Hi all, my wife and I have been reading this thread wit...
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Hi all,
my wife and I have been reading this thread with interest over the last day or two.
We are just at the start of our journey with this condition.
Our daughter, who was born on the 16th, has been diagnosed with Fallot's. We are over the initial shock. We are also over asking all the questions like, 'why is this happening to us?'
What is scaring us out of our wits now is the possibility of Tets Spells, also called Blue Spells or Hypoxic Spells.
Has anyone else had an experience of these? How did you identify them? When our daughter is having her nappy changed or is having her clothing changed she cries and goes blue. We were told to expect this, but is this classed as a Blue Spell?
[i:11d4e0efc5]This message was automatically imported from the original Patient Experience[/i:11d4e0efc5]
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Guest
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[i:ef18d2e8ca]This message was automatically imported from the original Patient Experience[/i:ef18d2e8ca]
Guest
Posted
hes had 2 shunts already but his sats are still very low. often in the 70's
im dreading the operation but at the same time i just want it over and done with
thanks again.ill let u know how the op goes
[i:483b481987]This message was automatically imported from the original Patient Experience[/i:483b481987]
lulu
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