's one if the mysteries isn't it, it's so unpredictable. Last night I took two. Pregabilin (lyrica) and a codeine and that meant I could sleep. I will be better when I get up and start moving. You're right not many people understand this condition as we look normal apart from a bit tired  try googling Dominie Bell she use to run a website for fibro sufferers which was very informative. Day at a time is the only way when it's bad and rejoice in feb good days when they happen. Anyone who has not seen a rheumatologist should ask for a referral. This condition needs to be diagnosed/monitored properly. Good luck all and take care. What helped me was spirituality and  self development and a good undestanding of what this condition can be like and it's so different for very one. 
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