Hi all update ive had my gallbladder out now

hi no they didnt say i had to but i just need to get back in to eating again i lost 4 stone when i had my gallstones,

im happy to hear that because im in alot of pain at the moment

thank you so much carol and yes im abit sore at the moment but hopefully it wont last long xx

Thankyou so much this has really helped hopefully the pain wont last long. i am so happy the gallbladder is out now though. x

That's great you feel better caramella. I read so many stories that scared me and made me put off my gallbladder being removed for too long, I lost so much weight and was always uncomfortable. But 10 days after I do not regret my decisions and can say that recovery can be positive after the operation and the immediate pain and soreness does subside.

hi im so happy it does go im in a lot of pain at the moment but hopefully like you said it will go soon i only had it done yesterday so hopefully it will subside  

Thankyou so much im so glad it is gone now. i am eating very light at the moment i keep feeling sick aswell so i hope that wont last long as i have vomit phobia. Also ive been getting bad pains where my gallbladder was but its only been a few days so its going to be sore. xx

thankyou im so happy it has gone just got to get over these pains now. and yes im a side sleeper so it is really hard not to be able to sleep on your side. I keep feeling really sick at the moment to is that normal? and ive been having pains on and of where my gallbladder was but it has only been a few days so should be that hopefully.

hi hun im happy your feeling well. ive got those gas pains really badly and feel sick alot at the moment. cant sleep very well at the moment i like to sleep on my side so sleeping on my back is different. I keep getting the gas shoulder pain to. im still sticking to low fat as to scared to eat anything with much fat in. I keep getting this pain where my gallbladder was but the hospital just said give it time as its so soon i will have pains etc. You sound like your doing really well though hun im so happy its done now xx

I find I can get comfy on my left side. Yes I'm still getting gas shoulder pain and my belly was gurgling like made last night but I put that down to my first proper meal even though it wasn't much. I'm going to try scrambled eggs on toast and see how I do. I did have lots of mild pains last night but unless its really severe I'm just putting it down to the surgery and the belly button incision irritates more at night than during the day.

I have been good and not done anything except rest but I haven't got children and I'm ignoring everything else so  I expect that makes it easier for the body to heal.

What have you tried to eat? don't forget you're only on day 2 of recovery so it maybe later that you can eat anything. It is nerve wracking but you have to try to eat something just to see if it stays down but don't eat too much. I didn't have gallstones but my gallbladder was only functioning at 14% so I don't know if that makes a difference with recovery.

xxx

Thats good you can lay on your side im in alot of pain with mine at the moment if i try and lay on my side i find it better sitting up. I actually had mash potatoes and egg white omelette last night which was ok but did feel abit sick after but it was the first day and ive been having light rich tea biscults. Iknow what you mean about the belly button hurting mines been hurting alot and the ones near the gallbladder ive been trying to walk of the gas pains as it should help but its so hard at the moment when your in pain and feel sick but im not to good with pain or feeling sick plus like you said its only day 2 so would of thought it would be like this xxx

My nurses were great and one was very knowledgeable she told me to expect pain afterwards and discomfort as it is major surgery even though you're in and out in a day. Yes I know the feeling, I felt really sick earlier and thought I was going to throw up, I think I'd just over done it. Are you finding your incisions really itch underneath the dressings? mind you I might be having a reaction to the dressings? I did find last night that if I put antiseptic cream around the dressing it did ease it. 

xxx

same here hun nurses were great. like you said it is major surgery even though it seems like its not but i can feel the pain alot when i try and walk and yes the sickness is the worst. I have not had muching yet but one has bleeding abit under dressing but nurses said it should be ok until ive got to change them so hopefully it should be ok. I still keep feeling really tierd today aswell but i didnt get a very good night sleep so might be down to that xxx

well I've just had some scrambled eggs on toast so lets see how that works! Its awkward walking or trying to stand up straight, isn't it. Just get lots of rest you will be tired, I've just given my husband a hand in the kitchen and its worn me out so just settling down on the settee and a film.

Keep me updated Carmella and I'll do the same and we can share what we go through. xxx

thats good you have had some egg etc and yes ill keep you updated hun and you to speak soon xxx

Good for you & don't overdo it x

Hi Carol and thank you. Feeling a bit sore now after eating but I hope its down to the surgery rather than anything else.

How's your daughter doing by the way, has she got an appointment with a specialist soon?

xxx

I'm sure it's just sore from surgery, you just need to rest as well.

She had 1st appointment Thursday & he thinks it is Sphincter of Oddi Disfunction, so lots of blood sent off for testing & back up to London on Monday for the MRI ERCP scan which will then mean all test results will be waiting for the specialist when he gets back from holiday in 2 weeks.

Her pain is all day but in waves of bearable to not then she has to go to A&E, incredibly sad and difficult for her to cope with.

You take it really easy please wishing you all the very best c x

How are you feeling today hun i keep getting this strange poping and clicking in my chest where the top incision is. I dont know if its from the gas still in there? but does not feel nice. How did the eggs go down yesterday i also had egg and went down ok xxx

Hi Carmella, yeah ok, still didn't sleep very well last night again. My dressings are irritating me and its always at night but they come off tomorrow evening. I an see the bruising coming out either side of the dressings and I've got a lovely one on my hand where the cannula was. Oh that might be gas, you need a good burp!! mine was just in the shoulders and upto my neck. I think it takes a while to disperse.  I'm still having some pain in the evenings which is why I can't sleep, its manageable just annoying and I can't get comfortable in bed.

I still don't feel like going anywhere yet, my husband wanted to take me out but I just haven't got the energy.

Oh the eggs were fine but struggled to eat a whole piece of toast with them on!

Are you having to take any painkillers, I have in the evenings as its uncomfortable.

You resting up nicely? xx

 

hi hun sorry i didnt get back to you. you sound like your doing very well. Ive been having this back pain and some pain where my gallbladder is but i have not been able to walk around very much as i was so sore but luckily today i dont feel so sore so ive been trying to walk around the house abit more, like you said still dont feel well to go out yet. I also had the same as you but egg white omelette and mash and it went down ok. im still really scared of eating as its been so long not eating its hard to get back in to it do you find that aswell? and like you said i still cant get a good night sleep i still have to sleep on my back and really want to sleep on my side. I am still taking pain meds at the moment because of the back pain ect but im just hoping that its because my body is still getting used to not having a gallbladder so hopefully some of these pains will go soon xx

Hi Carmella, Yes I do, I need to eat as I've lost another 8 llbs since the operation but I'm nervous about being in pain which has started again after I eat in the evening so makes it uncomfortable when I go to bed. I had a fish cake last night which went down ok but I think I ate too much as I did feel really sick afterwards. I'm taking meds in the evening only and to help me to sleep!

I took the dressing off of the incision under the sternum as the dressing was making me itch, they've used glue and its all very neat but the incisions are still sore along the ribs so I might leave those for another day before removing.

I did look really pale yesterday sort of green as my husband said but its not so bad today.

Its difficult to know which are healing pains and those that were there before isn't it?

speak to you soon, take care xx

I know the feeling hun its not great like you said im not to sure what are recovery pains and what are pains that are coming back. Ive had this back pain all day today which i used to get before so im really hoping thats not on the way back again like you said asbout the feeling sick aswell i have been having that do you have antisick for it? I should be taking my dressings of tomorrow im so scared to do it incase it hurts to much. xx

I've just had some really sharp pain on the left side which I did have before  occasionally but it doesn't last very long. The pain under the right ribs I think is the incisions but it does hurt.

I've just taken off the dressing on my belly button, I was nervous like you are so I just carefully took it off and it looks ok, not as bad as I was expecting as thats the biggest incision.It didn't hurt at all so hopefully you'll be the same.  I'm just going to be careful now that my clothes don't rub but they said let the air get to it when the dressings come off.

No I'm not taking anything for the sickness as its manageable but not very pleasant, I just don't want to vomit as that'll hurt the incisions.

speak soon & take care xxx

awww not good hun ive been having the same pains but on the right side. so far today i have not had the back pain so much but my incisions are now really itchy like how you said yours was. I can them of today luckily so im going to have a bath later and try taking them of which im abit worried about. Today i have also now got a sore left leg and feels really strange? i did have a bakers cyst on that leg so hopefully its just that playing up again ill have to keep an eye on it. I have had to take antisick for now as like you said i really dont want to be sick. I hope your pains start to feel better to have you got to go back if they get worse again? and how are you feeling today xx

Hi Carmella, Its not good is it. I had a bad night again with bad pain in my back and shoulders so I had to take cocodamol which I haven't had since the op. I may ring one of the numbers they gave me to speak to the specialist nurse and say I'm still in pain then hopefully they'll give me an appointment to see the consultant again.

I haven't had a bath yet only a shower, if you've got steri strips on under the dressing then leave them on unless they fall off. I took one of mine off and took some of the scab off so had to put a plaster back over it. The larger incisions seem to be much better than the smaller cuts! I wouldn't get them too wet if I were you, I just cleaned mine with a flannel very carefully. Its not as bad as you think, its just the dried blood on the  dressings that made me apprehensive.

Its funny you say about your leg, my left leg has been strange but I only notice it at bed time I wonder if its to do with the pressure socks and pads around my legs when they were operating.

Still resting up but managed to do the washing up that didn't fit into the dishwasher as I couldn't bear the mess!

speak soon xx

Hi Carmella , I've just rung the emergency number that  they gave me to get some advice and luckily my surgeon was nearby so the nurse got straight back to me. They said if the pain continues to get worse at night then to go back to my gp who can then speak to my surgeon but he would review me in 6 weeks anyway to see how I was getting on. Its a bit of a weight off of my mind to just know that I wasn't sent home and then forgotten about!

Hope you're doing ok today? xx

Really feel sorry for you hun ino what you mean with these strange pains going on after the op i would of thought they would of stopped. you done the best thing by telling the nurse i would do the same thing if it keeps getting worse. Hopefully it doesnt and its just your body trying to learn to live with out the gallbladder but at least you can ring the nurses if it does get worse. It is a very hard  recovery i didnt think it would be as hard as this and yes the leg issue is very strange like you said it might be from the sock etc. I keep getting this sick feeling alot which is not nice and a pain through my back and sometimes where the gallbladder was it was really bad yesterday i nearly phoned the doctor but today so far seems to be not as bad yet so ill see how it goes. Ive just had a low fat soup and im still so scared to eat do you find it really hard to get back in to eating again after not eating for so long? i think that might be what adds to me feeling sick sometime because i leave it to long to eat because i get so worried about it. Im happy you got some advice of the nurses though hun and lets hope the pains dont get any worse xx

I definately recommend phoning if you're worried or not happy even if its just reassurance and peace of mind.

I haven't been eating too bad to be honest, I've had a toasted hot cross bun each day, mid afternoon which seems to go down ok its the meal in the evening that seems to wipe me out, I had some pasta last night which was fine, I have felt sick after everything but I'm eating small amounts in the hope my body will get use to it. Fish fingers work well, basic and plain with a few baked beans! 

My husband makes a great soup which I'm hoping he'll make some so that I can try that but he works long hours so I can't push it. You must try and eat, small amounts little and often. I know its scary and none of us want that pain back but you need to build up strength.

let me know how you get on with removing your dressings and what foods help you? xxx

thats good all the things you have eaten again. and i know what you mean with the sickness thats the part i hate i have not been that good yet ive only done low fat soups eggwhites and potato and light rich tea biscults im just so scared to eat more at the moment i know i need to but it really does worry me. Im going to try adding stuff starting from tomorrow to my diet again and see how it goes and if i get to much pain im going to phone the doctors and see whats happening. Ill let you know how i get on with the dressings im so scared to take them of but i no its got to be done xx

Hi Carmella, how did it go taking the dressing off? Was everything ok?

I've just had the GI nurse phone up and see how I was and go through any problems or worries. It does reassure you when they ring up.

Have you eaten anything lately? I did have some roast chicken last night with mash and peas, only a bit of the breast though and it didn't make me feel sick just very full, I probably ate more I should!

Let me know how you're getting on? xx

Hi hun i was feeling very ill last night so i didnt take them of but im doing it today so ill let you know how i get on plus luckily it doesnt feel so sore today. i have had soup so far and might try some cod tonight or chicken. You sound like your doing really well and its good that your nurse has phoned. When i left the hospital they just only said a few things to me  and that im not even going to have a follow up unless something goes wrong and i have to go back to a doctor or phone the surgern? i thought everyone would have a follow up to check up on how we are getting on. If i get to many symptoms that i think are not right ill phone them up. Its good your eating and its not making you feel sick. i still keep getting moments where i feel sick but i take a antisick seems to help xx

Hi, yes I had a night like that, I think you have a day where you do too much and then your body stops you.

I didn't know that they would phone today which is why I phoned them yesterday as I was worried about the pain, but I had a better chat today, I think they have various questions to make sure everything is going ok but she did say to me that I could phone up anytime and talk to someone but if I needed seeing then it was best to go to my gp unless its an emergency. I expect you'll get a call tomorrow as its a week from surgery. She did say eat small amounts throughout the day rather than a larger meal as I having been feeling bad after my evening meal.

I think I've probably got a follow up as they don't think removing my gallbladder will take all the pain away and that I may have sphincter of oddi dysfunction as well. I have been having pain in my left side which has been causing me problems as I only had that occasionally before but that pain in the shoulder blade is back which makes me feel really upset.

If they gave you any numbers when you left hospital then call them for advice.

Let me know what they say xx

really feel sorry for you hun if you have that its good the nurses have phoned you with info to help. like you said if i dont get a phone call i might phone them to. I also get that horrible shoulder and back pain at the moment but it seems worse on somedays than others.I sometimes feel like my stuff is moving around in my stomach but hopefully its just where its getting used to not having the gallbladder there. Ive also took my dressings of not it wasnt as bad as i thought i was so scared to do it some have been bleeding and they are abit sore but not to bad. Im going to keep a eye on the top one as that one seems its healing not aswell as the others but that is a big cut so hopefully now the air is on it it might start to heal better xx

I was nervous too when I took mine off, it was the smaller incision that was worse, the others are a bit bloody but dried but I think I'm going to have a shower tonight and wash it all very gently and it might make me feel a bit better too. I covered the one that didn't look too good with a normal plaster just to protect it so you may want to do that so that you don't catch your clothes on it.

I've got really bad pain in my back on the left side, I suppose thats normal, I'm still on the painkillers and take the stronger ones at night. 

I don't think you realise how out of it and how slow everything takes to get back to normal. 

take care xx

I totally agree hun im also having a really bad back pain tonight but on the right side? like you said i hope this is normal. i also found that the smaller incisions are the worst i thought it would be the big one. Im really not liking this back pain im still taking pain meds to because at the moment everything seems to be hurting alot and like you said it seems worse at night? It really is taking a ,long time to get back to normal im finding it very hard. xx

Hi Carmella, well I've just got out of the shower and very carefully clean my wounds! Be careful not to get the belly button incision too wet as if its too wet the scab will fall off when its not ready at the moment.

My husband has just made pasta and bolognase and a small amount went down ok but I'm still suffering with pain on the left and right side in my back and shoulders so I didn't eat too much as the nurse said little and often.

Are you still really tired? I didn't get up until late and I'm still tired and I haven't done anything!

xx

Hi Carmella, how are you today? did you have a better night or another uncomfortable one.

Let me know how you're getting on?

xx

hi hun thats good and yes in found it very hard to wash the wounds because i was scared the scabs would come of. I find the top one the worst ever so itchy. You sound like your doing very well with eating im still having very light stuff but have had more of the mash and egg and eat all of the soup now so have been eating a bit more. still very scared of trying new things as im really not liking this back pain and that seems to start at night. I totally agree aswell with being very tired i feel as if i cant even get up in the morning and by night im so tired xx

hi hun i still cant sleep on my back and my wounds are so itchy the one at the top is the worst i nearly itched it in my sleep last night so im happy i didnt take the scab of. I still cant sleep on my side and still get pain in back on right side and some pains where gallbladder used to be. im going to book a check up for next week at the doctors just to make sure everything is ok. Im still very tired and sometimes feel sick aswell and my left leg still plays up abit but i do feel abit better then i did. I think i take a long time to heal and its so hard to tell if its healing paIns or pains that are coming back. how are you feeling today hun and how was your night? xx

it seems a vicious circle  with tiredness, I can't get up in the morning and by the evening I'm worned out but then I can't sleep!

Yes my food is going down pretty well but I am only eating small amounts as if I eat a larger meal it really does cause me pain. Pasta was ok so try some of that and see how you get on. Luckily my husband enjoys cooking as his form of relaxation after work and because he's trying to loose some weight himself  all of our food is low fat.

Back pain is awful isn't it and I get it just as bad on the left too.

When I washed my incisions I realised I was wrong in that the belly button one actually does have stitches but its done so well I could hardly tell as it goes with the cut rather than crossing over it.

I'll catch up later xx

the itching will reduce now that you've taken the dressings off as the scab heals and hardens.

Getting comfy while sleeping is a nightmare, after a while which ever side I'm on it starts to hurt so I end up on my back which i hate! 

Yes I would, even though I only spoke to the nurse on the phone it really does help put your mind at ease.

Several people have been telling me not to rush it and relax which I find difficult as I'm always on the go but I'm going to have to listen. I don't think we realise the enormity of what we've had done and expect to be back to normal in a few days only to have our bodies stopping us which is why we're so tired.

Yes I still feel sick every so often like you but I'm on my period at the moment which I don't think helps.

take care xx

i found the same thing with the belly button one as they have done that one so well. I will give the pasta a try and see how i get on with that. Its good your all on low fat aswell my other half has just started a low fat diet to as he wanted to go on a diet and saw how much wait i lost on low fat so he is also now on low fat i got some vitamin b12 spray the other day online so ive been having that aswell as i am low in b12 that seems to be helping abit ive also got the vitamin d spray aswell thought it might help after the surgery keep me updated tonight hun and let me know how your getting on xx

hi carol how are you just wanted to ask how you daughter is doing now and if she is ok. im now on day 7 still getting some back pains and gallbladder pains where it used to be. i took the dressings of last night and they dont seem to bad very itchy though. Im still very scared of eating new things as its been so long of not being able to eat. Ive also stuck to my low fat diet im going to start trying new things soon. I also feel so tired all the time at the moment and can still only lay on my back but i hope these pains are just recory and not anything else? i thought i would message you to see how you are and update xx

i so agree hun its so hard not being able to do anything and like you said we have got to take it easy and rest while its still this bad and with the sleeping i hate it i love to sleep on my side so always having to sleep in my back is so horrible. This is a hard surgery to get over i think like you said some people have found it easy but i think it depends on the person and how they and there body deal with it. I knew i would find it hard as im not very good with pain or feeling sick or anything like that really. im so glad the itching will reduce mines so bad at the moment xx

just a thought but when my incisions itched I cleaned them up and then put a gentle antiseptic cream on them and that seemed to reduce the itch. 

xx

good idea hun im going to try that. How are you feeling now i was ok this morning now not feeling so great ive got this really strange headache going on but im not sure if its anything to do with this and the tired feeling has stayed with me all day today ive also still got pains in back and side sometimes and where my gallbladder was still hurts its not like before its more like its sore inside but the back pain is like it was before  im hoping it will go as its only been a week. The hospital phoned me today and i thought it was going to be a check up to see how i was doing but it was to do with something totally different about having a camera put down my troat and now they are not sure if i even need that done now as ive just had surgery so they are going to phone me back so i guess i will have to phone them myself if i want to check everything is how it should be. Hope your ok though hun and how have you been today xx

Hi Carmella, not having a good day today I've had bad pain under my ribs which is really sore and very warm to the touch as well as the same pain in my back and shoulder blades. Hopefully this is just a small hick-up and things will be better tomorrow. I've probably just over done it and its my body telling me to slow down!

I had a headache the other day and realised that I probably hadn't had enough fluids so had some squash and it seemed to do the trick.

Yes I would phone them, I'm surprised that they haven't phoned, I would've thought it would be normal practice to check up on those that have been operated on.

My husband happened to speak to a customer today and his wife had had this operation and he mentioned that it took her at least 3 months before she was completely back to normal but I suppose its different for everyone. 

Going to have a jacket potato tonight with some chicken and salad so that should go down ok, what are you going to try?

xx

I know how you feel hun feel sorry for you ive been having the same pains and my lower stomach right side pain is coming back but i have not been able to go to the toilet for about 3 days so had to take some laxido but has not worked yet the headache thing is very strage mine started today but like you said it might be because i had not drunk enough ive had a bottle of water and its made it abit better now.  I had some fish today only a little as i was still abit scared but it seems to be ok at the moment. Im very surprised that the hospital didnt phone to check up but instead it was for something else? i think i will call them next weekif things keep going on just to get some advice lets hope we can sleep abit better tonight im still finding that really hard to xx

when I spoke to the nurse I had the same problem and she suggested to take some senakot but luckily I didn't have to in the end! Don't forget that you haven't eaten much so probably haven't got much inside you.

Oh so do I, I'm so tired, fingers crossed for the 2 of us. xx

Hi hun how you feeling today my left leg has started playing up again i feel not to bad at the moment but i find it gets worse at evening and night didnt have a very good sleep again last night i had 2 laxido and still cant go im going to take more today and see what happens. Do you find the pains get worse at night and evening? i still keep getting that shoulder and back pain aswell but im just hoping its the recovery hope your ok hun and update me on how your getting on its nice to chat with someone who has had the same surgery at the same time and can help each other through symptoms etc xx

Hi Carmella, Yes the pains are far worse at night especially with the back and shoulder pain but I'm also getting more pain in the middle of my chest which would be where the staples are so its no wonder things are sore.

I did have a better night last night but I do lie awake for a couple of hours which is so annoying as I feel so tired and desperate to sleep. I think depending on the weekend I might see if my gp can give me some sleeping pills as I'm not sleeping during the day either.

I'm better that yesterday but I think I expected to be able to do more. I've had to do a little bit of work at home but only the urgent stuff and of course housework! 

Do you find if you overstretch or twist awkwardly that you get a shooting pain that says 'no don't even try it '!!

I am worried about my weight as its much lower than I'm happy with and it doesn't seem to be going on very quickly even though I am eating. Even my neighbour who popped in today for a cuppa mentioned it, through the baggy clothes I was wearing. I think when my weight improves that I'll start to feel better too but its a vicious circle as you can't eat much otherwise you're in pain even though you want to eat.

Yes I mentioned you to my neighbour and how useful it was to speak to someone who's going through the same.

I wonder what that left leg pain is? When I had mine I thought of all different things it could be, low salt, pressure socks after the operation, withdrawal from codeine and coffee and I know there's something called restless leg syndrome which I've had before which is worse at bedtime so I've had a couple of crisps but didn't really enjoy them and I need the codeine again because of the night pain and coffee, I quite enjoy again now, I couldn't drink it after surgery at all. I don't know if any of this relates to you but it might.

What did you eat last night? I found 1/2 a jacket potato, some cold chicken and salad were ok. I've got one of those pannatone cakes from christmas and a thin slice goes down well, I don't put anything on it as its lightly spiced and plain.

Has your headache gone? You may need to speak to your gp if you still can't go, as being bunged up can cause its own pain, they can give you something stronger if over the counter stuff doesn't work.

Take care xx

Hi hun i was thinking the same thing about the sleeping i cant sleep at night or day but feel very tired but cant sleep? And yes the pains get alot worse at night i have also felt the chest pins they you said about. I have also been having pain where my gallbladder was its like the pains you said about when you move the wrong way and the body is like no stop it. Do still get pain where the gallbladder was? its not all the time its when i move and its like a shooting pain? and the back pain is like the same thing one day it was there all day then others it comes and goes? hopefully its just the body getting used to not having the gallbladder anymore and not something else. The leg pain is horrible its in my left leg i have had a bakers cyst in that leg so im not sure if its that playing up but it feels more like a nurve pain as its now going down the whole leg? i get so worried about it i keep checking for blood clots. hopefully like you said it is just restless legs because it does seem worse at night. I had some fish last night which was ok so im happy ive had something new and today i had a different soup with more in it it was carrot and lentil which was nice. You sound like your doing really well with trying new foods again and i also no the feeling of losing so much wieght i lost 4 stone and it doesnt seem to go back on very quickly i am happy that i lost my weight as i did need to but none of my clothes fit anymore. I still have to take pain meds at the moment and like you said if the laxido not working im going back to the doctors. Im so happy we can talk about our symptoms as we had this done at the same time makes it so much better talking to someone who knows how it feels etc. I also get these wierd feelings in my stomach sometimes like poping or something moving its so hard to explain that feeling but i dont know if you get this at all? xx

 

Hey Carmella, have you tried jaffa cakes? don't forget they are low fat and they go down rather well for a treat but just don't eat too many!!

I didn't know much about a bakers cyst so I've just looked it up, it isn't changing where you had it before is it? Perhaps if you speak to your gp next week you should mention it just to rule it out.  Hopefully it may have been the pressure of the socks and my surgeon had special leg pumps on too while I was being operated on so if yours did that it may have aggravated your previous condition.

I seem to have the pain everywhere, left, right, in the middle, back and shoulders, I'm so hoping this is all to do with the recovery process as well as the fact of eating again!

I think I'm having fish tonight but just plainly cooked. 

Lol, clothes, yes mine just hang off of me at the moment, it was bad enough before surgery I daren't put anything smart on as I haven't got enough padding! I lost it everywhere! I've been wearing loose walking type trousers that I wear for work as they're light but I don't want to do the top button up as it puts pressure on the belly button incision but while I'm not going anywhere it doesn't matter. I've been for a walk down my garden but I haven't venture anywhere else, the village shop isn't far away but I'm nervous encase I get lightheaded so don't want to go there on my own.

I know my stomach made the most strange noises but it seems not so bad as I've started eating better so hopefully yours is just this.

Its really hard isn't it when you don't know what to expect and whats normal and whats not. Thats why I find this so helpful too.

 xx

 

It really is so helpful i totally agree its so strange because with the recovery there are still so many strange symptoms and pains etc. I also have been wearing not tight clothes my top cut is still so itchy i even put cream on it but its still so itchy but Atleast its healing ok. And byes my stomach has been making some really strange noises and feels really strange sometimes to i get like a poping feeling and like things are moving around in there?That does scare me sometime when it does that and along with the pain when i move where the gallbladder was i find the worse at the moment. I had plain fish with nothing on it it went down ok so you should be ok with that. I need to try jaffa cakes i have light rich tea biscults which go down ok but not eat to many. Ive also been trying to drink more water as i was not doing great with that and also just had another laxido so lets see how that goes lol. Im so going to phone the doctors next week just to have a check up on everything though or phone the hospital and chat to a nurse. I know what you mean by not wanting to go any where at the moment it is so scary i find it scary incase like you side light head and pain etc i dont think i could walk that far at the moment because the more i move around the more the pain where the gallbladder and back pain starts so might be abit to soon still like you said i hope all this goes with time. Im going to have a bath again tonight i have been having showers but im going to try a bath again. Im also going to have egg and mash again tonight then try some chicken or salad tomorrow i still also feel sick sometimes to so hopefully that will pass at one point xx

with that top cut just make sure that its clean all the time and not rubbing on your clothes as I know that made mine itch.

I haven't had a bath yet, still a bit nervous as I don't want the scab to come off and I love to have lots of water and bubbles!

I found drinking water with a little squash was easier to handle than plain water especially when I thought my kidneys were playing up and giving me lower back pain so I just had lots of squash and it seemed to do the trick.

I seem to be routed to the settee as the same as you when you start moving around the pain comes back and I find it hard to put up with it like I did before. 

Lol, mash is great! scrambled eggs with smoked salmon on toast was ok too. I find if I eat too much in one go then I feel really sick even though they're still small amounts but I suppose my body can't manage that yet.

take care xx

same here hun and yes i know the feeling of not being able to eat to much in one go. Also the not moving around much aswell is so hard but if i do the pain seems to get alot worse. i just hope our symptoms get abit better soon ill keep you updated hun xx

Hello Carmella

Thank you so much for your message.

Really pleased you're recovery is going well, it is scary from what my daughter says trytfood but great if it stays in ok :-)

I just tesponoto Katherine as well as we have been in & out of A&E lots again.The MRCP has been inconclusive because of her magnetic linx implant it messed up the images. So her appointment on the 23rd they might say she needs the catheter put down her throat into the bile ducts next but as she is so low he might just try to give her the Botox jabs to numb it all. the A&E surgeon on Monday night said that pethadine will be better than oramorph as it works better on soft tissue like Sphincter of Oddi issues so I'm just trying to get that sorted out for her, but we need to get it prescribed specially for her not easy to get done so working on that now. She is trying so hard to beat this but struggling now she is tired & exhausted mentally & physically. And struggling to see it will get better. Just praying she gets a break soon in a better direction so she can see it will get better.

She found ice cream from the free from range really goes in well & soothes as well :-)

Keep me posted on how you are doing xx

Hi Carmella, how are you feeling today?

I'm still having a rough time sleeping, I'm finding the pain quite bad again and sometimes worse than before. Going to get some sleeping pills next week I think, I'll speak to my gp on monday.

I received a letter from my surgeon today and I've got an appointment at the end of the month so not long too wait. I thought it was going to be in 6 weeks but pleased that its sooner rather than later.

How's food doing? I'm eating ok but can't eat large or normal size portions and I still get alot of pain afterwards, I'm really hoping that some of it is just healing and those will disappear over the next week.

I'll have to look at going back to work after next week so I really hope that some of what I'm feeling has gone but I don't fancy driving just yet, I feel really scared about it so I might have to get my husband to pick me up. Luckily our business is only about 4 miles away so its not too much of as issue as long as he can get away.

I hope you've had a better night and you're doing ok.

speak to you soon xx

awww i feel so sorry for her and it is such a horrible thing to go through im even finding the recovery hard as im still having lots of pain where gallbladder was and right side back pain? also been having to take laxido which is not working at the moment and my left leg keeps playuing up so not sure if thats to do with surgery or not. its so hard to no if its pains i should be feeling or not. Im so sorry for you daughter though a\nd really hope they can find something that will help her soon xx

Hi hun in know how your feeling with this pain its horrible i keep getting mine where the gallbladder is and up ther right side of my back, I actually slept for a while on my left side last night but then it started hurting abit so had to go back to sleeping on my back. Its good you have a appointed with your surgeon hopefully they will be able to help and do some tests if your pain is still bad. im also going to phone the hospital next week and doctors to see if these after pains are normal or if its something else. Foods not been to bad but i do still get abit of pain after and thats on low fat and not eating much? so hopefully its just because the body is still getting used to having no gallbladder im hoping. Im the same as you can only eat little amounts at a time. if you still feel bad by the time you have to go back to work you should see if your doctor will do a sick leave not so you can have more time to recover because if your still not feeling right by then i wouldnt over do it hun if you dont feel ready. I have the right side back pain at the moment again its really strange because one moment its there and then it goes again and some days its not there at all and some days its there all the time? my leg feels abit better today though but my gallbladder where that was is still painful aswell? I also moved the wrong way and really hurt my self last night so i dont know if its down to that why its hurting so much today? do you find if you over do it it really starts to play up and takes a long time to go down again. i had to take all pain meds again lastnight after that aswell as it hurt so much  xx

Hi Carmella,  sleeping is a nightmare isn't it, I've managed to lie on either side but not for very long before I'm on my back again. 

Yes I'm geting alot of pain where the gallbladder was and back pain too. Let me know when you speak to someone, I expect its normal but it is worrying isn't it?

Oooh it hurts doesn't it if you move awkwardly, the pain is horrendous so yes I expect thats why you're hurting more than you should be. Its still early days don't forget and it does take a lot longer for the inside to mend and don't forget you've got staples inside you where they clip the ducts.

I'll have to see about work, I'm self employed so not that easy as there are certain things that only I do but I can only go in for a couple of hours and then come back again but yes I will see how I am and hopefully by the end of next week everything will be much easier.

Take it easy this weekend xx

 

I totally agree hun nights are horrible i find i feel worse all over at night then the day time which is strange but like you said its still early days so hopefully we are feeling healing pains and nothing else. ive been trying to do some more walking up and down the stairs but that hurts alot even to do that. My son has also now got a cold so im scared of catching it now loi i dont really want a cold on top of all this. Do you find one moment you feel ok then the next moment you feel ill with the pains again etc? i just hope everything goes back to normal after the healing. ill let you know when i have spoke to the hospital and doctors to xx

Oh no you don't want to get a cold, perhaps you won't, fingers crossed you won't get it.

Yes, I am like that, I wouldn't say fine but then its just like I was before surgery. The pain in my right side isn't good, I can't believe it hasn't gone. I knew that it might not but I'd hoped it would. Its funny the first couple of days after surgery were ok but then since I've started eating its all come back. Its quite debilitating at the moment.

Well its 2 weeks on wednesday and alot can happen in a week so I'm hoping that some of it will reduce.

I've only got a few stairs in my cottage so its not too much of an issue but I do hold on to the bannister rail.

Look after yourself, you don't want that cold. speak soon xx

ino i so dont want the cold on top of this. ino what you mean by this pain being debilitating and i also thought i would be in less pain then this. my gallbladder pains seem different then before surgery but the back pain seems the same as what i had before it? im just hoping it will get better with time and ill also talk with the nurse next week and doctors. one good thing happened today the laxido has finally worked lol so thats good. I find moving around makes the pains come on alot more aswell and i had that before the surgery aswell but im trying to thing to my self its only a week and a half please please let these be healing pains lol. xx

Oh thats good thats one less thing for you to worry about, now it just all this pain.

I'm really struggling today with pain in my back, I have to keep moving around because I can't get comfortable, I feel like a yo yo!!

I'm going to try turkey steaks tonight as turkey is low fat but I don't know what we're going to have with it yet.

Take care xx

i do really hope our pains stop and it is just healing pains. ive been having the back and gallbladder pain where it was today bad aswell turkey sounds nice hope it goes down ok. i had eggs and mash again tonight i find that one goes down the best at the moment. update me on how you get on hun xx

hi hun how are you today. I had the worst night so far last night with pain where my gallblader was it even hurt when i touched it and it was right where my gallbladder was i dont know if its me but it felt abit swollen where the pain was which was very scary? that pain has been getting worse but im hoping it my insides healing? do you get pain like that at all? i took meds for it and that helped a bit then i finally went to sleep. This right side back pain keeps coming on and of i found that the worst pain at first but i think this gallbladder where it was is the worst pain now i just really hope its because its all healing and i might of twisted funny the other day which has made it worst im just hoping its that and nothing to bad as this pain gets worse towards the evening but i have got up with it still being there today its so scary not knowing if this is healing pains or something wrong? ive got no temp or anything just this strange pain. Has yours got and worse since the surgery? and how are you feeling today so far xx

Hi Carmella, yes mine's exactly the same so it must be the healing process, don't forget when things heal they get tight before its finally healed which is what I think we're feeling. 

I woke up this morning with terrible pain in the middle of my chest which I haven't really had before, its worn off a bit now after some pain killers and I've been in my greenhouse planting some mini plugs that came trhough then same on my decking area which is sheltered and the sun's shining so it was lovely just to get some warmth.

I'm going to venture out in a moment in the van, it'll be the first time out since surgery, we're not going far but I need to get out of the house for a while.

I'll write back later to see how your getting on.

xx

hi hun i also had that pain in the chest aswell like you said i hope its just healing pains. You sound like your doing well and its good you have been out aswell. Im going to rest a bit today as still painful ive took meds thats helped abit so ill see how that goes. And yes keep me updated on how you feel later and ill do the same have a nice time out hun xx

Hi Carmella, well I didn't go out for long, got a couple of bits in the garden centre but felt a bit dizzy and sick so had to come back to the safety of the settee!! It was good to be out but it was hard walking around. I've been down the garden again because its so lovely and sunny down there so just enjoying the different environment. 

I've still got this awful pain right in the centre of my chest, it just hasn't gone and now that I'm eating I'm getting those pains in my shoulders again, thankfully my appointment with the surgeon isn't too far away.

I really didn't expect it to be as slow as this as I've read that some are up and about and doing fine, I know everyone is different  but it does make you wonder 'why me'!

Just relaxing indoors now, how are you doing now after your pain relief?

speak later xx

Hi hun i know what you mean ive been taking it really easy today as i have felt really bad today. Like you said that right side pain is horrible and the middle pain aswell. i also keep getting that back pain alot aswell. My headache has come back today aswell but i really didnt get a good night sleep last night, my son was also really bad with his cold last night and i was in lots of pain so its been really hard. i just hope im not getting this cold on top of this Ive also found ive felt more sick and less hungree today aswell and have not had so much water. Ive also had to take pain meds this morning and afternoon and probs tonight aswell like you said i feel quite down today thinking why us why do we have to feel like this i also like you have read that some people feel better straight away but ive also been reading that some people dont feel better for months and that it depends on the person. Its good you have got you appointment with the surgeon soon i wish i had a follow up but mine said nothing but i am going to phone the hospital tomorrow to see if we are having healing pains or is this something else. I thought these pains would get better not worse but i have read that some people do start to have problems after a week or 2 and then goes again after a while but im just tired of feeling ill all the time as we have had to put up with this before and its still going on after surgery aswell Like you said i didnt think it would be this bad. Its good you went out today though i still have not done it i was going but have felt so bad today i have just been resting alot. xx

Hi Carmella, don't forget you must keep your fluids up even it you don't eat as you don't want to become dehydrated. I've had a few days where I haven't wanted to each but I have forced myself so don't worry too much about it unless it carries on as you do need to eat eventually.

Yes I read lots of things about what can happen after surgery so I think we just have to stick with it and see and hope for the best!!

I didn't think I'd still be taking painkillers over a week later, I knew that I would probably have pain but sometimes its worse than before.

I've done too much today now and I'm suffering for it so tomorrow I'm going to have to take it easy. 

My husband's cooking some beef so hopefully I can manage that. I did bake a tray bake today as I do manage to eat small amounts just nothing in a decent quantity as before all this started.

Let me know how you get on when you phone the hospital, I was dreading it when I rang as I thought they'd think I was wasting their time but they were really good, I hope yours will be too.

Take care xx

Hi hun ive started drinking more water now and had some food so lets hope that will go down ok. I know what you mean by over doing it i think that is what happened to me yesterday i started walking about more up and down stairs etc and felt really quite bad last night and all today so been resting Its good you went out though hun and got some fresh air it was a nice day today aswell. Ive felt a bit down today as its been a bad day with pain etc just finding it hard as its like what you said sometimes it seems worse than before with some of the pains i just hope this goes away ill let you know what the hospital says aswell and keep you updated on everything xx

Hi Carmella, I've just managed to eat roast beef, potato and some veg and its gone down ok but I think some of its due to the spritzer I had which I think my husband made it a bit stronger than usual as I feel a bit fuzzy with the pain relief!!

Yes you must keep your water up its so important.  It was good that you've managed to move around a little more but don't overdo it, think is at the time you just want to be a bit more active and try to rush the healing process but as I've learnt you can't rush things, however frustrating your body will heal at its own rate and there's nothing we can do about it!

I hope you get a better night's sleep and I'll speak to you again tomorrow.xx

Hi Carmella, how'd you get on, did you get an appointment with the doctor? Let me know when you get a chance. Hope you're ok xx

Hi hun ive spoke on the phone they said its still early days and could be recovery pains still so to call back if pain gets worse. I also went in the car today to get some fresh air and as the weather is so nice i feel abit sore now though and my right side back pain is playing up at the moment. im also going to ring the hospital today aswell to see what they say so ill let you know what they say when i speak to them. how are you today hun xx

Hi Carmella, Oh I'm glad that you managed to speak to someone, its as we thought then, recovery pains. Its funny as we think the worse even though we know that its nothing we just worry that it is but then its natural with this as we've all had months of pain and sickness.

Did the fresh air make you feel better? it did with me and when its sunny it does give you a boost.

Yes still struggling today and it just gets worse as I eat again. I'm getting that feeling of nausea again which I hate. I didn't think I was too bad this morning until I started moving around and eating. That back pain is a nightmare at bedtime, I can deal with it when I'm sitting in a chair but not when I'm lying down.

I've had to do some work today, its computer stuff so its not too bad but its tiring.

I am getting a little concerned though as you don't get to see the surgeon again unless there's issues but get referred back to the physician or gp. I know he's been looking at my liver tests as they did a cholangiogram when they removed my gallbladder so I wonder if they're going to do another test that has to be done by a surgeon and my surgeon is a specialist in complex biliary issues.

Don't forget to take it easy when you go out, its very easy to overdo it.

I'll speak to you later when you've called the hospital.

take care xx

Hi huni know what you mean by it starts again when moving around and eating i was not to bad first thing aswell but when i got back and had some soup that back pain started of again. Its so strange with that back pain because thats the same type of back pain i had before the surgery. I have also now spoke to the hospital and got nowhere with that no one new any answers and put me through to the main hospital number and then they put me through to someone they said would be able to help they didnt even pick up the phone then i spoke to someone else and they said to phone my doctors again So i did phone my doctors again and luckily got to have a longer phone chat with one of my doctors and they gave me more info they said the gallbladder pain should be normal after and sore but he was not to sure about the back pain he said the back pain might be linked to the gallbladder where its been taken out is hurting but he has gave me stronger meds for now and some more antisick and said if the pains dont go with in 2 weeks to come in to the doctors and they can check in to it in more detail he also said hopefully everything will carm down soon and it is recovery pains and to call back if i need to. so that was a lot more helpful and yes the fresh air was nice only went out for abit but i did feel so good to get fresh air. I know what you mean by not seeing the surgeon again i wish they could do a check up anyway really they shoud do as they are the ones that done the op. I just hate these pains and really am hoping that they will pass because it so horrible having all this before and now after the surgery aswell my back on the right side is really playing up now aswell xx

Oh at least you've found someone a bit more supportive, I know if I hadn't have got another appointment with my surgeon I would've been referred back to my gp so I'd be in the same position as you. Fingers crossed it is just recovery pains, I feel worn out now today and I've hardly done anything. I've just weighed myself and hoped I've put on some weight as I've been managing to eat but no, its the same as it was a couple of days after surgery.

What pain meds did he give you? I've got cocodamol but I try not to take them unless I need to which is usually in the evening. 

Its 2 weeks on wednesday and I thought I'd be better than this.

I happened to pull a bit of my stitch out last night by accident but it didn't cause me any pain as I think it was dissolving anyway. I've coughed a little today and its still very sore especially with the incisions on the ribs the rest don't seem too bad.

Take some pain relief when you get it and hopefully that'll make you feel better.

I'll catch up later xx

Im so  happy i spoke to someone now and also if i need to phone back or go in i can i know what you mean by the weight not going back on hopefully once recovered a bit more it might come back on. Ive got oxynorm for the pain and some antisick tablets. Like you said i thought we would of felt better than this and its nearly 2 weeks and we still in so much pain i also done the same as you with one of my stitch it hurt abit but not to much. when is your follow up again hun its coming up soon? xx

Oh I'm glad that you feel a bit more reassured, it is worrying isn't it. No one really prepares you for what you might go through, the only person to tell me it wouldn't be easy afterwards was the nurse that looked after me and I'm really glad she did. My mum has had major surgery before so she understands when others don't really get it.

I've just had a little chuckle to myself, getting out of the chair is so awkward and its not a squishy one, nice and firm, it made me laugh as I must look worse than my mum who's 84 and had her hip done!!  It'll be good when I can get up and down onto the chair without any issues.

My appointment is tues 28th March so 2 weeks tomorrow so its not too long to wait and hopefully some of this pain will have gone by then.

I get alot more left sided back pain which I didn't have before, do you get that?

Are you resting up now? You've had quite an eventful day.

xx

 

awww bless you hun i know that feeling with the getting up and moving around. All my pain is mostly on the right where gallbladder used to be and back pain on the right to. my back pain has really been playing up today like you said it might be because i done more today so im going back to resting again now. Do you find the back pain gets worse with moving around and are you still getting the pain where the gallbladder was mine is so painful i cant take it sometimes. Its good that your check up is coming up so you can find out whats going on i hope we both feel abit better by then aswell. do you also find it hard bending and walking etc im finding even getting on and of the bed still hurts and even down to sitting wrong moving wrong and stitting or standing for to long xx

yes it does, the more I move the worse it gets, again with the addition of food. I find that I sometimes get a sharp stabbing pain, its not for very long but certainly makes me stop in my tracks and gasp. I think its just a warning sign that I shouldn't overdo it! 

Yes getting up out of bed isn't easy I find that I have to hold onto the edge of the bed and half roll out! and lying down is the same, I can get into bed but when I lie down I have to really take it easy, I feel really old!!

Bending down is so funny, awkward but funny, I'm just so stiff but that must be the muscles healing, trying to stand up again isn't easy so I have to make a grab for something to hold onto to help me up!

Have you managed to eat tonight? what did you have? I've got a jacket potato but I don't know what with yet.

xxx

I feel the same hun lol its horrible its really hard at the moment aswell my sons got a cold and now my partner is getting it aswell and i just keep thinking please dont catch this lol. I also get the same pains like stabbing pains and this back pain has been with me all day today and not much has helped it at all. i also find it very hard getting about still i have to watch out that i dont twist funny as that really starts the pains of. I had egg whites and mash again tonight im still so scared of everything and today because ive been in pain so much i thought i would stick with that as i know thats ok and didnt want to add to the pain more. Im going to try something different tomorrow.  How did the jacket potato go down hun? i might try one tomorrow and see how it goes down i dont think im going to have a great night sleep tonight as pains are really bad today ill update you in the morning and let you know how getting on hun xx

Hi Carmella, jacket potatoes go down well, I only have half a large potato usually with a few baked beans, I did put a light sprinkle of cheese but not alot and that was all fine. 

Well I've just ventured outside and gone to the village post office and shop, its not too far away but it was hard going, I am suffering a bit now so I'm having a rest. 

The pains are still really bad, I had that left sided pain for along time last night and everything is still sore underneath the ribs but if you've had a look at the procedure on u-tube then its not surprising!

Yes those stabbing pains aren't good, I got one coming back from the village.

So how are you feeling today? Are your pains easing? how did you sleep?

My husband's hurt his back so he's up in the night at the moment which wakes me up!! I'm still finding it difficult to get too sleep but I can lie on my left side now which makes it a bit easier.

Let me know how you are? xx

Hi hun its thats good you got to go out for a walk and i know the feeling of the after effects thats what happened to me yesterday when i got back the back pain stayed for hours and no meds were taking the pain away at all and then it stopped abit before i went to sleep. Im still finding getting to sleep very hard and i still have to lay on my back as cant lay on my sides. Its good you can now lay on your left side.i hope your husband feels better soon to my partner is ill now he has got the cold my sons got so im really hoping i dont catch it aswell as its a bad cold aswell and really dont want that on top of this. My pain are still there ive even had shoulder pain in the right and abit of left side pain today aswell. ill have to look on youtube and see what its like. Im going to rest aswell today as i feel my pain gets even worse with moving around. i still get pain where the gallbladder used to be alot aswell. how are you feeling now after your walk hun xx

Hi Carmella, I really hope you don't catch that cold, its all bad enough at the moment with all the other pain. Lets hope you husband and son get over it really quickly, are you having to look after them or are they managing to do things?

I don't know what I'd do if I couldn't lie on my left side, I always have bad nightmares on my back, I can't lie on my left all night but at least it gives me another option. 

Its a bit gory on u-tube but it does make it easier to understand why we're in pain but medically its amazing how they do it.

I was in alot of pain after my walk so I'm just resting up now and pottering at home. The fresh air was good though but I didn't stop as I was nervous encase I couldn't manage it and get stuck in the village on my own. I didn't feel dizzy though which is what I was afraid of.

I've got some paperwork to do this afternoon for work as I think my husband is really missing me at work but luckily he's not pushing me to go back sooner.

I never did ring my gp for sleeping pills but I might need to if I'm going to try to go back to work next week so at least I'll be a bit more rested.

Hope your husband and son get well soon and that you rest up, take care xxx

i really hope that i dont catch it to hun like you said on top of these pains aswell really do not want that to. I know what you mean about laying on your back and dreaming more i keep getting that but the meds im on help with sleep so once i actually get to sleep im normally ok its just i find it hard going to sleep. I was also in alot of pain after i went in the car and had to rest i still feel it today but like you said the fresh air is nice though. Luckily i have everyone looking after me even family lol. Its good you didnt feel dizzy when you went out. I just eaten a soup and now my back pain has started more again so i hope this does not keep going on I would ring the doctor hun and see if you can get something for sleeping because if your going back to work soon you will need your sleep and rest hun xx

ahhh thats good that you're being looked after, I'm lucky too with family and my neighbour popping in to check I'm ok.

I'm really tired now, I've done some paperwork and been up and downstairs a few times so I'm resting up now for a while. The pain isn't too bad at the moment but I did take some pain relief earlier and I find it does take the edge off as long as I catch it before it gets too bad.

Yes I think I probably will phone my gp tomorrow as I'm running out of pain relief as well and I desperately need to get a good nights sleep.

I'm going to try and go shopping with my husband tonight at least I'll have a trolley to hold onto!! 

Do you find that just under your right ribs its all very warm, mine was before surgery and its still warm now so I expect thats the healing process.

What are you going to try for dinner tonight? I'm hoping we can get some fish as that's light and doesn't take too much cooking. 

Hope you're resting up. xx

Thats good your getting help to hun i do get pain still under rib and is abit warm sometimes i feel like its swollen sometimes to my back pain is really bad today again on the right side and i keep feeling tired alot today to been feeling sick again on and of aswell. Ive really been resting today as been feeling bad today feeling weak also. I watched some of those youtube videos and it looks like the reason why we are in pain lol. i just really hope this doesnt last for really long as each day seems hard at the moment and starting to feel down as its so hard thinking that we would be better after and still feeling this pain sometimes gets to me the longer it goes on im not to sure what to have for dinner yet im going to have a think on what to have. let me know how you get on at shopping and how you feel after xx

I also wrote another post just now hun saying about our symptoms to see if anyone else has been feeling this way aswell and how long it lasts etc xx

I remember reading before I had  a date for surgery that it might be necessary to me to go private so I looked at the bupa site and they said 3 weeks before resuming normal activities. All these sites are so different some say 7 days and there's no way I could've gone back after 7 days but I know there are some people on here that seem to have got over it really quickly but I think it must depend on what condition you are before surgery. I know I lost alot of weight and muscle tone which I know takes a time to build back up again.

I've just crashed out on the settee, I was feeling so tired and drained of energy. Yes the u-tube clip does explain alot doesn't it thats why I had another look at it. Mine feels as though its swollen also at times but I didn't know if its just me or that I was imagining it 

I'll get in touch later after shopping, I know it isn't going to be easy but my husband missed some of it last week when he went. He loves shopping but doesn't like getting the dull stuff thats necessary but likes buying the wine!

It'll be interesting to see what replies you get. speak later xx

bless you hun and yes i found that all these websites say different things that was what was making me worry alot like you also said some people recover really quick and some dont. i also lost a lot of weight before surgery and was in a lot of pain. let me know how you get on after you have been shopping hope it goes well hun xx

Hi Carmella, well I survived! I was really holding onto the trolley and found it fairly difficult when it got heavy to manoeuvre and we didn't have loads in it.I found that I ended up limping because I was sore on my right side. It did hurt as you're bending all the time but I managed it but I don't think I could've done it when the store was really busy. My husband did the lifting of the bags and carried them indoors.

I am finding that I'm in alot more pain now, but then that seems to be usual for the end of the day so I'm just sitting and resting. I've probably over done it for today.

I felt really depressed last night because of it as I just thought/ hoped I'd be ok afterwards but I'm not too bad tonight, just tired.

How's your evening gone?  xx

 

hi hun i did the same today i was so depressed and was crying because of being in pain still after going through all this and still having all these issues happening it really is getting me down to hun so i know how you feel. i did another post today as i was feeling so down about feeling like this still. Its good you went shoping though hun not so good that your sore now but just rest and take meds and hopefully it will take it away abit. Thats how i also felt yesterday when i went in the car and i got this right side pain really bad and also that right side back pain which has lasted today aswell. Do you find things make these pains worse like i had a soup after that it seemed worse so i took meds then it slowly got abit better then i had a low fat dinner then it stopped for abit then comes on again when i move around i also wrote another post about some of our symptoms if you want to have a look some people have wrote back now and made me feel better reading it if you ever feel down hun im always here to speak to as going through the same and totally understand what your going through i also have anxiety and this has made it so much worse. plus on top of everything else i think im getting the cold lol i so was trying not to catch it aswell. Take it easy tonight and tomorrow hun and let yourself recover from today and hope you feel a bit better after rest xx

Yes I've just been back to your post and saw all the comments, so we're not going mad after all! and it is just normal, I think we're just inpatient these days as our lives are so fast moving so it just takes a bit of time to get use too. 

My pain is constant and gets worse with food like it did before but then I was expecting that but its the short sharp stabbing pains when you start moving around that I know is the recovery stage but it is hard to know what is going to go and what isn't as at times it feels worse than it did before. 

Thank you, I'm ok just got a bit down, I'm still on  mild medication to help with stress and depression due to bullying, it still has its knock on effects when other things happen but I can cope with it much better than I use to as that part of my life it over.

Oh no I hoped you wouldn't catch that cold, now make sure that you drink lots of fluids and rest as much as you can and don't over do it otherwise it'll weaken your system.

Night Carmella, going to try to get some sleep now but I'll speak to you again tomorrow and see how you're getting on. xx

bless you hun im always here if you want a chat. There was some helpful comments on there and like you said we are not the only ones lol its just so hard that we are going through such hard after pains and like you said i find that they are sometimes worse then before to. im also on meds for anxiety and depression i was on them before this happened and when this happened it made mine worse. im now going to try and sleep to hope you have a good nights rest and speak to you tomorrow hun and see how were getting on xx

Hi Carmella, how are you today? Thank you for your kind words I appreciate it. Unfortunately it does have an effect on the rest of your life even when its over. It seems as though we go through so much and its just one thing after another, it would just be good to have a year without issues. 

I had a better nights sleep last night, I still have trouble getting to sleep but I didn't wake up until about 06.00 which is the first time in ages, the only down side is that I've woken up with really bad back pain that goes into my shoulder, the shoulder pain has eased but the back pain is still there.

Yes those replies were useful at least we know that its normal and we just have to rest up and take it easy 

Let me know how you're getting today? hope you're better. xx

hi hun i glad you had a better night sleep not so good about the back pain though. I know how you feel about trying to get to sleep thats the part i find really hard and that back pain is horrible ive been having that alot and also sometimes in shoulder but mostly right side lower middle of back. I hate the fact that this has effected our lifes so much i thought by having the surgery we would be ok after but its not really like that at all thats what gets me down as one day i was fine then it all started with pain one night and has never gone away then had the surgery and still have pains but hopefully its just our body getting used to it now and it will take time and soon things will feel abit better im hoping. And yes those posts really helped aswell seeing that other people feel the way we do aswell. Im just going to take it easy again today as i find if i try and do to much it makes the pains worse but its so hard because its like your brain wants to do things but your body wont let you do it. xx

Sorry Carmella I meant to ask if you manged not to get that cold that the rest of your family have.

I'm having an easy day today too, I do basic stuff like washing but that's about it. I did have a walk down my garden which was lovely to see all the plants starting to come alive it gave me hope that when I really need to be doing things hopefully I should be alot better. 

I know its frustrating isn't it but it is early days, its only been 2 weeks since having major surgery.

We've just got to remember to rest and don't do too much too soon. Yes mine started the same and gradually got worse over the months leading to a diagnosis and then surgery. Its not easy but we have to move on and think that  there will be a day when this is all over.

How did you find sleep last night and whats your pain like today?

xx

i agree hun i just got to hope that this will end soon and rest and hope for the best. Ive been doing the same today just resting really and i feel like that cold might be on its way Thats also how mine started gradually then it gets worse and its the back pain i cant take. My pain is not to bad at the moment but by the evening it seems to start playing up more ive got that headache again today aswell but i dont know if its because of that cold now starting Its good you have been out its such a nice day again today and it does feel good to get some fresh air and yes mine used to be like that then one night i had really bad pain then it never went away then i was in and out of hospital A&E etc. I couldnt get to sleep very well last night but once i got to sleep i was ok but i still have to sleep on my back as trying to sleep on my side still hurts and i got up and must of slept funny as everything hurt when i first woke up. how is your pain today hun and symptoms etc xx

Yes I've started to get some headaches but I think its due to not enough fluids so I dose myself up on squash  for a bit then it seems to go away.

My pain was bad this morning then eased a bit but now its really uncomfortable and hurting just underneath my ribs on the right, I've also had a fluttering of sharp pain there too, it just goes from front to back. I was lucky I didn't seem to need to go to a&e but was able to deal with it at home and pain relief. 

Do you find the pain starts without warning even if you're not doing anything?

Hope you're doing ok?

xx

hi hun thats not good sounds like the pains got even worse? maybe you should ring the doctors or hospital again tomorrow. My pain has also started up again it seems to get worse in the evening and ive been resting all today then i had some biscults then then the back pain got worse so im thinking is it to do with eating and moving around? mine for the last few days has been playing up round about the same time after i eat or after movement or sometimes it comes on out of no where? it is really horrible because makes me think is this normal? i know how your feeling though hun my pain has also got alot worse now i had a feeling it would as it seems to always get worse at this time. Then i have to take more pain meds again and when it gets this bad they take a very long time to work. ive also been having the shoulder pain more today aswell. xx

Yes I might, I'll see how I feel in the morning. Mine has always got worse as I've eaten throughout the day but I'd hoped it wouldn't be so bad after surgery. Even low fat food gives me pain so I tend to eat pretty much what I want  except really fatty, fried or spicy food all things that I love  

I've been feeling sick on and off all day today but I think I've been moving around a little more at home but I am tired now. I've taken pain meds too throughout the day and yes I know what you mean about taking a while to work. Do you find when its bad that you feel like you've got a temperature and that you're overheating?

Have you managed to eat this evening? What did you try? Don't forget they go through muscles which is why I think it gets worse on movement as soft tissue always takes a while to heal.

How's the cold and your husband and son?

Speak again later xx

hi hun yes let me know what the doctors say if you phone them tomorrow. I also find i still get pain with anything i eat aswell even low fat. I just had low fat jam on toast and rich tea biscults and egg white and mash. I know what you mean about the feeling sick on and of aswell i get that alot and i also get the feeling of being really hot when i feel bad to very strange feeling. thats why i must be be feeling bad with movement it was thinking why was this happening. My son and partner have still got it and i think i might be getting it hows your husband is his back better now? I still feel scared to eat most of the time ive had jam on toast today so trying new things but very slow as so scared lol xx

He's not too bad thanks, I keep having to rub ibruprofen gel into his back which seems to be doing the trick. Is it a head cold as you don't want to sneeze as that aggravate your insides.

I'm not doing too bad with food, I'm eating most things but small amounts as the pain doesn't differentiate between low-fat  and normal. I'm not being reckless and having fried or spicy as I don't want to be really ill and I don't know if I'd even go back to having anything  like that again. I'd love to have a chinese takeaway but I'm really nervous, I know my local one will cook in less fat but I'm too scared. I find choccy biscuits are ok but don't try to eat too many otherwise it will make you feel ill!!!

I'm really having sharp niggly pains tonight so I think I will phone the doctors tomorrow.

Its good that we're both having similar symptoms it makes it alot easier to deal with.

Can I ask are your bowels working properly? I think I need to take some senakot as I haven't been for about a week and even though I don't feel that I need to, I think I should've gone before now. I know that problems with the bowels is a common problem though. 

I'll catch up tomorrow Carmella and see how things are going. Hope you don't get that cold, don't forget to keep your fluids up and hopefully you may miss it.

xxx

Its so good being able to speak to you hun like you said because our symptoms are very alike we can get information about how we are both feeling about are symptoms and it will help both of us. Its funny you said you have got them sharp pains again tonight because i have also been having the same thing tonight and also having them in my lower stomach aswell and i used to get that when i had my gallbladder and i keep getting the stabing pains where my gallbladder was to and into my back. I feel the same way as you do about the food thing i really want to eat things like cheese but i used to get really bad attacks with cheese so think im going to stay away from it lol but it is so hard not to be able to eat the things we loved i even smell food and think i wish i could eat it lol. My bowels for the first week i couldnt go for 7 days so had to take lots of laxido then it got abit better after i went on the 8th day but still is not back to normal i used to go everyday and now its more like every 2 or 3 days and i hate that because that adds to the feeling sick feeling i find. Its good your husband is feeling abit better now my partner is full of cold my sons has nearly gone and im not sure if im getting it or not i keep feeling like its starting then i feel ok again so still might be the start of it. Ive been drinking lots of water and vitamins to try not to catch it. Let me know what the doctors say tomorrow hun and how you get on etc xx

Hi Carmella, how are you today? I'm just waiting for my gp to ring so that I can get some sleeping pills and more pain relief. I found I got alot of those sharp stabbing pains last night but they've gone today and I've just got this back pain which is quite painful.

I have had a little cheese but only a little grated ontop of my jacket potato, probably not even a tablespoonful. I'm like you smell some food and wish I could dive in but I'm so nervous about the quantity of what I eat as I always seem to get worse pain if I eat more.

I took some senna last night but I think because I've been taking codeine as well that does bung you up.

Hows the cold? Is your partner over it now like your son?

I'll write again after I've spoken to the gp.

Hope you're feeling better today? 

xx

Hi hun im feeling not to great today i also am feeling i might be having a urine infection coming on as i get them alot and ive been having lower stomach pain and lower back pain which i get when one is coming on i was having these lots before the op aswell and getting this cold aswell my throat and nose does not feel great today plus ive got the upper back pain on the right still. My partner has still got the cold really bad and i thought my son was over it but he seems to still have it abit to. Its good you have phoned the doctors let me know what they say when they get back to you hun lets hope we start feeling better soon xx

Oh no poor you thats the last thing you need. Keep your fluids up then ans try to wash it out. Perhaps you should send a sample to your gp and get it tested, you need to know it on the head quickly if you can.

I've spoken to the gp and she wants to see me as she hasn't seen me before and I know they don't like prescribing strong meds without seeing you. 

I'll speak to you later when I get back from the gp. xx

ino it seems like im getting everything at once and yes let me know what the gp says and how you get on speak to you soon hun xx

its always the way isn't it, when you're down something else comes along, lets hope you don't get that cold too badly and that you can flush your system and not get that uti. 

Well the doctor was very sweet and examined me etc but I think this was too complex for him! He's probably newly qualified as a gp, I know what my brother in law is like as he is too and its only experience that'll give then the knowledge they need. Unfortunately he couldn't give me the sleeping pills as I'm on medication that contradicts with it so he told me to take 2 of my pain killers at night as they have similar properties but he also gave me an anti inflamatory to take during the day as I wasn't taking any of that type. Luckily I have that appointment in just over a week so hopefully I can find out more of whats going on. I did notice when the gp was looking at the letters that had been sent that the one from the surgeon which I hadn't got a copy of said that he didn't expect my upper right hand pain to go after gallbladder removal. I just don't feel that I'm as far along as I should be at 2 weeks post op.

So are you feeling really rough? What have you managed to do today and what have you eaten today?

xx

hi hun its good you got dome anti inflamatory for the pain hopefully that will help abit and taking the other meds at night hopefully you will be able to get better sleep and like you said its lucky you have got that meeting soon so you can find out more they might even do more tests and look more into it and hopefully you will get some answers. I had the hospital phone me today and i was going to have the camera test before i had my op but in the end the they didnt do it and now they want to do it now so they have booked it for 13th april but they said if i still dont feel well then they will change the date till a later date. Hopefully i wont get that cold to bad and like you said ive been drinking lots of water and trying to get it to go if not ill have to call the doctors again. My back pain has just started to play up again now it always seems worse in the evenings and night and i done some light walking up and down the stairs today so i dont know if that got the pain worse. Does your pain get worse after things like eating and moving about or is it all the time? I had low fat jam and toast and eggs and mash again lol. What did you eat today hun and how are your symptoms today xx

Sorry Carmella, I fell asleep after taking 2 of the anti-inflammatories! The back and shoulder pain are still there and it still feels sore under the ribs but then the gp just pressed there so its no wonder.

I had one of those early on after my ultrasound they were looking for ulcers and took a couple of biopsies too to check for crohns but all came back clear. Why are they doing yours do you get alot of acid reflux?

At least its not too long to wait, that just before Easter, hopefully you can eat easter eggs by then

Yes back pain is worse in the evenings and first thing in the morning and I've been getting this left shoulder pain which I rarely got before. I know that movement does aggravate it and at times it is worse than before surgery. It was difficult when I tried to describe it to the gp as to when wasn't I in so much pain and the only time I could think of was when I get up in the morning before I start to eat.

Are you terrified of trying other foods? You must try as it might not be as bad as you think. Why not try a bolognase, you could always make it with turkey mince so its lower in fat and not so rich. I found that a little was fine. I don't know what I'm having tonight, its going to be a late one as my husband's out at the moment.

It might be an idea if you phoned your gp tomorrow if you think you have got an infection as if you wait until Monday it could get really bad and you don't want that.

Is you pain bad now that its the evening?

xx

hi hun thats ok its best to get sleep when you can. Just been keeping an eye on my son because he might have a chest infection as he has got more ill now again he is only one years old so keeping close eye on him. his dads getting abit better now but my sons still got it on his chest i am really scared of trying new foods but like you said i need to otherwise i wont have anything different. I also get left side pain sometimes to i got that before my op aswell but its most of the time on the right side and i find it gets worse with movement and eating etc its so hard with everyone ill aswell as i can feel im slowly getting it im so going to phone the doctors if this gets worse incase it is a infection plus my son might have to go now to as he has got worse again now Im not to sure why they want to do a camera test im going to have to find out they wanted to do one before but then they found my gallstones so they done surgery so im not really to sure what they are checking for now lol. xx

Oh poor little chap, I would take him to the gp tomorrow to get him checked out if I were you especially if you think he may have a chest infection. I use to work in a gp surgery and I never took any chances with little ones and you can get seen yourself too. So you're having to look after your son too, I didn't realise he was so young,  you  must be worn out.

Perhaps they're doing the camera test to rule other things out as they didn't do it before surgery. Your consultant must've recommended it to still go ahead after surgery. Do you feel like you have pressure just under your ribs onthe right and that its taut? probably just healing pain.

Now you must rest as you've got a houseful of poorly men!!

Lets hope you feel better tomorrow xx

 

Hi hun sorry ive just been making sure he was ok as he is really not very well tonight. Going to call the doctors first thing in the morning my partner said he will take him to A&E if it gets worse hes gone back to sleep now but keeping a close eye on him. This was my other surgern i had like 3 different ones and this was the first one who wanted to do it but the other two didnt want to and i ended up having a mrcp xrays and ultrasound and he is not the surgern that done my op? but he still wants me to have this done even though the surgern who done my op said it wasnt needed? but i guess like you said they might want to rule out anything else. ive got to have my bladder and that area checked next aswell but they wanted to sort the gallbladder out first then ive got to go back to have bladder checked and camera tests. I think they want to check my bladder etc because i kept getting white blood cells and blood in my urine plus infections and they have got worse. Luckily i have alot of help at the moment and my partner is feeling abit better now to i do also feel like ive got pressure under the rib i sometimes feel like its swollen but im not sure. Ive also been having some really strabge pains to the right of my belly button and lower right stomach pain today aswell? plus all the other pains i normally get and my headaches come back really bad today and also lower back pain but im thinking that might be down to the urine infection if ive got one. How are you feeling now hun and what did you end up having to eat xx

Hi Carmella, yes I would, I wouldn't take any chances at his age.

Yes I had an mrcp and ultrasound also, mine all came back as normal. It was only my hida scan that showed the gallbladder was abnormal. At least it'll rule out ulcers. 

Oh you really are in for a rough ride, it couldn't have been your gallbladder thats causing white cells in the urine? Yes I think mines slightly swollen too but I think its probably just me. You're probably stressed hence the headache with everything that you've got going on at the moment.

My husband made burgers with low fat mince, with some potato and beans, it all went down ok but I always feel worse after the evening meal as I eat a little more than during the day even though its 1/2 of what I would normally eat.

Its good to know that you've got help as you've got so much going on.

Let me know what happens with your son and with you at the doctors.

Take care of yourself xx

Its so scary when your sons ill aswell its like everything is happened at once thats what i thought about the white blood cells because of the gallstones but i have not not had my urine checked again since after the op so will be good to see if its still there but i think its an infection coming on its a strange one aswell because its like really on and of? your dinner sounded so nice ill have to start trying things like that soon My pain always seems to get worse in the evenings and after the main meal to. Ill let you know how everything goes tomorrow hun and keep you updated on everything xx

good luck and fingers crossed all is ok.

speak to you tomorrow xx

Hi Carmell, what happened at your gp? is your son ok? and what about you? 

reply when you're able or you can private message me if you'd rather.

xxx

Hi hun yes everything went ok ive got to keep an eye on him but he seems alot better today. i might be getting the start of a urine infection so ive got to take urine in to be tested again in a few days. How are you today hun? i woke up with pain under right rib and pain in right side of back so i dont know if ive moved funny or whats started it of this time? im going to have some toast and jam soon and see how that goes down hopefully it wont make the pain worse. how is your pain and symptoms today and how did you sleep last night? xx

Oh thats good he seems better. Did they send a  urine sample off today too for you. Do you feel better now that you've seen the gp?

I know I wake up like that too its really draining. I slept better though last night after taking 2 painkillers but still wake up in pain. I'm still getting a few sharp pains and then it goes away again but I have that constant ache in my side all the time. 

I had a hot cross bun today which goes down ok. All I seem to do is rest but I don't feel able to do anything else, it all seems to take a huge effort to do anything, is that how you feel?

xx

 

I know how you feel hun thats how i feel if i start getting up trying to do things all the pain starts its horrible like you said its such an effort to do anything its even an effort when not doing anything like today i feel the right side pain really bad where the gallbladder used to be and back pain. Im having a bad day today with it all and ive been resting today aswell they want me to bring in another urine mext week so they can check it again. i might be in more pain when i got up today as i slept on my left side for abit last night which i dont normally do so i dont know if that made it worse but the pains been all day today and ive took meds and they are not helping very much at all its just so hard as i thought we would feel abit more better by now and its still taking so long xx

Oh thats a shame if you've started to sleep on your left side and it causes you more pain, I'm ok on the left now and I've even tried to sleep on the right but I can't stay on that side for long before I have to turn over.

I'm just about to take some more meds, this is ridiculous, I thought it would've eased a bit but if anything its worse than before but then if I have this other condition then when bile use to back up into the gallbladder it can't anymore so must be causing the stronger pain. It really gets you down doesn't it?

Hows your son now, is he any better?

xx

My son is a lot better now thanks hun im in so much pain today for some reason the right side pain is so bad now its been getting worse all day but this is the worst its been its like at the side of the right side of belly button and upper stomach and lower all on the right side and not much is helping it its also making me feel sick. im now going to take some pain meds aswell but there not helping much today. it really does get you down hun ive felt so bad today i just dont know why its got so bad again ive been resting all day aswell? how are you feeling now hun is your pain bad today? xx

I'm the same Carmella, I don't know why its bad today but I haven't the lower right side pain like you, mine's the usual feeling as though someone has punch me under the ribs with the pain going through to my back and shoulder. I've been doing the same as you, resting all day but I feel so tired. 

I wonder why it seems so bad perhaps if you speak to your gp next week, you may need to get an outpatient appointment to see your gastro as things should be better for you by now. Remind me was your gallbladder removed due to gallstones? I wonder if you have one that they don't know about thats causing you pain. Did you have a CT scan or an mrcp as they would be likely to find any additional stones.

Oh I'm glad that your son is better, what about your partner, is he better now?

What are you eating tonight? I think we're going to have a paella as we bought lots of fish and I know that fish has agreed with me so I'm going to try that later.

xx

i wonder if the pains are added because ive still got to be tested for other things to like the bladder and pelvic pain i get and urine infections all the time. I had a mrcp before the surgery because they thought a stone might of been stuck but they didnt see any in the bile ducts my surgern also said he would check again while i was having the surgery. I was in so much pain before the surgery though and maybe thats why its taking so long to get better. and yes i had lots of gallstones i got to see them after looked horrible lol. Im going to go back to the doctors again in 2 weeks about this if its not much better by then because today i have felt so bad with pain etc. are they going to do more tests for you to hun as they think something else is going on? xx

ah yes, that could be why you're not mending as quickly as you should be. I looked on the net at gallstone pictures and some are huge I couldn't believe it. Oh that was good that you had an mrcp and that they checked during surgery. 

Yes I think they are going to do more tests on me which is why I think I've got an appointment with the surgeon  rather than being referred back to the physician or gp as I expect that he will do any further investigations as complex biliary issues are his area, at least he knows my insides!! I also know he did a liver ultrasound during surgery of the biliary tree so I expect I'll be getting the results from that also.

I just wish I was feeling better but I'm just so tired and with this constant pain it just wipes you out, is that how you feel?

So what other tests have you got to have done, if you don't mind me asking? Yes I would go back if things haven't improved as they say you should improve day after day and lots of people are virtually back to normal activities after 2 weeks even though they have to take it easy to be fully recovered.

xx

Thats good they are going to do other test for you aswell hun hopefully we will find some answers on whats happening. Ive got to have a camera test down throat to see if anything else is going on in stomach etc and they might do scans to. and ive got to see a gynecologist i think thats how you spell it lol about my bladder and infections i also have a cyst on my left leg that needs checking up on. And yes gallstones can be huge i had lots of little once that were like all stuck together. I know what you mean about wanting to just feel better its so horrible not being able to do anything. what also scares me is that i wanted to have more children but feeling so ill like this i dont even know if that will be possible 

I had a lot of problems after the birth of my son and thats when they found out i had gallstones im really hoping that we make some sort of recorey as at the moment i feel like i cant do anything and yes i feel tired all the time and weak i also feel i cant move round hardly because if move around to much or the wrong way it starts the pain of worse does yours get like that? today i have been resting and have been in the worst pain ever i also had elevated liver before surgery so i dont know if thats made things worse. Thats what i read about some people are back to normal really quick but some seem to take alot longer how are you feeling now. I took some pain meds but ive still got the right side back pain really bad xx

The doctor gave me naproxen (anti inflammatory) which I think its helping but it wipes me out. My pain doesn't go but its at a level that I can cope with it but yes, if I move around too much I feel tired so can't stand up for any length of time. I expect with all the other things going on is why you're feeling so rough, don't forget your system is trying to mend and you've got several issues so its taking longer than usual.

I think they may put me in for an ercp  as my physician mentioned that last year but its quite invasive which is why they did the mrcp but that doesn't show up some of the things they need to know. Apparently my liver readings were erratic, but I didn't know, so yes it is possible that something else is going on but you'd need to have some more blood tests to rule it out.

Don't forget this is just a blip in the great scheme of things and we will get better, then you can move forward and look at having more children so don't give up.

Did you eat tonight?

I'll catch up later xx

I also used to take naproxen before i had the surgery then they put me on all these other things. I hate feeling this tired all the time and this pain all the time and like you said its because all these other things are going on does not help it i was going to have an ercp if they found stones in the bile duct on the mrcp but luckily they didnt see any so i didnt have to have that done. Hopefully you will get your results back about your liver to i think ill have to have a good few more test done as there is other issues going on i think. I really do hope we get better soon and they find out everything thats going on. I had egg and mash again as thought i would be safe with that because ive had a bad day with pain etc and didnt want to make it worse. But going to have fish tomorrow what did you eat hun and Hope your ok hun update me tomorrow on how you are feeling etc xx

Hi Carmella, how are you feeling today? I'm not too bad but I've still got that pain under my ribs. I think the pain relief doesn't help and makes you feel tired and wash-out. It would be good to wake up one morning and not feel pain but that seems to be the norm these days, I've forgotten what it feels like not to have pain!

My husband did a paella last night which was fine, he didn't put much spice in it as he knows that I can't manage that at the moment and lots of fish but we didn't have any shellfish which didn't matter. I only had a small amount as its quite filling.

I haven't done much moving around today yet as my parents were over for coffee so have just been sitting on the settee but I'll try and see if I can do some bits and pieces around the house today and see how it goes.

I don't know that they are definately going to do an ercp but its the only test that I haven't had and one that I know that they use if you've got sphincter of oddi dysfunction but I'll have to wait and see what my surgeon says.

Let me know how you're getting on today? xx

hi hun i feel the same got up with that same right side pain. like you said i have not got up in a very long time and had a day in a very long time with out any pain and i know what you mean by the feeling tired alot. i keep getting these headaches aswell. I think im going to make a phone call to the doctors on monday because it feels even more like ive got a urine infection today aswell. I still feel so weak and tired i didnt get a very good night sleep last night i kept getting up and feeling bad how was your night did you sleep well? Its good you had paella and that went down good im just resting again today as feel so tired and weak and the pain just starts of more when i move around. What are they planing to do if they find out you have sphincter of oddi will you need another op? and did you have gallstones aswell before or gallbladder wasnt working ive forgot now sorry? its good you have your meeting coming up soon so you can find out more whats going on Like you said about the pain meds they dont do much and im scared because i dont want to be taking these for the rest of my life i feel abit down today as because i thought we would of felt so much better by now but its still not much better at all and we have been through so much aswell and still have pain i just really hope this starts to get better one day as this is very hard to even do everyday things that people would find easy i mean even walking for to long or sitting the wrong way or sometimes even just resting starts everything of. What are your symptoms like today hun? xx

Hi Carmella,  I'm sleeping better than I was as I'm taking painkillers before bed which seems to help as I can't take the sleeping pills they were going to prescribe. If you speak to your gp next week perhaps you should ask for some sleeping pills.  

i've just been into the greenhouse as I like to grow some veg and flowers over the summer and managed to sow a few seeds, it was hard work as it does aggravate the pain but I needed to get out the house for a while and have some fresh air but I'm back now on the settee.

Its worrying with all these pain meds as they are addictive and I've been on them for so long I'll have to reduce them slowly I think, what about you?

I'm not sure but I think if they do the ercp then they can cut the muscle at the same time but I'm not too sure. I know they can check the pressure of the muscle while they're there to see if its working properly but from what I've read there's not any diffinitive tests and there doesn't seem to be anything specific for the UK. some doctors don't believe that it exists or even know what it is so I hope that I'm not in for a rough ride like some. I know that my surgeon worked in the US and Australia prior to returning to the UK so I hope this will be beneficial to me.

No I didn't have gallstones, it was my gallbladder that wasn't working properly.

Do you find that you sometimes have pressure in the middle of the chest, its probably where the top incision was. Have yours healed ok?

Going to make myself a cuppa now and a biscuit. xx

thats good you got out today and got some fresh air hun. I felt to unwell today my throats been playing up again so i think that colds trying to come through its like each day i keep feeling worse with that i also got some cystitis relief to see if that will help with the urine over the weekend until i speak to the doctor again on monday. Hopefully you dont have that and its something they can fix if there is anything else wrong hun your surgern seems really good so hopefully they will sort it out for you ive just been doing light walking around the house today and resting really had jam on toast i also got really low fat milk to try and start having tea again I know what you mean with the pain meds i dont know if i would be ok with out them at the moment as the pain is still so bad I have had the pressure in my chest last night i was thinking why was that happening it my be the healing inside. Also my belly button one was hurting abit last night which hasnt hurt for a while now which is strange thats the one im keeping an eye on as its taking a long time to heal. What about yours hun are they healing ok? what are you having to eat today? im having fish today xx

Hi Carmella, oh I hope you're not getting that cold, it'll knock you for six at the moment with everything else, I'd hoped you'd managed to steer clear of it.

Unfortunately I feel really bad now, the pain has got alot worse so I've just taken some more pain relief, its all from the centre of the chest, along the ribs and into my back. I'm so fed up with this 

My incisions seems to be ok, the belly button one I had to keep and eye on as one side of it didn't close as quickly as the other but it seems to be healing ok now. I find that I do get sore underneath the 2 along the ribs, do you?

I don't know what we're having tonight, it might be carbonara as we've got lots of eggs at the mo, as my mum has a few chickens and ducks and brought some  over for us.  I did have a hot x cross bun earlier as those seem to go down ok without causing any problems. 

Have you been staying off of tea? I couldn't drink coffee after surgery, it took a few days but tea has been fine, I even remember having a cuppa after surgery and they gave me a couple of biscuits too, didn't stay down for long though

I wrote a review on my hospital site last night as the nurses were so good with there care of me that I wanted them to know, even though you can't say names but with the date and procedure they would be able to find out who it was.

I hope you enjoy your fish, I found it ok as some of the reports I've been reading encourage eating fish as its more easily digestable as it got natural oils in it.

Take care xx

 

hi hun i thought i was not going to get the cold aswell but i think its starting now Ive now got worse aswell after eating this time all in my right side of my back and under the ribs aswell im now goin to take some pain meds to. Im also getting fed up with it its so horrible being in pain all the time i was staying of tea but im going to have a cup starting tomorrow and see how it goes down i also got some other low fat food to try aswell ill let you know how they go down when ive had them thats good you wrote a review to the hospital mine were very good aswell. I totally agree with the belly button and top cut have been the worst im also keeping a eye on the belly button one as its been hurting abit. I also had a biscult after surgery and i was nearly sick lol but luckily it stayed down. ill keep you updated tomorrow on how tonight goes and if i can sleep and pain etc xx

Hi Carmella, how are you today?

I had a really interrupted sleep last night, my husband was up with his back at 05.30 and he always wakes me! and then someone phoned up really early in the morning so feeling a bit tired today. 

Have you had a cuppa yet today? was it ok?

I had awful pain last night lots of sharp stabbing pains as well as the constant ache in my back and shoulder. I've just got that ache this morning and I haven't done much yet so I'll see how it goes. I just had a jacket potato last night in the end with a tiny bit of grated cheese.

I find even the small incisions hurt if I catch them awkwardly as I expect it takes longer for the internal side to heal and its probably bruised as well.

Going to have a little fresh air now to see if that'll make me feel better.

Let me know how you're getting on. take care xx

Hi hun i had the same thing happen last night it was the worst night i have had so far. I was now getting ready to go sleep and then out of no where the tip of my left shoulder started to really hurt then under my left rib started the worst pain ever and i couldnt breath in it hurt so bad and normally i only get right side pain but this was all on the lest one of the worst pains i have felt so far and it has lasted all night so didnt get hardly any sleep at all. it felt like when we first had the surgery like gas pains but alot worse. since i have got up and moved abit it has gone a little but is still there and when i take a deep breath in i can feel it so hurts I also had the stabbing pains that you had to. do get that left side pains like that aswell? its not good you didnt get a good night sleep to hun i know how you feel with that last night i dont think i even slept because of the pain and i hope your husbands back feels better soon i hate it when someone rings early in the morning aswell when you have not had a great night sleep then the phone rings early. How did your potato go down hun? and i know what you mean by the incisions hurt i had a bath last night because ive been having showers so thought i would have a bath and after my belly button one hurt and abit of the top scab came of so hopefully it will be ok ill have to keep an eye on it. Ive also had a cup of tea i dont use to much milk in my teas as i like strong tea and went down ok so far yes i find the fresh air does help just going in the garden i find helps how are your pains etc now have they felt any better at all or are they still bad.. i had to take pain meds as soon as i got up as i was in so much pain this morning. xx

Hi Carmella,  oh no, its awful isn't it, you sort of get use to the right sided pain but when you get it in the left side it really knocks you for six. How is it now, is it still really bad? Have you got some strong painkillers you can take for really bad pain? Yes I had alot of that when I breathed in that it hurt and it was always at night as I was lying down, but over time it eased. Is yours just left of the middle slightly and mainly in the back and shoulder? thats where mine was.

How's the tea, did you find it ok, I hope so, I wouldn't know what to do if I couldn't have a good cuppa 

I haven't got the courage to have a bath yet, I've only had showers. I found the same with a scab on the belly button and it healed better than before after a couple of days.

I wasn't too bad this morning, I still had pain so I've been in the garden again but I think I've done too much as I'm hurting now so sitting down and taking it easy. I can see how easy it is to over do it as I'd taken pain relief before but it hides the pain so you push yourself harder but it was good to be out in the garden for a few hours, my husband was out with me and fell asleep on the chair on the patio area while I was in the greenhouse so I just left him, he needs the sleep anyway as we had a bad night.

Yes I've had a few painkillers today I can't wait until I don't need them anymore.

Jacket potatoes are fine, I'm trying some lamb chops tonight, I know they can be quite fatty but I'm hoping that'll come out in the cooking, we had some in the freezer so thought I'd give it a go, probably not a good idea but I got to try.

Let me know how you're getting on today xx

It really is horrible it just came on out of no where just before i was going to bed so kept me up i used to get a little pain on the left side but mostly on the right side. Now the left side is not so bad and the right side has got worse again and yes i get it under the ribs and in the back and shoulders like you said i cantke pain meds but at this moment in time i dont know what i would do if i didnt have any as the pain is still so bad i just hope it will go away one day. Its good you have been out and had some fresh air hun and i know what you mean by the pain meds help then over doing it i was doing light stuff today and now feel like ive over done it the right back pain and side is really hurting now do you find that it gets worse with moving to much? i hope the lamb chops go down ok they sound so nice im not sure what im going to have yet and my tea went down ok so that was good im now doing the same as you and resting now as starting to feel all the pains coming on as they always do towards the evening lets hope they will go soon update me on how your dinner is and ill update you aswell hun xx

Hi, I use to get a little on the left side previously but its been worse since surgery. 

I'm the same I'm really starting to hurt now on the right, I wish it would go, it really gets me down and I expect you feel the same too 

I don't know if it gets worse with movement or its just a coincidence or it makes everything worse earlier in the day as I get it when I'm just sitting relaxing too.

I've had to take some more pain relief this evening, its like someones kicked me in the side and I haven't really eaten alot today yet so I expect I'll get additional pain from that later too.  Yes I hope the lamb goes down ok and it doesn't cause me too much pain.

Glad the tea went down ok. What did you have to eat tonight? 

I send you a message letter about the lamb.

speak soon, take care xx

I no what you mean hun its like the pains are getting worse and not better at the moment. i had chicken and potato tonight. My pains have got really bad at the moment now getting ready to take some pain meds to. ive got the right back pain and the left pain going on now. like you said i wish it would stop it so gets me down aswell hun i thought by having this done we would feel abit better then this by now and like you said the pain even come on by just resting aswell. yes message me later hun and let me know how your feeling and how your dinner was etc xx

Well I'm not feeling too good now, feeling really sick, sometimes I wish I would be then I might feel better. Got that right sided pain and had some left sided too. 

I so wish it would go, I want my life back!

I'll speak to you tomorrow Carmella, I'm heading to bed after some pain relief. 

Fingers crossed we both feel better tomorrow xx

not good hun did it all start after you ate? i so know what you mean hun i wish this would just go its horrible im feeling the same way at the moment aswell. take some pain meds and hopefully it will help a bit and let me know how your feeling in the morning hun xx

Hi Carmella, Sorry about last night, had had enough of the pain thats all. 

I think I ate too much, as my husband had done sliced potato with leeks and onions to go with the chops which I really enjoyed. He cooked the chops on a rack in the oven so any fat drips out but there wasn't much fat on them, they were very lean. I'm the same as you pain starts with eating but it was alot worse so I took some pain relief, fell asleep on the settee and then headed to bed.

Are you really tired all the time? It would be lovely to wake up in the morning and feel alive and I think when this goes I won't need to sleep in so much.

So how are you today? Did you phone your gp as you said about your infection was worse over the weekend?

Luckily my husband hasn't said anything about going back to work, he did bring some paperwork home for me which I can do but he's not pestering me to goback, I just don't think I could manage it and I haven't even tried to drive again.

Let me know how you're getting on today, hope your son is better now too.

xx

hi hun its ok its best to rest and get some sleep when the pain gets that bad its best to get sleep when you can with this i find as i find when the pain gets to bad i cant get to sleep. Your lamb sounded lovely its good the way you cooked it aswell to get the fat out. I had chicken last night and went down ok but like you said i still get pain after eating. Im always tired hun im even still tired when i get up until i go to bed i always get this weak feeling to. I wonder if its because our body is in pain all day and our brain has to deal with it all day which makes us tired not sure if thats what it is but just a thinking what it might be. Ive still got the normal pains the pain on the right side at the moment and then normally towards the evening or as soon as i start eating or moving all the rest of the pain starts i.e back pain right pain and left pain like you said hun it would be nice to get up and actually feel normal again i have forgot what normal feels like. Its good you dont have to go back to work yet i think thats for the best as i think you need more rest etc because it might msake it worse if you go back and are not ready. How do you feel at the moment hun with pain etc does it feel any better? mine feels the same still there ive already had to take some pain meds for the right side lets hope we will recover one day soon or feel abit better then we do now. Im now going to phone the doctors aswell so ill update you on that aswell hun xx

Hi Carmella, I'm having a rough day today, I don't know about you. I really don't feel like eating at the moment, I have had something but not much, its just really painful under the right ribs as usual. I've just had some pain relief like you've had. Its really niggly at the moment which gets worse in phases, does yours do that?

Thankfully I've got that appointment next Tuesday, I feel as though thats all thats keeping me going, in the hope that I'll have some answers. I just don't feel as though the pain is any better if not worse than before the surgery and I want to know why. I've done so much research on the sphincter of oddi dysfunction I think I've read eveything there is and everything does point to that but until someone confirms it I just don't know. 

I think it'll be a very light dinner tonight so as not to aggravate things even more.

Yes I'm the same with the tiredness, its constant isn't it and its so hard to feel better with that and the pain. Its totally draining don't you find?

Let me know how you got on with the doctors. xx

hi hun i know what you mean its so horrible with all this pain etc i even woke up today feeling sick again and had to have a antisick. Ive spoke to the doctors and ive got to drop a urine sample of tomorrow before 1 oclock to get tested also if my pain is still like it is by next week ive got to go back to the doctors so hopefully might find some answers. Its good you have your meeting next week to i hope you get some answer or they do some test etc. Like you said light food tonight aswell with me to as not feeling great ive got that right side pain alot today and its like yours its niggly and i sometimes get stabbing pains that goes to my back aswell. It just seems like its never ending. Will you have to have a ercp to check for sphincter of oddi or scans etc and would you need another op? and yes the tiredness is horrible i find it makes everything worse to sometimes i feel like i cant stay awake its that bad do you get it like that. i find it makes me feel like an ill feeling aswell sometimes i dont no if you get it like that like your coming down with something and feel hot but no temp etc. I do also find the pain comes in phases even when im just resting it hurts it also hurts when i move around even just walking makes my back pain worse and eating brings on all the pains even when its low fat. Did they say you can go back to a normal diet when you came out of hospital or did they say stay on low fat? mine didnt really say anything about eating etc but i thought im going to stick with low fat food as i was so scared to try other foods but i find even low fat food im still having pains with? do you get that with low fat food to that it still gets bad? im not to sure what to have for dinner tonight so far ive had toast and thats it today xx

Oh I've just got that left sided pain starting up, I just walked to the kitchen and had to stop as I had increased pain then it eased. I had some pain in my backside too which could be the sciatic nerve if I've got inflammation pressing on the nerve.

I've just made another cuppa, I think I've got more tea in my system than blood at the moment

The only test I haven't had is the ercp and I know they can treat it by this technique rather than operate again. I found that I had a temperature this morning when I woke up which I haven't had for a while.

I might have some scrambled eggs tonight as they go down ok and its really simple to digest. Yes I find it doesn't matter whether its low fat or not I still get the pain like you. They didn't say anything about diet but until I'm better I don't think I'm going to try anything adventurous, I just don't want to risk being in severe pain.

If you're still suffering next week then your gp will probably want to refer you back to your gastro and get them to have another look at you as you shouldn't still be in this much pain unless you've got a gallstone that they haven't found which is causing this. I've heard that this does happen so you may need to have scans to have another look. Perhaps something where they inject dye in so that  they can see everything in the biliary tree. What tests have you already had and when did you have the last one?

I've done some work today that I need to do on a monday and I may need to go to work tomorrow for a couple of hours as they're really short but I'm going to see how I feel, I know it would really help my husband out if I can make it in.

Is yours easing at all today or just getting worse all the time with food?

xx

 

thats not good you had a temp this morning hun was it a really high temp and have you still got it? I felt sick this morning as soon as i woke up which i have had all day now even after taking antisick so im just resting alot now. ive had a mrcp done to check to see if stones were stuck in the bile duct before my op but it came back clear and they also thought one of my ducts looked large on the ultrasound but turned out that was fine to. and i think they also done a x ray type thing when i was in surgery to check for stones again in bile duct. Hopefully the doctor will know something if i have to go back agaIn same with your meeting to hopefully they can find out whats happening. Mines just been bad all day today really with rest and food im going to try and do a light walk around soon but i think thats going to make it worse as it always does it seems if i sit the wrong way even it hurts. I had a tea aswell today im so happy i actually am trying some new things now i still get scared but im starting to thing well im in pain anyway so i might aswell start trying new things plus they are low fat but still giving me pain see how you feel tomorrow hun and if you feel ok just go in to work for a few hours and if you dont feel well go back home again. I think im going to have eggwhites and mash with these new chicken bits which are low fat for tonight and see how that goes down xx

I use to get a temp alot before surgery, its gone now but I'm still in alot of pain today as you are.

It maybe that they need to do some of these tests again now that your gallbladder has gone. When I had my mrcp it came back normal too, yes they did that with me during surgery but concentrating on my liver but I don't know what the results are of that, probably get those next week.

Yes thats how I think sometimes, I'm already in pain so why not have a bit of what I fancy!! My husband bought some creme eggs the other day but I'm still not brave enough to try them

I wish I understood why some days its worse than others when I haven't done anything different.

Do you need to make an appointment now for next week as my surgery are generally fully booked very early?

xx

i also used to get a temp before the op to hun its good its gone now though yes im thinking i might need more tests done again as ive just eaten and the back pain is back again on the right side. I know what you mean by one day it seems not as bad and others its really bad i dont why it would do this? yes i started thinking the same thing about food now ive been trying new things more but like you said im still scared to try some things though. Ive got to drop my urine sample of tomorrow so ill book the one when i go in. Ive also got to get checked for other things they said they wanted to take the gallbladder out first then check the other things which was bladder and pelvic pain and why i keep getting upper uti so hopefully they will check everything in one go what have you had to eat today in the end hun and hows your pain now? i always find after my last meal the back pain is the worst ever. xx

well I've been in bad pain all day with left and right sided pain. I've just got up to make a drink and I could feel the pain in my left side as well. I just had scrambled eggs on toast for dinner so nothing difficult but as you know it doesn't matter what you eat these day it all gives pain.

I usually make an ovaltine made with water and a touch of milk to help me to sleep but I've run out so I'm trying horlicks with water to see what thats like.

I suppose your pain could be due to your other issues rather than something new.

Yes I know the feeling at the end of the day the pain is alot worse so it has to be food that triggers it. I find its at its worst as I go to bed which is why I find it difficult sleeping. Have you managed to sleep on your left side yet or is it still painful for you? I think I move from the left side onto my back most of the night and then wake up early in the morning.

How are you now, are you in alot of pain? 

Let me know how you get on at your gp surgery?

xx

 

Hi hun i know how you feel with being in pain all day i also have aswell with the right back pains been the worse today and feeling sick from when i got up and i still feel sick now. That left side pain is so strange what do you think that might be? i also had that again today for a while and now it gone all back to my right side again. I also have eggs on toast i find thats a good meal and goes down well. I think i might of had abit to much tonight i had egg mash potato and chicken bits then my back and side pain came on straight after that and i dont normally eat as much as that in one go so dont think ill do that again lol. Yes i agree that my pain might be down to some of my other issues that they have got to check in to because ive already had a lot of test done and would of thought they would of picked up on something if it was stones etc im just hoping its still recovery pains but really i think theres going to be more to it as i really would of thought we would of felt better then this by now. And yes i find it worse at the end of the day with the pain and the last meal the pain comes on strong and also with movement or moving the wrong way and even resting i get still get pains. I still cant sleep on my left side i gave it ago about 2 or 3 nights ago and that was when my left side pain was so bad so it has scared me to lay on my side now so im sticking to sleeping on my back again which is really hard. My pains now are still feeling really bad ive got the right side back pain which is going into where the gallbladder used to be and i also keep feeling really sick so hopefully this will go. I think im going to have to start taking laxido again as have not been able to go for 2 or 3 days now so i dont know if thats why i keep feeling sick again. Ill let you know about the doctors aswell hun i might not get the results back for a few days though because i think they will send it of and ive only got to drop it in tomorrow. but lets hope we both get a better nights sleep tonight and let me know tomorrow how your feeling hun xx

Hi Carmella, how did it go at the doctors, did you manage to make an appointment? 

I think thats my problem of eating a little too much in the evening and then paying for it later.

Yes I had that left sided pain again last night and this morning on waking, the only thing that I know is that left sided pain could be pancreas as its still all recovering on the inside but mine goes to the right soon afterwards and then stays there.

I woke up again last night with a temperature and pain, the temperature seems to have gone now but I'll speak to the surgeon next week about it.

Oh yes, I know the feeling, I've had real trouble going to the loo so I've been taking senokot, it does help but you're not meant to take it all the time and I know that the meds I'm taking can cause constipation as well. I know when I spoke to the doctor last week she said that constipation can cause pain so I think some of what I'm experiencing must be that.

How did you sleep last night, did you get a better night? Its a shame that you can't sleep on your left, I don't stay on my side but it does help but I can't lie on my right yet.

I'm sure there must be something else going on as if it was just gallbladder then we'd start to feel alot better by now even though our insides take a little longer to heal.

I've just walked to the post office which isn't far but it is a bit of an effort and I'm feeling a bit of pain in the right now. 

Let me know how you are today xx

Hi hun i gave the urine sample in now. they said to ring in later to get a appointment not sure why i have to phone in i think its because they were really busy today? Thats strange you had a temperature again hun what kind of pain do you get when you get the temp? finally the laxido worked today so thats one good thing and same here about the meds i think they give me constipation aswell. I did get some sleep last night but it still took me a long time to get to sleep and yes its so hard not being able to sleep on the side i just have to sleep on my back all the time. Thats what i was thinking to hun about there must be something else going on what do you think it might be? its good you have had a walk today not so good about the right side pain though. I also have the right side pain going on at the moment its starting to really get me down as i thought we would of felt a lot better then this by now i still feel very tired aswell xx

When have you got to call to get your results? Ahh thats good its worked but I find it doesn't seem to ease the pain, and I found I got constipated again so had to take some more senokot. 

Well I managed to drive to work to take my husband his lunch as he's short staffed today and couldn't get away its only 4 miles away so not far. It was ok but I did have some pain while I was driving and now that I'm back it really does hurt under my ribs so perhaps the pain we have is healing pains, perhap we just take a while to heal, I don't know.

Just relaxing now and not going anywhere for a while. I've got a cuppa so I'm happy now

How are you feeling this afternoon, have you still got the right sided pain?

xx

hi hun thats good that you went out today i think they are going to phone me about the results im happy its there now to be tested just incase it is an infection i know what you mean by the right side pain after moving around i think it could definately could be healing pains still. Ive been feeling really down today and yesterday so i looked up some stuff online about how people have felt after the surgery some people still feel pain for weeks and even months after as the body has to get used to having no gallbladder also from some people were saying about nerve pain or something which can course some of the back pain and alot of people seem to have the pain in the ribs after surgery so i am hoping it is healing pains but its good you have got your meeting next week and hopefully get some answers and ive got the doctors to and will update you with what they say aswell. do you get some days where it makes you feel down i feel really like that today im trying to stay strong and hoping it will go after time but i do find some days are really hard. Im doing the same now hun just relaxing and ive still got the right sided pain to. what are you going to eat today hun? xx

Yes Carmella I do feel really down at times when there doesn't seem to be any respite from the pain. When its there all the time it seems as though its never going to end and I'll be left like this forever. Some days are better than others, I'm in alot of left sided pain at the moment in my back which I know will end up right sided and in my shoulder. we have a retired gp who's a customer of ours and he said any inflammation does press on a nerve which is why it goes to the shoulders.

Its usually a couple of days for urine tests doesn't it but at least they'll be able to treat one part of your symptoms if they find it is an infection.

I've done alot today so I can understand how you can end up going backwards with recovery if you try to get back into normal activities too quickly.

Not sure what we're going to eat tonight, we're going shopping later but I think we'll get some chicken or turkey as I find those meats easier to digest.

Have you put any weight back on yet? I was starting too but I weighed myself today and I've lost it again, its so difficult and I think that is half the problem, I haven't got enough nutrition inside of me to try to heal properly.

What are you eating later, anything different from before?

xx

 

Thats what i feel like aswell hun its really been getting me down at the moment i really did think this would of sorted things more quickly hopefully things will get better soon like you said some days are worse then others and i think im just not doind very well with it all today when i get up the first thing i think is i just wish i could get up and feel normal again, i also had the left side pain today and now its gone to the right. and yes i think it takes about 2 days or so to get results back from the doctors. You should rest up hun after having a busy day i know how you feel with that i find even light walking around the house hard. I also find chicken goes down good ive not had turkey yet. I think im just going to have eggs and mash today. ive put on a little bit more weight but not much then it also goes back down again like you said its like we are not getting enough nutrition. i dont know why but i always seem to find the pain gets worse towards the evening its there all the time but in the evening and night it just gets worse xx

Hi hun i just had the worst pain ever it felt like really bad heart burn but lower in my stomach in the middle. i used to get this before the surgery and its just happened again for the foirst time after surgery. its made me scared to eat anything now i dont know whats brought this on again? did you ever have this hun? xx

I know what you mean and this is the same as it was before. I've been talking to Sonia and she's been having a tough time and she had surgery over a week earlier than us so it does take some people alot longer than we thought.

I've had really bad back pain on the left today, I don't know why its worse today, apart from doing a bit more I haven't eaten anything that would trigger it. Its on both sides now and so annoying. I just had an automated message about my appointment next week, that I will be attending, I do hope that I can get some answers when its as bad as it was before.

Turkey is very low fat, we buy the turkey steaks. Going shopping in a bit so I might get a few treats to try and see how it goes. I haven't eaten much today as the pain has been bad, do you find that you loose your appetite when you're in bad pain?

I'll speak to you a bit later I'm shopping in a bit so let me know how you've got on this evening.

Speak later xx

awww not good what kind of symptoms is sonia having? this is the thing its so strange how we are still getting symptoms like this. i know what you mean by the pains being the worst. i just had the worst burning pain in my stomach and chest and i used to get that before the surgery and the back pain and they are the same? lets hope they give you some answers next week hun. yes turkey is very low fat they should go down well and yes i just had that just now where i couldnt eat anything because of that burning pain hope your shopping trip goes well hun and update me when you get back on how your feeling xx

she's having to rest now. check our her conversation with me its 'post cholecystectomy day by day diary of a recovery' it should come up on the first page of latest discussions and you can message her.

No I'm lucky I've haven't had heartburn or anything like that so I don't know what to say except if its still bad tomorrow then call you gp again and get them to refer you back to gastro.

I've just got back from shopping and had to rush to the bathroom and be sick, I haven't felt like this since after surgery, I know there was bile in it as it hurt the back of my throat.

What's happening too us, why's this happening? are we just rushing things too much when we shouldn't. Remember with open surgery it takes 4-6 weeks to start recovery and that can't be just because its open surgery, perhaps it does take that long to start to recover on the inside and your body to learn that it hasn't got a gallbladder.

I haven't eaten yet, I might try something in a mo even though its late, just to have something in my stomach encase I'm sick again.

speak soon xx

 

Hi hun i hope your ok thats not good you was sick what do you think made it come on? do you still feel sick at all? Ive been feeling sick with this heart burn thing aswell what is happening to us is what i was thinking to hun. Ill check out sonia post in a moment aswell. I do think its going to be a long recovery i can remember a nurse in the hospital at the time i had my surgery said she didnt feel good for months after. I think it depends on how our body handles not having the gallbladder anymore. Im going to go back to the doctors this week if i can get one for this week i was going to wait until next week but i want to get things checked out as really want to know if this is normal or not. Maybe you should to or call the hospital again about your symptoms to hun. i couldnt eat very much today because of the pain was so bad and with the heartburn etc im still in lots of pain now. How are you feeling now has the being sick stopped? xx

Hi Carmella, I'm not sure what brought it on, perhaps its because I've been in quite bit of pain today and since all this began I've begun to feel more prone to car sickness but it didn't effect me last week so the only difference is the amount of pain. It has stopped now, thanks, but my throat is really sore and I've got blood spots underneath my eyes now. 

Yes I would give them a call tomorrow if I were you, go in as an emergency as you've recently had surgery so I expect they should  speak to you on the phone first. I never had heartburn so I wonder if its the bile thats causing it as it does irritate your insides. 

I did have a little turkey tonight but not much as I didn't want to be sick again.

I'll see how I am tomorrow but I expect that its a one off so I think I'll be ok Carmella.

I'm going to try and get some sleep in a bit but I'm not going to take any meds as I don't want them to aggravate my insides and make me ill again, with everything else going on its just too much.

I think your right about our body's getting use to the absence of the gallbladder, which is why it taking so long.

Let me know how you get on with your gp?

xxx

Hi Carmella & Sonia

I'm writing to you both on behalf of Carol, who as you know her daughter is in a bad way at the moment after gallbladder removal. Her daughter had a endoscopic ultrasound on Monday which showed that her bile ducts were clear, she didn't have any stones hiding anywhere and that she didn't have pancreatitis, this means that she has type 3 sphincter of oddi dysfunction. She's got an appointment with her specialist on Thursday as now they know its type 3 that they'll do botox injections which will hopefully control the spasms so that she can have some respite from the constant pain that she's in. They'll also going to do another HIDA scan but this time concentrate on her stomach and oesophagus as they're saying that it spasms up too. 

Unfortunately after the first message Carol sent me she later sent me another saying that her poor daughter was back in a&e as she had collapsed which they believe was due to the test on Monday.

Carol wanted me to say hi to you both and that she does read our discussions but she's not always able to reply.

xx

Hi Carmella

How are you today? Is the pain still really bad? Did you manage to speak to your gp?

Well at least I haven't been sick again so I put all down to doing too much yesterday. I've lost weight again though after yesterday so I hope that I can put that pound back on, it might not seem alot but it is to me at the moment, its laughable my jeans are just hanging off of me. My husband is desperately trying to loose weight and I don't have a weight issue at all and I'm struggling to put it on!

I hope that you haven't still got that heartburn that you had last night.

I wish we could all turn the corner and start to feel better, nobody warns you that it might be like this and take so long. I knew I would have other issues but I really didn't  think that the pain would be worse afterwards.

Well its lovely and sunny where I am in the Uk so I'm going to head down the garden and see what plants are trying to come through and see if any have drowned with all the rain we've had here over the last few days! At least my garden keeps me positive and with everything I've ordered and sown I should have a garden full of flowers and veg.

Let me know how you got on this morning. xx

hi hun im not feeling to good at all the heartburn pain has gone but ive got this lower right side pain that keeps hurting at the moment. I went to the toilet then it seemed to get worse after that also the right upper pain and across the lower stomach is hurting today. ive been trying to phone the doctors but they must be so busy because i keep phoning and im like 10th in waiting list each time unless there is trouble with the phone lines? ill keep trying to get through. Its good you was not sick again hun like you said it might be down to doing to much yesterday. Im starting to find it really hard to deal with all this after pain etc it seems like as each day goes by its going back to how it was before and sometimes worse? and i cant get hold of my doctors or the hospital so i feel abit lost at the moment. Ive been feeling really upset this morning even crying because im just feeling so low not being able to do anything and that we have had all this done but its still as bad as it is i would of walked in the garden today but its raining here like you said i wish we could all just start feeling better. ive put on a little bit of weight but not very much really. how are your pains etc today hun? xx

Hi Carmella, I wonder if you're still bunged up inside as that can cause alot of pain but keep trying to get in touch with your gp anyway. 

I hope that tomorrow you get the weather that we've had today, I've been out for a few hours as the sunshine is fabulous and even though I haven't been doing much, sowing a few more seeds and picking a few weeds out of the beds I haven't been doing much but I do feel better in myself being in the sunshine. I still hurt on the right side as usual so I've probably done too much  but it was so lovely that I had to stay out there.

If you get this weather tomorrow then make the most of it as if anything its a change in scenery rather than the settee!

Please don't feel upset, we will all get better, its just for us its going to take a little longer as we have other issues that maybe complicating things. Its only been 3 weeks remember and it was major surgery and our bodies have to learn to live without a gallbladder that for some is hard. I think I would rather it take a little longer now than to get better and then something else happen.

How are you feeling now?  xx

Hi hun ive just spoke to the hospital and i have got to go to my gp straight away as they think i shouldnt be having these pains still this bad after 3 weeks so im now getting ready to go up there ill let you know what happens when i get back xx

Take care and i'll speak later xx

will do hun im abit scared now as i thought they were just going to say o its ok its still healing but both the hospital and gp said to come in now? ill let know when im back hun im now leaving to go xx

Oh I'm sorry I missed this, someone popped over. I hope you're ok. At least you're now being seen.

Let me know how you are? xx

Hi hun ive been to the doctors now they asked me loads of questions anout have you been going to the toilet ok have you been eating and drinking have you had a temp have you been sick or feeling sick. Then they checked my stomach and then when he felt the right side i nearly jumped of the bed in pain lol. so he things everything is ok for now and thats its bruising inside still which will hurt and could even be a little trapped gas still left in there but he dont think there is a infection at the moment but he did say if the symptoms are still there or get worse by a couple of weeks then i have got to go back again and be seen and checked. Also i had my results back from urine test and there was no infection so im not sure what was all that pain? so hopefully this will heal before a couple of weeks otherwise ill have to go back again. Its hurting alot now though because they have been pressing on it so its really hurting now but lets just hope its healing pains and i dont have to go back in 2 weeks. how are you at the moment hun xx

Oh Carmella , I was so worried about you.

Its good that you haven't got an infection but its interesting that he thinks its bruising as you had gallstones perhaps things are a little different. I didn't think that it was still the gas that they put in as I thought that it dispersed naturally but I remember now that I have heard of this before but it just didn't occur to me, sorry. 

So they think that its all from the surgery then and yes when I saw the gp last week it really aggravates doesn't it so if you've got some pain relief take some if you haven't already.

I'm really pleased that it doesn't appear to be anything more serious, fingers crossed that it'll start to improve now and you won't have to go back but remember if it gets really bad then you must go, you shouldn't be in unbearable pain, thats not normal. 

How do you feel now? apart from sore, do you feel a little more relieved.

I'm ok, still got that right hand pain in my back  and under the ribs so I've taken some pain relief now.

xx

 

hi hun its made me feel abit better im happy its nothing else at the moment i just hope that he was right and that hopefully it will get better before 2 weeks otherwise ill be back again. its so scary not knowing whats happening. do you find that aswell. I didnt think you could still get gas pains now aswell so thats strange? and the brusing i didnt really understand about that? he was not my normal doctor which was a shame because my normal doctor is the best lol and knows more about this kind of thing. Im still in pain at the moment so i took some pain meds. and like you said ill go back again if the pain gets worse again and hopefully get to see my doctor this time. Ive been really upset today and been crying most of the day as im jus so tired of being in pain it really has been getting to me now like you said hopefully the weather will get better here then i can go in the garden. Im also having that right side pain alot today and i have not been able to eat much. have you been able to eat much today and what have you had hun? it really does hurt when they press on the stomach doesnt it. xx

Oh Carmella don't feel so down, lets hope that you're just having a bad day and everything will be better tomorrow. Fingers crossed he's right and its gas thats trapped and it'll go in time. I know its hard when you don't see your normal doctor that knows you but at least you've been seen now and hopefully you won't need to go back.

Yes I find it scary and frustrating that I don't know whats happening to me and whats normal  and what isn't. I've still got this right sided pain which is a bit sharp at times but not excruitiating, so I'm just taking pain relief and seeing how it goes. 

I did have a hot cross bun today and the odd biscuit, I think we're going to have chicken tonight. Have you tried eating today?Just remember to keep your fluids up and get some sleep if you can and your body needs sleep to mend.

I'll catch up a bit later and see how you are?

xx

I know i think im having a few really down days. like you said lets just hope it heals up so i dont have to go back. it is so scary not knowing whats going on. Thats good you have eaten good today ive just had toast not much really hopefully ill feel abit tomorrow and get better sleep. update me later on how you feel hun and how your dinner is etc speak to you soon hun xx

Hi, dinner was good but not so good afterwards, it was just chicken and pasta but food always seems to do this to me. I'm hurting now just under the right ribs and going upto the shoulder blade, I just wish there was some respite from it and to feel as though it is getting better. At the moment I don't feel any further forward than I did before surgery. Hopefully I'll get some answers next week.

How are you feeling now? I expect your still sore from being prodded where it hurts.

xx

Hi hun i know how you feel eating moving around or even resting seems to bring it on. like you said its like there is no break from it. I also so agree with you it does not seem any different really at all then from before the surgery thats what makes me so upset aswell as the pain is we have been through all of this had our surgery done and still feel pain and sometimes its worse then before the surgery. Its good you still have eaten something hun ive only had toast today as felt so bad so i have not done very well ive been drinking alot of water though. I also have been feeling sick today again do you still feel sick sometimes? Im still very sore from where they prodded the right side of my stomach even some of the left side hurt abit aswell. I also said im still getting this strange back pain but he didnt really say much about it? he felt where my kidneys were but my pains higher up then that so i didnt really get many answers i really wanted to know more but hopefully he is right and its healing so its sore i just really do not want to go back in 2 weeks again because its still no better. Its good that you have your meeting next week hun please update me on what happens and what they say because you will get better answers from the surgerns etc plus they will look into it alot more then what the gp does. i think when i went to the doctors today they were just hoping it will get better in about 2 weeks otherwise they will have to send me for more test again and when i feel well enough ive still got to have test for bladder etc to see why i keep getting pelvic and lower back pain etc. Do you find with the pains they are always there but sometimes they get worse or does your pain go for a while then come back mine seems to be there all the time then gets worse after eating or moving etc. i still cant sleep on my sides i still have to sleep on my back so lets hope we get some sleep tonight as ive not really had that many great night sleeps. update me in the morning hun on how your feeling etc and hope you get a good nights rest speak to you tomorrow hun xx

Hi CArmella,

I've just got out of bed as I had the most awful pain under the ribs right at the tip, which is where I had it before but not as sharp and for as long as this before., I suppose that's liver, my belly swelled right up too so I've made myself a cuppa. Its worn off now but I still feel really uncomfortable.

Perhaps you'll be able to eat a bit more tomorrow if your pain has relaxed a bit and not so severe. Yes I do feel sick at times, it just seems to come on out of the blue with no rhyme or reason for it.

Hopefully when you wake up tomorrow the pain will have eased where the gp has prodded you, it really does aggravate things though doesn't it. Yes I found that I didn't really get any answers but he's a gp and not a specialist in this area. He said to me that my symptoms aren't textbook and complex so I knew he was a little out of his depth but all I wanted was something to help me sleep!! Hasn't worked has it  My brother in law has just qualified as a gp and I know what he says so it didn't surprise me. Also because of the web and the information on it we probably know alot more than most unless they have an interest in this area.

Hopefully you'll be better so that you won't have to go back in 2 weeks.

No, I find that I always have some level of pain and its constant, it just gets worse after food.

I hope you've managed to get a better nights sleep and I'll speak to you in a few hours. 

xx

Hi Carmella

How are you today? Has your pain eased at all, I hope it has.  I hope its sunny where you are, like it was here yesterday and your enjoying the sunshine. Not like that here today!

Not doing too well after last night, I still feel really uncomfortable with increased pain under the right ribs. I've felt really sick this morning so I'm just going to rest today. I've got some paperwork to do for work at some point today but I'll leave it for the moment.

I don't know what brought it on, I didn't get to bed until after 3am in the end. I'm a bit worried though that it might be something to do with my liver but then I'm only guessing as he did a cholangiogram during surgery and I don't know what the results are until next week. I have Gilberts syndrome which means I have a slightly increased level of bilirubin, a waste product when red blood cells break down, it normally doesn't cause any symptoms as I don't need any medication for it but I've read it can cause pain in the liver which means there's something else going on. I haven't gone yellow yet so that has to be a good sign 

Let me know how you're getting on today xx

Hi hun im still in pain on the right side alot and like you i got up today and felt sick aswell. I hope it is not your liver hun hopefully next week they will tell you more about whats going on. I would of thought if it was something that bad they would of contacted you by now and wanted to of seen you quicker. I also didnt fall asleep until after 3 aswell i found it really hard to get to sleep last night. the weather is sunny here today but i feel so worried if i go to far then my pains will get worse. My right side back pain has been playing up today aswell. I hope they give you some answers next week on what is happening. how do you feel now hun and im going to do the same thing and rest today xx

Hi, its probably nothing and I'm just seeing more into things that there really is but as you say I'll hopefully get some answers next week. Its still really niggly with sharp pain every so often.

Yes I thought you were up late because I was up. Its a shame if you can't go out, I don't know what you have at home and I suppose I'm lucky with what I have around me. Yes I know after the gp has prodded you it does take a while to relax again.

Not feeling too good and I feel totally drained. Just sitting on the settee which seems to be my normal place at the moment!!

xx

Same hum i know the feeling. I forgot to tell you ive been having some other symptoms come up i now have to go to the toilet after every meal which has only just started with in the last few days and its starting to be abit like how it was before the op todays ones were anyway sorry for this info its just i didnt really say anything much to the doctor about this as it wasnt as bad until today but i have read that some people do get this for a while after and my belly button and to the right of my belly button and all near that part of my stomach seems to hurt today i dont know if its where the doctor had prodded it about but its very sore and painful. I might try and take a walk if i can handle it lol. do you find your pains still hurt when you walk about i think that is what puts me of doing much at the moment as it even hurts to walk about i just really hope this gets better for some reason i have a strong feeling i might have to go back in 2 weeks Im so happy you have your meeting next week and hopefully find some answers out my liver was also playing up before the op but they never said anything about it after the op which i would of thought they would of atleast wanted to do blood tests or something just to check? so i know how you feel with being worried about it hun i also keep feeling drained i think aswell what adds to me not being able to sleep very well is the pain and having to lay on my back and i seem to always worry at night and my mind starts thinking of the pain more etc. Its really strange because when i first had the op i could move around abit more but now it seems to make my pains hurt on the right side alot. then i have to go back and sit down. xx

Yes I have read that this does happen after surgery, I'm the other way at the moment but I think that because of the meds I'm taking and I'm never very regular anyway. If it doesn't ease then you must speak to your gp, and get some medication for this and not suffer but remember if this is happening then you'll be loosing vital fluids so you must keep your fluid intake up. Apparently you can be constipation one minute and then have sudden diarhoea the next with this but they can give you some meds to help.

Sometimes I find that I get an attack while walking and it stops me in my tracks which is why I don't like to go too far. Do you get dizzy with it as well and feel all light headed? 

It was only the surgeon that mentioned it as he wasn't happy with my liver function test results, no one else did they all said they were satisfied!! I know with the test he did during surgery it checks the hepatic ducts to make sure that they are functioning properly, I expect it was fine but as we're still not right it does make you wonder doesn't it?

Yes I'm the same I was alot more active before and this pain is similar to an attack of pins and needles, short and sharp. It doesn't last for very long but I didn't have it before surgery.

I've just been doing some paperwork for work which was good to take my mind off of it for a while.

Its horrid down here today, really wet and miserable which doesn't help your state of mind, especially as yesterday was so lovely.

xx

Hi hun sorry i took so long to reply i actually did do a walk around the garden today and luckily i had someone come round and cut my hair for me as i have not had it done for months it was so hard sitting in the chair to have it done though and now im feeling the pains really bad now my right side is really bad and its going through to my back aswell. I know its strange with the toilet thing because i couldnt go at first and had to take laxido then now its gone the other way? if it gets worse ill have to tell the doctor. i keep getting this funny taste in my mouth aswell do you get that at all? i used to get the dizzyness all the time so bad that i used to fall over before the surgery i do still get it but not as bad as it was ive also got really bad low blood presure so it might be down to that aswell. Thats why they didnt want to send me straight home after surgery as my blood presure went really high then went so low but then after a while i think they got it to the point where it was ok and then i went home. hopefully the surgern will tell you more about your liver etc at the meeting its strange that others said it was ok but your surgern was not happy though. This has happened to me a few times when i went to A&E sometimes they would say my liver was normal then sometimes they would say it wasnt? but they never told me after the op if it was ok or not so i hope it is. they also said i didnt need a follow up after the op aswell but i think they should give everyone a follow up really as it seems they dont tell you everything at the time like how you will feel after and what to do if you are worried etc well mine didnt anyway and now ive already had to speak to the hospital and doctors and might even have to go back again if this still goes on for 2 weeks then im guessing ill have to have more tests done. i just wish we would all wake up and just feel better again. It sure make you wonder i totally agree because we are still feeling so bad i really did think we would feel better then this by now. yes i find that i was able to walk better and more before and now even thats getting harder i also no what you mean by the sharp pains i also have this pain thats always in the back ground all the time on my right side and nothing really helps to take it away do you get that pain aswell hun? Its good you have been doing paper work to take your mind of it i done the same today by having a walk in the garden and some fresh air i didnt think i was going to be able to do it but i gave it ago feeling the pain now though so resting again now. How are you feeling now hun with pain etc and have you eaten today? also its sad to hear about carols daughter poor girl i only saw that post you wrote to us last night how is she doing now and is she still in hospital? xx

Hi Carmella

Sorry I fell asleep in the chair again!!

Its good that you managed to go out into the garden, I think its still raining down here so I'm glad I made the most of it, even though I probably over did things.

 thats funny, you had your hair cut and I washed my hair cos I wanted to feel a bit better and as least I might look a bit more human!!

I would phone your gp for something if you've still got bad diarrhoea next week and they'll give you something but I think this is quite common.

Yes I do actually, get this funny taste but I just put it down to too much tea as I know that can leave a metallic taste, does yours last for sometime then?

I haven't had low blood pressure for years, when I was lot younger but I did as you and got it after surgery but they said that was due to the meds as they had to give me additional morphine too which lowered it so they kept me in for sometime as they did for you. It was strange as I was just watching it go down in the end they turned the machine away from me so I couldn't see it.

I do feel that they should contact everyone thats had surgery like they did with me after a week and from that they can see if you need an additional appointment. When they called me they had a check list to go through, its obviously different with each nhs trust.

Yes I have that constant pain but this other pain is new, I didn't have it before. Its really niggly at the moment and more than an ache that I normally have. Thing is I know that eating makes it worse which is just as before, roll on next week and my appointment then at least I may have some answers but the surgeon makes me feel so inferior, I suppose its their way as they see so many people and most come and go through the system, they just get to the point  with what they need to do and get on with it!

Yes I've had lots of bits today and I'll have something proper when my husband gets home. I did have some chocolate which felt really good.

No Carol's daughter isn't in hospital at the moment, they saw a specialist today and he's going to do botox injections into the sphincter muscle but not until the end of next week. I've just had a message from her as they've just got back. I think she'll catch up with everyone at the weekend.

I've just had some meds as it was getting more than I can handle, as you say I wish it would just go, I'm so fed up with it.

xx

Hi hun thats ok its good to get the rest and sleep when you can. It is really strange these new symptoms that are coming up now yes the taste in my mouth lasts about half an hour? its so strange and it comes on out of nowhere and the toilet things aswell? and your new pains aswell i find ive got a new pain near my belly button to the right side? i am happy that i got abit of fresh air today as the weather here was bad for a few days so thought just a little walk around the garden would help im feeling it now though im now about to take some pain meds to hun. I know what you mean with the surgerns etc just make sure you let them know all your symptoms you are getting and hopefully they will do something for it. Its good you have had chocolate today to ive still been scared of food lol but im getting there like you said its because these pains seem to come on after food and movement even resting does it to. i will tell the doctor next week if this toilet problem keeps happening as this is something new to but i have read people getting this but i just dont know why its started now? i feel so sorry for carols daughter i really hope she is ok and that they help her soon. my back is really playing up on the right side now and under the rib to its so hard to deal with this pain all the time im so fed up with it to hun xx

Yes I find that if I do more that it increases the pain later on in the evening, but I do think that it starts to strengthen your muscles back up after months of reducing everything from my 'old life' .

I was worn out when i fell asleep then the phone went and I really wasn't with it. Mind you I was up most of the night so I needed to sleep.

I wonder why these additional symptoms are happening, I expect its normal but it does seem strange when I would've thought after a couple of weeks we would start to feel so much better than we do now.

Yes, my back pain is the same now that I've eaten and on both sides, I just want to be able to take less meds as I've been on them for so long now. I know how you feel  about being fed up.

xx

i know what you mean hun it is so strange with these new symptoms keep coming up and still feeling so unwell at this point it really does get me down. Its best to get rest and sleep when you can is what i found because i find it so hard to get to sleep at night. Like you said we still have to move around abit though to get the body to hopefully recover abit but just do little amounts like little walks etc then rest again. Yes the back pain has been the worst for me tonight ive had that right side pain and chest pain even abit today aswell. Lets hope we get a better night sleep tonight hun i dont think i will as i cant think when i actually had a good night sleep lol keep me up to date on how your feeling etc tomorrow hun and lets keep hoping we will get better soon xx

Hi Carmella, how are you feeling today?

Well for the first time in ages I managed to sleep through the night and slept late this morning too, my body obviously needed it.

I've still got that right sided pain but I think that its going to be the norm for the moment until I find out more next week. I can cope with it if its not too bad but the last few days weren't great. Looking bad at the other night when I had those sharp pains in my liver I looked in the dish that we cooked the chicken thighs in and it was full of fat. I know that some places inject fat into the meat which is what must've happened, so at least I believe I know that fatty meat I really can't tolerate. I think I'm probably better off cooking a whole chicken rather than pieces.

I've been out in the garden just to get some fresh air as its not pouring with rain today and I'll go down there again soon as I've got seeds in the greenhouse that I need to check on.

I'm back on the senokot as I'm finding things a little difficult with that at the moment so hopefully that'll work.

I hope you're feeling better day xx

Hi hun thats really good you had a good night sleep once i actually got to sleep i also had a not a bad sleep last night i know what you mean by this right side pain as soon as i get up and move it starts of or if i eat etc. its good your out getting some fresh air hun its also very nice here aswell today the suns out again i might try a little walk in the garden later as not feeling to great at the moment i think i might of over did it abit yesterday but im going to give it ago if i can Hope the senokot will help for you hun then im still the same im more the other way at the moment. I think that was the chicken that made you hurt the other night hun im not great with chicken myself ive had it a few times and got pains after but i get pains after most things im eating at the moment but its worse with some things then others. Ive got that back pain today alot and also the right side pain which always seems to be the one thats always there had a few pains on the left side to. Lets hope you get some answer when you have your meeting next week hun how are you doing now hun and keep me updated through the day xx

Hi Carmella, Yes mine's playing up now that I've started to eat but I have been for a walk in the garden a few times just to get out the house and have some fresh air.

Are you still having toilet problems? thats not good. I would phone your gp on monday and get something. Yes I think the senna has started to work but I know it takes time to work through your system.

Just sitting and resting at the moment, did some work earlier which was ok.

Going out to my neighbour's tonight, so I'm looking forward to that, different surroundings and its not far to come back if I'm not feeling too good.

Have you eaten today?

xx

Hi hun yes i dont the same had a few walks around the garden and like you said the pains come on worse now but it was nice to get some fresh air. ive got that right sided pain and back pain so im going to take some meds now. im also resting now same as you hun. Hope you have a good time at your neighbours let me know how you get on and how you feel later hun xx

Hi Carmella, its good you've had some walks round the garden, I know it doesn't stop the pain but it is good to get outside just for different surroundings. 

It was good to get out, if only for a chat and just had cups of tea. Just come back though and my back is starting to hurt quite badly so I'll end up having some pain relief in a while. Just sitting in my own chair now which is easier. 

Got some strange gurgling sounds coming from my tummy which I've had before but it can be noisey at times.

How are you tonight, you still in bad pain? What did you have for dinner tonight? My husband did a carbonara which was good, he always does things a bit differently and had put sugar snap peas in it too which added a good crunch.

Hope you're ok?

xx

Hi hun its good you had a good time and went out and had a chat and tea ect it is nice to get some fresh air like you said it doesnt take the pains away but its different surroundings which is nice.i also get strange sounds in my stomach mine started after the surgery and still does it alot now. your dinner sounded nice hun i just had fish and potato today but it went down ok i still get scared of eating very much lol. ive still got all the normal right sided pain and i know what you mean by the back pain being bad now thats been keeping me up tonight im going to take some pain meds for it soon. hope your back pain gets better hun and let me know how your feeling in the morning xx

Hello Carmella

Is the sound like a popping sound . Ask as that's what my daughter gets, just really strange sounds .

X

Hi Carmella

How are you today? Typical back again which is worse today than yesterday, I have no idea why it does this. Its really niggly but stronger, its just so irritating.

It was good to get out last night and chat, we get on really well which is good for neighbours. 

We've got salmon tonight and I find that fish is alot easier to digest than meat at the moment but chocolate goes down well which is very good

How are the toilet trips, are they getting any better or just the same? The senna has worked with me but I think I'm going to have to continue to take it on and off for a while.

Its gorgeous weather here today so I think I'll spend as much time out there as I can, it'll revitalise me and we all need the sunshine. I hope that you can enjoy it too without getting in too much pain.

Let me know how you're feeling today? xx

hi hun its good you went out last night i know what you mean by the back pain though it kept me up all night last night with the right side pain to i didnt have hardly any sleep and i dont think i went to sleep until about 4 in the morning. how did you sleep last night hun? its good that chocolate goes down well i also find fish is easier then meat aswell. toilet trips have not been so bad yet i say yet as it could all change again lol. its also gorgeous weather here aswell today if im not in to much pain im going to try and go in the garden. I really do hate these pains though it just seems like you never get a break from them. i find going in the car makes my back and side hurt if im in the car for longer then about half hour does that happen to you? i have some shoulder pain today to. how are your pains today hun and how are you feeling xx

Hi Carmella, I find the same with the car that it really does aggravate if I'm in it for too long.

Yes I've still got that right sided pain thats just slightly in my shoulder but I've made my way into the garden to get some of this sunshine. I've been pulling up a few weeds then sitting down with a cuppa before doing anymore. I'm a bit tired now and the pain is alot stronger than earlier, I've probably over done it. I did find if I crouched down that it really hurt underneath the ribs, I expect thats the healing process.

I didn't sleep too badly once I managed to get comfortable, but I did take some pain relief before going to bed as my gp suggested to help me to get to sleep.

Just resting now as I think I've done more than enough for one day.

Did you get to go into the garden? I've got chairs all over the place in mine so what ever time of day I can sit in the sunshine.

xx

 

hi hun yes it really does make it worse in the car for some reason? i done a little walk in the garden but i think after going in the car for to long yesterday really made my pains worse for today so didnt stay out there very long. my back pain is really playing up at the moment i think i done the same thing and over done it plus had a not good night sleep so felt quite bad today. im also resting now im happy i got in the garden for abit though. going to try and eat something soon so we will see how that goes down xx

Hi, When are you meant to go back to your gp if your pain doesn't go. From everything you've been saying I would go back sooner, you really shouldn't be in so much pain all the time. I know I'm stil suffering but I'm at least able to do little things and your not. Please ring them on Monday and get an appointment. I think you need to be referred back to your gastro or at least they need to see you, if only for piece of mind. You should at least be improving day by day especially when I hear people on here are going out and having long walks who had surgery after us.

You rest up and try to eat something, perhaps have a nice bath will make you feel a bit better, temporary I know but it works with me.

I'm aching a bit now so resting inside, just trying to leave it as long as I can without taking any meds but I might need to succumb to some pain relief in a bit.

Take care of yourself, will speak later xxx

hi carol yes it is and like grumbling sounds and feelings its really strange. how is your daughter now hun i hope she is feeling better xx

hi hun yes i have got a one with my doctor at the end of next week i was thinking the same thing as these pains dont seem normal but the last doctor was like you might be taking longer to heal but to come back if it still keeps happening in a week or 2 so phoned up again and my doctor is about this week so i booked one with him he knows more about everything ive gone through and hopefully ill find some more answers from him. I know what you mean hun im even still on pain meds aswell but ive been waiting it out aswell but i think im going to have to have some as i was doing some light walking up and down the stairs which has made mine come on worse. Also i forgot to tell you i had the stragest thing happen starting last night i had like this clicking in my troat? it was so strange and its still here today and it only does it when i put my head down? i dont know if thats to do with the surgery but it is very strange and i think that and the back pain etc kept me up half of last night so i hope that does not happen again. Ive eaten fish and potato which went down ok. and yes i was thinking the same thing im going to have a nice bath tonight and hopefully will help me sleep. Your meeting is next week is that right hun? be good to find out some answers from them how are you feeling now hope your ok xx

Hi Carmella ,

That's exactly what my daughter gets & they have not been able to say why, but the more peppermint & camomile tea she drinks the less it pops & gurgles , it's the strangest sounds.

She slept for a few hrs when we got out of A&E & she has kept topped up on all meds today eating tiny amounts , so fingers crossed we might have a night at home tonight all going well.

How are you feeling now ?

Hopiyyou have had a better day x

Oh thats good that you've got an appointment with your gp, its so much easier when its one that knows you. I  would like to think that he'll refer you back to your gastro and start some more tests encase a gallstone has hidden somewhere.

Yes I've had to take somemore pain relief, I think I've completely overdone it today with everything and I'm in alot of pain now especially in the centre of my chest its awful, its as though someone has put a foot under my chest. 

Your throat thing, your not getting excess saliva in your throat as I know if I have a cold and you get catarrah that it sometimes does that, it clicks as you breathe in which is like a bubble bursting, you can ask your gp when you see him. Its horrid when you can't sleep, I end up just getting up and making a cuppa until I feel really tired.

I had some salmon tonight and 1/2 a jacket potato which went down fine.

Yes my appointment is on Tuesday afternoon, I just need some answers as to why I feel worse now than I did before and hopefully he can give me some hope that he can treat me.

How's the bath? hopefully you enjoyed it and feel relaxed and perhaps its eased your pain. xx

 

hi hun sorry i didnt get back i feel asleep and had a really good nights sleep i even woke up late so that was nice but my right side and back pain is playing up since ive been up. and yes hopefully ill get some answers of my doctor. I have also got the centre chest pain aswell which is strange. yes the throat thing could be down to that i didnt think it would be down to this. your dinner sounded nice hun glad it went down well   its good your appointment is soon hun hopefully get some answers on what is happening. The bath was great hun i think that is what helped me go to sleep and felt more relaxed i just wish our pains would go i really did think i would feel better than this by now you must feel the same way hun its so horrible. feeling abit down today as it just gets on top of me sometimes as i hate the fact that we have had all of this done and we are still feeling so bad and its mothers day and i just feel when i start moving around it comes on worse. today its already starting with the right side pain and back pain. how is your pain today hun and hope your ok have you been out or doing much today? xx

Hi Carmella, sorry for the delay its been a bit chaotic being that its mother's day. I hope you managed to have a good day.

Its good you had a good nights sleep, mine was the worst in ages and I'm so tired now with visiting both of our families today. I had really bad pain under the ribs which has stayed with me all day and  has got worse this evening. The back pain now is just too much and I've had enough, I just want it to go. 

I think I might have a relaxing bath tomorrow night and hope I get a good nights sleep after it like you did.

How have you been today, has it been bad all day or did you have any respite from it. 

I'm so tired of this as you are, I've just taken some more pain relief as I've been needing to take some during the night when the pain wakes me up. I'm looking forward to seeing my surgeon and finding out what he thinks is happening to me.

Let me know how you've been today xx

hi carol it is the most strange feeling im going back to the doctors next week so ill let them know and see what they say about it. Ive not been to ggod my self still been having right side back pain and pain where the gallbladder was. Im still staying on low fat aswell. I feel so sorry for your daughter and everything she has been through its good she has had something to eat and like you said hopefully you wont have to go back to A&E. what are her other symptoms at the moment? xx

Hi hun i know what you mean by it been having to do alot today with mothers day etc hope you had a nice day though hun. I was so happy i got sleep last night that was the first night sleep that was good for so long. I have had the back pain more than anything today aswell its lasted all day and its only now starting to go down abit but i have had pain meds. I would have a nice relaxing bath tomorrow hun it really helps to relax it doesnt take all the pain away but its nice and relaxing. Its not good you had a bad night sleep though hun i always normally have a bad night sleep so i was happy i had one good night. Ive had a little bit of respite today but not for long. I know what you mean hun of being tired of this i was feeling down myself this morning about it all as my pain this morning was so bad. It will be good when you talk to your surgern so you can find out more of whats going on hun i also cant wait to see my doctor but its not until the end of the week. Have you eaten much today ive only had toast and low fat jam and eggs and mash. hope your feeling abit better now hun keep me updated xx

Hi Carmella, how are things today? I hope you had a good nights sleep last night. Unfortunately I woke up again in the early hours and couldn't get to sleep again so I had to get up for a while.

How's the pain today? is it less than yesterday or about the same? I've woken up with the right sided pain again, with that and not sleeping I'm so tired. Nothing seems to work with pain relief or its my body thats got use to them. The thing that I don't know is all these pain killers can give you side effects of stomach pain so I don't know it they're aggravating everything thats going on. The problem is if I stop taking them I end up in alot of pain still.

Yesterday was lovely, my sister in law flew down and we collected her to surprise her mum who didn't know at all that she was coming down. They're very close so it was lovely to see her mum's face. I made my mum a coffee and walnut cake which is her favourite but cos of the pain I couldn't try it.

How did you find yesterday, did your partner spoil you on behalf of your son? 

What day is your appoinment with your gp? I hope we both get some answers this week.

Its lovely weather here again so I'll probably spend sometime in the garden but I will have to do some work later.

xxx

hi hun i did get sleep once i actually got to sleep but it was not as good sleep as the other night. I know how you feel when you get up in the night and cant get back to sleep its horrible. ive got that back pain still today alot and some front right pain. I was thinking the same thing about the pain meds but i know if i didnt take them i would also be in so much pain. I keep feeling tired alot still aswell. its good you had a good day yesterday hun sounded lovely and yes my partner got me flowers etc from my son. I did feel abit upset yesterday because i was in pain with my back pain alot but i did have a lovely day with my son and family. my appointment is at the end of the week friday andyes i hope we find some answers hun is your meeting tomorrow? its lovely weather here aswell im going to try and have a walk around the garden to update me on how your feeling when you have finished work hun xx

Its a vicious circle isn't it, with pain meds, you don't want to take them but have to and they have their own problems.

I've just woken up as I was feeling so rough and in so much pain, I had some little plug plants through the post and thought I'd pot them on and the pain afterwards was awful and I've been feeling really dizzy and lightheaded but I think I might have tonsilitis on one of my tonsils, its got white patches on it so that might be why I haven't been feeling too good. As it I haven't got enough going on at the moment, thing is I don't know anyone that has it as I haven't been anywhere near anyone who's poorly and I don't know how long it takes from infection to getting symptoms.

did you have a walk in the garden today, it was so lovely wasn't it, I hope it stays like this for a while.

Have you managed to eat today? I've got some salmon for tonight and I expect we'll just do potato with it.

I'm glad that you managed to have a good day with your son and family even though you've been suffering.

xx

 

Hi hun not good that you have tonsilits on top of all this aswell hope you feel better soon. I did have a walk around the garden in the end it was such a nice day not to and yes i hope it stays like this its been so nice. your dinner sounded nice i had egg and mash i went for something light today as my pains have also been bad. I would tell your surgern about the tonsilits at the meeting aswell hun. Im going to have a bath again tonight see if that helps me sleep again ive had this horrible back pain all day again it is a vicious circle hun. thankyou yes mothers day was lovely im glad you had a lovely day to keep me updated on how your feeling etc xx

I know Carmella, I'm so fed with it all as if things aren't bad enough at the moment. I've got a temperature, been asleep this afternoon, feeling dizzy and light headed and I've got that pain under my ribs.

I hope you enjoyed your bath, I was going to try and have one but my husband didn't get home till late so I haven't got time, perhaps tomorrow and I'll put candles around and some nice bubbles too.

Didn't eat much tonight compared to normal, I take it yours is going down ok and not causing any additional problems. Weighed myself tonight and I still haven't put on much weight, it keeps on fluctuating  between 3 weights, thing is I know if I could put on some weight it would give me some strength to fight bugs off too. 

I didn't spend as much time in the garden as I wanted because I felt so rough which is why I fell asleep indoors, I do hope its nice tomorrow. 

My appointments at 4pm so I'll let you know when I get back. My parents are taking me and we pass a M&S which they find easier to park and get around so I might buy myself a treat or too as I have some vouchers too

Take care and speak soon xxx

hi hun i feel so sorry for you to be ill on top of all of this aswell. i was getting dizzy and light headed before the op i even feel down the stairs i still get it sometimes but not as bad now but i think yours is because your feeling ill on top of all this. i did love my bath ive only just got out of it lol and yes you should so do the bath with candles etc i think its because your ill aswell would but you of food aswell as your throat is hurting to. i know what you mean by the weight thing my weights gone down again but i am eating so thats very strange i had egg and chicken and mash tonight? so would of thought that was alot but my weight has gone down still? Hope you start to feel better hun i know how you feel and being ill on top of it all its just never ending. Lets hope you get some answers tomorrow from your meeting let me know how everything goes and what they say take care hun and speak to you tomorrow  xx

Hi Carmella, I'm glad your bath relaxed you, I think I will try that later. You sound as though your eating a bit more now? It is weird about the weight though isn't it, sometimes I think that I've eaten loads and my weight hasn't moved.

I'm not good at the moment, it just seems my right tonsil is infected so it really isn't effecting my throat or my other tonsil. But I did notice when I ate it was harder to open my mouth, probably inflammation.

Just had a bad turn, got up really quick at someone was at the front door, then felt really sick to went to the bathroom threw up and then passed out. I was all squashed against the toilet and the wall and I hurt my arm a bit as there's not alot of room so when I woke I managed to move myself and just laid down in the bathroom for sometime until I felt better. Its probably with both things going on and my body can't cope at the moment.

How's your pain today? Is it any better than yesterday?

xx

hi hun i hope your ok i have only just seen you message are you ok now? that sounds really bad its good you have your meeting today let them know everything thats going on hun i really hope your ok hun i would get checked out today aswell incase you have hurt yourself when you passed out. have a good rest until your meeting hun then tonight have a nice relaxing bath it might help. are you still of your food abit and have you eaten. i have been trying to eat abit more but i cant put the weight on it just keeps coming of? i would also get your troat checked aswell hun incase it is a infection and its making you feel even worse i feel so sorry for you hun. Its good you have your meeting today as things have got worse and hopefully they can find out what is going on. Ive still got the normal pains right side and where gallbladder was and the back pain ive also got a chest pain where the top cut is and i didnt get a very good sleep last night my back was playing up really bad. When i move or walk for to long it seems to bring it on and if i sit for to long aswell so strange? good luck with your meeting today hun update me on what they have said and also hope you feel better to hun xx

Hi Carmella, I'm ok, I think I got up too quickly out of bed and rushed around and with tonsilitis I just got really ill. But I've hurt my arm and my neck as I crushed myself in the corner by the toilet, there's really not much room.

I'm keeping an eye on my throat and if its still bad next weeks then I will go and see my gp, its just strange as it always effects one tonsil and not the other!

Well I saw the surgeon, they were running really late but he came into the room and sat with me and was actually really nice. I told him that the pain hadn't stopped and had actually got worse as he knew it wasn't likely to get better after surgery. He said I had a problem with my cystic duct but because the sphincter of oddi is fairly close in me they couldn't definately say it was the cystic duct and not the sphincter causing the pain. He mentioned the ercp procedure and sphincterectomy but said they do have their risks with getting pancreatitis. He's going to refer me back to the physician as they are the ones that do the diagnosis and decide which procedures to follow. He doesn't know which route the physician will take as the procedure wouldn't be done by him as his speciality is gallbladder.

Alot of people on this site have been told that this condition is rare but he said to me its very common and it is something that you have forever. 

He suggested that I go back to my gp and get referred to the pain clinic as I'll get an appointment quicker than if he does it. So I need to do that this week. He was very honest with me and I appreciate that more than anything.

So I have no idea when I'll get an appointment to see the physician I do hope its soon. Its just a waiting game again. 

So how have you been today is your pain really bad still?

xx

 

hi hun i was getting worried because hadnt heard from you. Its good you got some information about was is going on its not good about the sphincter of oddi and cystic duct and that it last for ever? I had a mrcp done and they said if there was stones stuck i would of had to had a ercp which i didnt want to have because of the chance of getting pancreatitis but luckily they didnt find anything so i didnt have to have it this was before my surgery. I also thought it was more common because not my surgern but another surgern said the same thing that its more common.Did they do any tests today like blood tests or anything? hopefully the pain clinic will help aswell do they help with the pain aswell? i know what you mean hun its so hard to be in pain all the time and they make you wait for so long. i hope you are ok from when you passed out hun have a rest day tomorrow and have a relaxing bath. I have been in pain but not as much in my back today but more on the right side but my back will start hurting later when i try and go to sleep as it always does. I went for a walk around the garden today aswell as it was nice but pains about the same still and starting to get worse as it does at night. How are you now hun with pain etc do you feel abit better now xx

Hi Carmella, I'm sorry I didn't get back to you sooner, you know what its like you need to get use to the information especially as its not really the information that you hoped for and I hoped the info would help others on here but I haven't anything substantial yet. It look like I'll be doing some more research. No they didn't do any blood tests, I think they'll only do some if I have anymore procedures.

I knew it was common but quite often it happens months or years later after gallbladder removal but mine was before but then they call what I had biliary dyskinesia which covers the sphincter and there's a sphincter of the pancreas too which it includes. My previous physician did think of doing an ercp before I had the hida scan but he didn't want to do it at that time. From everything I've read you shouldn't have problems if its a very experienced surgeon but it does have more risks if they have to do anything.

Yes I'm a bit sore on my arm and neck when I passed out, its weird as normally I know if this is going to happen so I can prevent it, this time I had no idea, its strange when you come round as I didn't really know where I was. 

How are you feeling today? have you got up with pain? I think being worse at night really causes havoc with sleep doesn't it. Ahh its good you've been down the garden today, its really wet here today so I don't think I'll be out there today.

What time is your appointment on Friday with your gp?

xx

hi its ok i understand I know what you mean thats how i felt when i last went to the doctors ive got a really strong feeling they are not going to say much this time aswell because the last doctor said give it 2 weeks and i made another one only one week later so ive got a feeling they will say its to soon again but you never know they might hopefully send me for some test ot atleast get some information. I didnt really know much about sphincter of oddi etc so i was looking up about all of that and the bile ducts etc i didnt know it was common myself i thought i was rare but from what i found it seems alot of people do get trouble with that after surgery. I wish doctors and surgerns would give more information about all this before i mean i would of had to had my gallbladder out anyway but atleast i would of known that these type of things can happen and they are not as rare as they say. Lets hope when you get your next meeting hun that they do more then and you will hopefully get more information about what they will do next. Its not good you hurt yourself when you passed out hun take it easy today and rest like you said the weather is not very nice here aswell so im thinking ill be resting today to. i had a ok sleep but i got up with back pain i think i slept funny so it made it worse and still got some right sided pain. How do you feel now hun xx

Your pain hasn't eased though has it so really they should refer you back to your gastro or get then to refer you to the pain clinic, don't forget some meds can make your symptoms worse.

No its not rare at all and it annoys me when doctors tell patients that it is, when really what they should be saying is they don't know anything about it and refer you to someone who does.

All I know is if I get these tests done then it may or may not work then I have to adjust my life, I've done it before when they told me i had ibs, I still get it but not in the same way.

I wish I knew when my appointment will be, I just hate this waiting now.

Do you wake up with this back pain every day? I get that too, probably more back pain than anything then if goes into the right side and finally upto the shoulders. Are you still having some pain on the left? When I get it, its generally in my back rather than my front.

You could do without sleeping awkwardly, are you sleeping on your left side yet or is that still very sore?

xx

Hi hun i so agree its like they tell us one thing then tell us another. I have not got much hopes for my doctors meeting aswell like you said they need to send us to people that actually know about this kind of thing. Thats what im scared of hun is having to change my whole life again and living in pain taking meds all the time. They never do anything quick with meetings i had to wait so long when i have meetings its so horrible. and i do wake up with the back pain normally but today im having more of the right side pain and under rib and some pains around the back but it will get worse later as it always does. I still get that funny taste aswell and still get really tired do you still get that hun? how are feeling now i might have a bath again tonight and relax if the pain lets me lol xx

I forgot to say ive been getting a really sharp pain in my lower right side of stomach aswell today which is really strange do you ever get that hun? xx

Yes I've had that but I just put it down to me getting constipated as it didn't last. You need to mention that to your gp too and hopefully they'll examine you.

I get so tired like yourself, I fell asleep this afternoon on the settee. 

I just started to get really bad right sided pain underneath the ribs its really uncomfortable so I've just taken some pain relief and hope that helps as its really not very good. I feel nauseous too. I know the other day when I was sick lots of bile came up as it was yellow.

Have you managed to eat tonight, we've got salmon later but I don't really feel like it at the moment.

I feel so down at the moment with everything as I expect you do, I really feel as though I've had enough.

I hope you enjoy your bath xx

I know the feeling hun ive had enough to it just seems never ending with pains and even new pains etc. I get so tired during the day then at night i cant sleep? Ive also got worse now im having some of the worse pains now even where my liver is is starting to hurt and im also getting that rib pain like you aswell its horrible im also having some left side pain aswell now so i dont think ill get much sleep tonight I just had potato and egg tonight but im in pain alot now so i dont now if that made it worse its been really bad today but now its just hurting everywhere I know what you mean by its getting you down hun i have days where i start crying because it just gets to much xx

Yes those liver pains are awful, when I had them they were sharp stabbing pains under the ribs, is yours like that?

You've eaten that before though haven't you so I wonder why it'll effect you tonight but then nothing surprises me at the moment.

I wish mine had been this bad yesterday so the surgeon could see as that might rush my appointment along a bit. 

I need to have something positive and if I got an appointment date at least I've got something to aim at.

I feel so tired like you do, whens it going to stop, I do hope that you get some answers or at least to move forward on Friday.

Did you have your bath or were you in too much pain? xx

i hadnt had this type of pain yet and its so bad ive took pain meds now and had a bath and nothing has took this away im abit worried now because my mum came round today and said i looked more ill today and that i looked like ive lost even more weight since yesterday which she is right its really coming of me now so im going to let the gp know that aswell. Its so strange because ive eaten the same as what i have eaten before and like you said i never been this bad. ive had it all today the funny taste in my mouth again pain on right that goes to the back this liver and chest pain and stabbing pain in lower right stomach ive also keep getting hot but no fever? Like you said hun i just really hope to get some answers on friday and hopefully they wont take to long with your next meeting if you get worse you should phone them and see if they can get it sooner hun. The tiredness is so horrible hun i cant stay up sometimes. Did you have anything to eat in the end hun i also felt sick today and didnt feel like eating much but i know if i dont eat i feel really weak so i just eat it really slow. This is all so horrible its like new symptoms are still coming after all this time like you said i wish we could just feel better how is your pain now hun xx

Hi Carmella, yes my weight is the same, its really not going on when I've been.eating. Have you been weighing yourself, I weigh myself every couple of days to see whats happening. Yes I had some salmon and pasta but not alot at all, I think it was the least amount that I've eaten in ages. I'm the same I don't always fancy food but know I need to eat, the thing is if I don't eat I'm worried that I'll end up in hospital cos I've lost too much weight. 

Make a list of everything you need to tell the gp as I know that I forget things that are important otherwise.

We just need some respite from it all. xx

Hi Carmella/ Katherine,

If your struggling to eat get the fortisip from your GP it's a drink that has all the things the body needs so at least if you dip them you know some goodness is getting into you. You can but them at the chemist as well but they are expensive so if the GP will prescribe better for you.

They give them to my daughter in A&E as blood test s come back as signs of starvation where she can't eat either & ive brought them from the chemist to try and get some good in .

Xx

Hi hun yes i have been weighing myself everyday and more just keeps coming of and like you said ive been eating even when im not wanting to because i dont want that making me ill aswell. I even find it hard to drink sometimes to i dont know if you get this aswell but it makes me feel full up? Ill do a list of all the symptoms and new symptoms aswell and hopefully we will get some answers hun xx

hi carol thanks for the advice ill have to try that im going back to the doctors tomorrow because things are not great at the moment. how is your daughter doing now hun xx

Hi hun how are you feeling today? im feeling not great again today im having this liver pains and chest pain and right side pain still. i didnt get a great night sleep and feeling abit down today its just never ending at the moment. ive only had toast and jam today as finding it hard to eat much when i feel this bad. are you feeling abit better at all today hun xx

Hi Carmell, Sorry I thought I'd already replied to you, I'm just all over the place at the moment. I'm the same as you, I had a terrible night with awful left sided pain going through to my back, if it hadn't have reduced I was going to wake my husband and get him to take me to a&e. I was meant to be going to work for a couple of hours but I couldn't face it but now I'm getting hassle from my husband, he doesn't understand and as he has a bad back I tried to explain that if he was told that he would have to live with the pain forever he would react differently. 

I've just made and appointment next week so that I can speak to my gp about the referral to the pain clinic.

I haven't eaten much either but had some anti inflammatories as I didn't have any yesterday and the pain was terrible so I'm going to see if I should've taken them hence the pain.

I wish I could just hide and forget everything its just too much to cope with at the moment.

I hope that you can find some answers tomorrow, I could do with listening to some good news for a change.

Whats happening to us, why are things so bad, I thought they would be easier after the op.

I hope you're not too bad today. xx

hi hun thats ok im the same at the moment i just feel really down about all of this i still feel really bad aswell and not having a very good day at all like you i had not a great sleep. aww its not good about work etc thats the thing with this you just cant do much at all because the pain is always there and like you said having to live like this for ever is very hard to take in as its not what anyone wants to hear. its good you have made a appointment to see you gp about the meeting you should let them know your feeling even worse aswell and see what they say. yes im also finding eating not great at the moment and this chest pain and liver type pain is horrible i know what you mean with that back pain and left side pain to ive also had that and when it gets bad it gets really bad i was thinking of going to A&e last night aswell as this liver pain was the worst. I really hope i get some answers tomorrow because we need it. i also really thought that we would feel alot better then this its horrible hun xx

Hi Carmella, luckily my parents popped over for afternoon tea which helped take my mind off of things for a while.

Luckily like you the gp that I'm talking to next week is one I've seen before and we know him with our business too so its alot easier to speak to him.

I just wonder what I've done so wrong to end up like this, its just not fair.

I do hope that you can find some answers tomorrow. 

Have you eaten today? I'm doing jacket potato and my husband will be back late so its nice and easy and I find it goes down ok. 

xx

hi hun aww thats good that your parents came over its nice to be able to take your mind of things for a while. Its good that its a gp that you know aswell i always find its better to have one you know as they seem to understand more. I always ask myself the same thing hun what have i done to have this all happen and it really is not fair at all hun. I really hope i can find some answers tomorrow because the last time i went i just got told to wait 2 weeks then come back if its still the same. ive been writing a list of symptoms and problems thats been going on so i dont forget anything. ive eaten just egg and mash today with out chicken i think with the chicken was to much and because my pains are bad today i didnt want to add to it. yes jacket potato is good hun nice and light aswell and like you said goes down good. how are your pains now hun any better at all? xx

Oh I'm glad you've written it all down, I always think I can remember but I always forget something. 

Yes I found that chicken can be really bad, you're better off with turkey. If you buy chicken from some supermarkets they inject additional fat to keep it moist but its not any good for people like us. I found cooking a whole chicken is better and just eating the breast meat as most of the fat will have come out of it.

My husband has just come in with some flowers cos he was really mean to me early, I know he's stressed and worried because of the business but he does take it out on the wrong person!!

I've had some pain relief as I was so bad yesterday and last night I really can't take that again, its still hurting but don't you find you're just waiting for it to get worse?

Fingers crossed for you for tomorrow, is it in the morning or afternoon?

xx

hi hun i feel sorry for you and know how you feel its nice your husband got you flowers to say sorry its very hard times at the moment isnt it i think its hard for people to understand what we are going through because they have not got this but i agree really shouldnt be taking it out on you hun as its not like we choose to be ill if you ever need to chat hun im always here and i know exactly what your going through hun. ive also taken some pain relief to because that liver and side pain have been playing up all day and i so know what you mean by its like your brain waits for the pain to get to its worse its horrible i always think what pain is coming next aswell because there is so many. lets hope we get some answers tomorrow hun its in the afternoon xx

Hi Carmella, How are you today?

Its been a bit chaotic for me, I didn't sleep very well as usual then had to go into work a lunchtime for a while and I haven't been back long but I'm going to have to take some pain relief now.

Oh I nearly forgot, how did your appointment go? has he referred you back to your gastro? and what about the diarrhoea has he given you anything for that?

Let me know how you got on when you get a chance, I do hope it went well. xxx

hi hun i didnt get a great sleep last night aswell. Ive been to the doctors and really was not expecting what he said it was all abit strange he had a feel of my stomach and asked where the pains were then when i said yes to the lower pain he asked me if i have had my appendix out and i was like no? the he done some more test like pressed near my belly button then said does this make the lower pain worse and i was like no but after a while it did start to hurt then he said keep an eye on that lower pain and if it gets worse go to A&E sao they can check your appendix? Then he said i might have a infection because of the other pain and gave me antibiotics for a week and if the pains get worse over the weekend to go to A&e for that aswell? and if this does not help ive got to go back again? so didnt really get much answers just go to a&e if you feel worse over the weekend so still have not been referred. So ive got to go back again next week if this is all still going on and go to A&e if it gets worse over the weekend not much help really so still stuck not knowing much and also hurting now after they pressed my stomach loads. I think because they were running a hour late today they wanted to rush everyone and i asked more questions but they never got answered and they tested my urine sample which came back fine. but i kind of feel like it was so rushed and then scared me about appenix stuff which i didnt even go in for? just made me worry more now i would of thought if it was appendix it would be a worse pain that kept getting worse and being sick etc?. They also gave me some more pain meds and that was it? so wasnt great. how has your day been hun and how are you feeling now xx

Hi Carmella, I suppose with surgery it is possible that you've picked up an infection. and I expect because your other pain is lower down that he's just being cautious but he is right if that pain gets really bad then you must go to a&e but hopefully the antibiotics will help. Yes I find that, it doesn't always hurt when they press down on your stomach but reacts a while later. 

I know when I saw the gp last I felt awful afterwards after he'd felt my stomach it really seems to aggravate it.

My brother had appendicitis and he was really sick and in alot of pain and he was turned away several times before they operated but I know that sometimes it can go on for ages and then just go away. Some call it grumbling appendix but other drs don't recognise it as such. So maybe it was the surgery that has done it. but it doesn't explain your other pains under the ribs, did he not answer those questions?

I think just keep doing as you're doing and you already know that if things get worse to a&e. Its good your sample was fine though. What sort of pain meds did he prescribe for you?

I'm ok, a bit tired after going to work, I do feel more comfortable at home though when you start to get an increase in pain. I've got load more work to do though so I've had to bring some home for over the weekend if its wet and miserable out. I think I'm going to have a lazy evening.

Not sure what we're having for dinner, have you eaten today?

I'm sorry you didn't get more out of your doctor, you could always book a double appointment if you feel you need it next time.

I think all we can do is wait, which is infuriating isn't it. Sometimes I wish I could go privately and just get it sorted.

Let me know how you are later xx 

hi hun i know what you mean i just really hope its not my appendix aswell i really dont want to have to have another surgery straight away and still be in pain with this one and have to through another what symptoms did your brother have when he had it im so worried now incase there is more going on. they have gave me oxynorm again for the pain and he was saying the other pains could be down to a infection. im happy i went im just really worried now incase it starts getting worse and ill be in hospital again. it so strange isnt it when the doctor feels my stomach its like the pain doesnt start straight away as he presses on it but after it really hurts like now all my pains are really bad now. Im going to have a lazy night to now hun after all that im in pain again now to. i have eaten some toast and jam so far and not sure yet what to have for dinner. ill let you know how i feel later hun and update me on how your feeling xx

I would try to just get better and hope that its just an infection that's effecting you and it'll get better on its own.

I can't really remember all his symptoms as I was only little at the time, all I know he was very sick and had really bad abdominal pain even then when he got to a&e on 1 doctor thought it was his appendix, the others didn't think it was. But everyone else I've know who've had it, have had severe pain and its a sharp pain. 

I had pain on that side and they thought I had appendix problems but eventually found out it was ibs, which I eventually self treated as they couldn't help me.

I wouldn't worry about it unless it changes, just like your other pain, its just a bit much to take in at the moment isn't it. 

Just started to get that shoulder pain now and really tired and I haven't even eaten yet. I had a temperature at work, it eased a little but I think it was due to the pain and being really uncomfortable.

Let me know what you decide to eat later? xx

its such alot to take in hun im so scared of it being anything else. i feel really sick aswell tonight and got the side pain and really bad headache.that shoulder pain is horrible isnt it hun not good you had a temp like you said its probably the pain hun. what are you having to eat in the end hun i couldnt eat much tonight i only had some mash and egg but couldnt eat it all. xx

What you're going through is normal, you've been upset and it effects your whole body and why you don't feel like eating. I felt like that the other night, I really didn't eat much as I was thinking of everything the surgeon said and trying to take it all in. You'll be better tomorrow. 

I had a bit of a headache last night so I increased my fluids today just encase. 

shoulder pain is awful, isn't it, mine has started badly now and pain under my ribs, its just never ending.

I just done something really naughty and made a chocolate brownie traybake, I very much doubt I'll end up eating much of it as it is very rich but at least I have something encase people turn up over the weekend.

Had a rice stir fry for dinner, I was in pain before so lets see what happens later. I know that I already feel as though I have a temperature so something isn't right when I eat or I'm in pain.

How are you feeling now? xx

hi hun sorry i thought i wrote back i cant sleep at the moment like you ive got that pain really bad tonight under the rib and in my back. I hope i feel better tomorrow like you said when you dont get great news its makes you feel worse and i think thats why i couldnt eat much. your dinner sounded lovely hun and yes that shoulder pain is horrible. I used to love chocolate so much but im so scared to try any incase it makes the pain worse lol. Have you still got a temp hun did your surgern say anything about it when you them? that is a bit strange how your getting a temp with eating and pain etc. Is you throat feeling abit better now hun i forgot to ask how you was with that. Im not feeling great now hun cant sleep even took pain meds and still in pain tonight xx

Oh Carmella, I'm sorry you had such a bad night. You were probably going through everything your gp said trying to make sense of it all and your worried anyway so it just makes it worse.

How are you feeling this morning? Unfortunately it'll take a couple of days for the antibiotics to start to work.

To be honest I forgot to ask the surgeon but I'll let the physician know when I get a date. I think its probably when my body is straining to eat which is why I only seem to get it at those times.

I had a bit of that chocolate brownie I made, I couldn't resist and it didn't seem to give me anymore pain than normal and I know whats in it  but it was so chocolately and lovely, it went down really well.!! Perhaps try some choccy when you've finished your antibiotics as hopefully you'll be feeling better and can manage some other foods.

I think my tonsilitits has pretty much gone, all the white bits started going yesterday so I think I'll be ok, just something I could've done without.

xx

 

hi hun sorry ive only just got back yes i think it was that i kept thinking about everything and i still keep thinking about it today aswell its just really hard at the moment and feels like we never get a break from this. i forgot the doctor said yesterday aswell to get another appointment next week to check whats going on with my weight because its coming of lots and they dont see why because im eating more now but its coming of quicker then before the surgery and before surgery i used to not eat for about 3 days sometimes because i couldnt eat anything but my weights coming of lots still? its good that you had chocolate and it went down well i used to love chocolate like you said ill have to try some soon. I really hope these antibiotics work because otherwise more tests again i really wanted a scan again to check whats going on inside but i dont think ill get that anytime soon. Its good your tonslitits is getting better hun. Ive got that left side pain come on today aswell as all the others i keep getting that headache again and keep feeling really tired aswell do you still get that hun? xx

Oh you must phone them on Monday and make that appointment to see about your weight. I don't think I'm loosing anymore weight I'm just not putting it on as I'm not eating too badly. Do you still have diarrhoea  as that could be why.

I've been in the garden for alittle while but I get so tired so quickly, I feel completely exhausted, surely this isn't still down to the surgery, that was over 4 weeks ago now. That pain between my shoulder blades and under my ribs is a nightmare, its just not fair. I want to do things but I can't . If I bend over in the garden to look at something it still feels really awkward inside, do you get that, is that normal?

I've come indoors to rest now as the pain has got to me a bit. I just think I've done too much which is hardly anything from what I usually do.

Have you eaten today and what did you manage to eat? xx

hi hun yes ill have to phone them again and get another appointment. i dont have diarrhoea now so lets hope it stays that way. i had a little walk around the garden also and just feel so weak and tired after doing hardly anything and yes i do get horrible pain when i bend over i even get strange pains when im walking aswell. im resting now just had some dinner had mash and chicken so will have to see how that goes down. what have you had to eat today? i forgot to say i keep feeling shaky i did tell the doctor about it but he didnt say much do you get that at all hun? xx

Oh thats good you don't have diarrhoea anymore.  I've eaten a bit too much and the wrong type of food today and it really hurts under the ribs.

Yes I'm the same after doing anything that needs energy, it just doesn't take long to get worn out does it.

I've got some cod and potato tonight so very plain and simple. 

I don't feel shaky but I do feel very light headed, fuzzy and not really with it sometimes. When I went into work yesterday I couldn't even remember that my husband had lunch with me, I couldn't recall it at all, very strange. I know I was doing paperwork at the time but not to even remember was so weird. Perhaps the shaky thing is to do with the infection as that can make you feel really off. How many days supply did he give for the antibiotics, as hopefully by Monday you should start to feel better. What did he give you?

I hope he can give you some answers about your weight. Its worrying when you loose weight and don't know why. 

Have you had to take any pain relief today?

Hope you're resting. I've just had a nice shower and sitting in the settee with the fire alight xx

hi hun i know that feeling i think i also eaten to much and i had chicken and my side is hurting now its horrible. your dinner sounds nice hun and yes only doing the little things make me tired and weak. ive also been feeling dizzy now aswell and that feeling of not being with it its very strange. like you said the shaky part could be to do with the infection. the doctor gave me 1 weeks worth for that. i really hope i start feeling abit better soon ive got the worst headache aswell which does not help and yes its very scary losing all this weight. i have had pain relief today i felt bad pains today after eating and walking. have you had pain meds today hun?  im going to have a bath and try and relax as been feeling down today it takes a while to let the news go in doesnt it hun i think because its the wait and worry incase anything else is going on xx

Yes my side is really bad too so I've just taken some pain relief. 

Dinner was lovely, we'd bought some really fresh cod and he put a crumb coating on it so not fatty at all and he just roasted it. 

Can the meds give you a headache as I know sometimes they can have a side effect. Are your fluid levels high enough, don't forget you're fighting an infection so you'll need a bit more than usual.

Yes have a bath it may relax you a bit, my shower was good and I put some nice clothes on afterwards which helps.

I think it took me a couple of days to register what the surgeon said but its all so up in the air isn't it. Nothing seems to be confirmed and I don't know where I'm going until I get that appointment date, I just wish I knew how long I had to wait.

Enjoy your bath Carmella xx

hi hun sorry i thought i had wrote back. i did have a nice bath and once i got to sleep i had a good nights sleep. Dont feel so great today ive got the right and left side pain going on today but now the headache does not seem so bad at the moment so lets hope its the end of it. your dinner sounded very nice did it go down ok? and yes i agree i just wish we could just feel a bit better its like you get up and straight away the pain starts and the waiting and not knowing is horrible. how are you feeling today hun xx

Hi Carmella, not to worry as I've been out and about all day and now suffering in my shoulders. I haven't really eaten much today so the pain isn't as bad but as soon as I have something proper to eat it'll start again. Its no wonder we can't put on weight!

Glad you had a nice bath, I've only had showers since surgery but I do love a nice bath.

I know, I'm tired when I wake in the morning but then I'm still struggling to get to sleep and its usually about 3am before I do.

Have you been in the garden today? Its been lovely here, you'd think it was a summer's day. I expect it'll be cold tonight though.

How is your pain today, is it any better? xx

hi hun its good you have been out i also went in the garden today aswell it was a lovely day today and like you my pains started after aswell. i know what you mean hun with the weight today mine has stayed the same. yes i love a bath i just had another one so relaxing you have one they are great for relaxing the pain for a while. im also the same hun i dont get to sleep till so late i find it so hard to fall asleep. my pains have been under both ribs today mostly and some lower stomach pain. Have you had anything to eat yet hun and if you have did it go down ok and hows your pains now hun any better? xx

Hi Carmella, how are you today?

Well I'm paying for being so active yesterday, the pain in the night was awful and I hardly got any sleep and its really niggly today and I feel sick. Do you find that that the pain on the right side also  goes down the side of the body but I find it stops on the hip. I've just thrown up again, I feel so sick today. I wish it would go away.

Have you made your appointment with your doctor today? I've got mine tomorrow afternoon for a referral to the pain clinic.

How are you today? xx

hi hun aww no not good that you have been sick. i also feel not great today aswell and i get the same pain where it goes all the way down the right side its like it start under the rib and then works its way down even to the lower stomach and like you said all down the side aswell and stops at the hip. its good you have your appointment tomorrow hopefully they can help and also hopefully you get a date for the pain clinic. ive been trying to phone my doctors all day but they are so busy today ill have to keep trying if not ill have to phone tomorrow i always find my doctors are always so busy on monday and fridays? im not feeling great today hun still got all the right side pain and lower pain the antibiotics seem to not be doing anything much. ive also got the right side back pain today had that in the night aswell and where it goes into the front. I was also feeling sick yesterday alot like you said i just wish this would stop. xx

Hi Carmella, I know its so difficult trying to get an appointment at the surgery. Lets hope you get through tomorrow.

I still think that you may have a stone thats been left behind, I don't know why they don't do an ultrasound, as really you shouldn't be having any pain now. Surely it can't just be an infection thats been causing all of this as you haven't been right since your surgery.

I weighed myself today and I still haven't put any weight on. something has to be wrong otherwise I'd be putting on weight. I don't feel so sick now but the pain is still there in my back, it just seems its niggling at me all the time. I kept waking up last night every hour or so and my mouth was so dry and I still had that temperature coming back, I just wish I would get that appointment to see the consultant.

I've been doing some work from home which hasn't been too bad as I'm so far behind with it all.

What are you eating later? xx

hi hun it sure is so hard ive been trying all day like you said ill have to try again tomorrow its not good you still have that temp you should let the doctor know tomorrow. I didnt think antibiotics were going to help with this pain it feels more inside pain then a infection. i just wish they would do another scan to see whats happening. i had a mrcp before the surgery and they said there was no stones but im thinking isit something to do with the ducts because at first they thought it was bigger then normal then they checked again then said it was normal? but i still think they need to look at what is happening now. Its good you are not feeling so sick now though hun. do you sometimes feel like a ill feeling with this aswell feels abit like flu but not if that makes sence? im not sure what we are eating yet hun what are having? xx

The thing is stones can't always be seen so I'm really surprised they haven't done one, as it could've moved too hence the pain. They could do an ultrasound and where I am they usually do it in one of the local surgeries rather than hospital.

My back is really hurting today, its just constantly sore and its when it goes into my neck that really gets to me.

So you find that you can't settle, I seem to be up and down all the time because I can't get comfortable because it just aches all the time.

I think we're going to make fish cakes tonight as we've got some mash left over from last night..xx

I had 2 ultrasounds in hospital aswell as they thought there was a stone that had passed because one of the ducts was looking to big but then they done another one and couldnt find anything? i really wish they would do another scan now really to see whats going on because somethings not right. i know what you mean with that back pain hun mine also comes throught to the front aswell and side. your dinner sounds nice hun i always find mash is good goes down easy. im going to have another relaxing bath tonight and see if it helps abit xx

I expect you mentioned about the ultrasounds to your gp, what did he say?

Mine does that to once I've had a larger meal but it really plays me up when I'm in bed.

I could only eat one fish cake, they were huge and we just had it with salad as it was so filling. Then I had a little bit of choccy brownie for dessert.

I hope the bath relaxed you. what did you eat in the end?

I feel so tired now, I expect you do too and my shoulder pain is getting worse. The thing is I don't look forward to going to bed anymore and I had such a bad night last night I can't bear another night like that.

Did you get through to your surgery or have you left it now until tomorrow?

xx

hi hun im going to say ask about having another scan because they said before my surgery that they want to do anther ultrsound on my bladder aswell so im going to see if they will do another for my stomach to. I gave up trying to phone in the end it was so busy today ill just have to hope i can get through tomorrow. Your dinner sounded lovely hun i just had fish with mash. i know what you mean by not wanting to go to bed i had my bath and at the time felt relaxing but now the pains on my right side are bad so dont think ill get a good night sleep tonight.I always find the pains get worse at evening and night and some days one pain will be worse than another then the next day a another pain will be worse its so strange. I hope everything goes well at the gp tomorrow let me know what happends hun xx

Hi Carmella, I hope you've managed to get through to your surgery today. I would definately push for that ultrasound appointment as they want you to have one for your bladder anyway they can do higher up as well.

I know, sleep is such a problem, I keep on waking up several times through the night and then I just feel so  tired in the morning.

How are your pains today, I've still got pain in the right side, it was really bad last night.

I'll let you know how it goes with my gp, he could phone anytime from 2pm -5pm so I'm just going to do some paperwork for work.

Glad you had a good bath but not good you had bad pain afterwards.

xx

hi hun i got hold of them they have no oppointments yet so ive got to ring in the morning and try and get one for on the day. yes ill have to try and get them to do a ultrasound on everything. I know what you mean ive got that lower pain again today on and of and under the rib pain on both sides and i get the same where im tired all the time. lets hope your gp can help and give you some answers and yes update me hun on what they say xx

Hi, my gp is going to do that referral for me to the pain clinic but he didn't know how long it'll take but said it is a few weeks, more waiting!! I didn't get a chance to ask him anything else but I think I need to wait until I get my appointment from the physician.

I've been doing lots of paperwork today and I'm worn out now. I did go and sow some seeds in the greenhouse as I desperately needed some fresh air.

Pain is starting to get worse now since I've been eating and working. I wonder its always so bad in the bad and just below the shoulder blades.

How's your pain now? Thats not good that you have to ring again.

xx

hi hun its good your gp is going to do it not so good about the waiting though but it always seems the way.i also had a walk around the garden for abit aswell like you said needed to get some fresh air. my pains still the same at the moment been having the back and lower pain again today. hopefully ill be able to see a doctor tomorrow. how are you feeling now hun? xx

I hope you can get to see your gp tomorrow and find some answers especially for this new pain that you've been getting. I wish they would give you an ultrasound and see if you had any other stones. 

Have you eaten yet tonight? We're going food shopping in a bit so we'll eat a bit later. I don't know what yet it depends what they have in store.

I've has really bad pain in my back on the left today as well as in both shoulders. I wish it would go, I hope I'll get that appointment through soon, I hope I haven't got to wait too long for that too.

I just keep thinking this has been nearly a year now since I first went to my gp, even though I think I had problems long before that but just thought it was my ibs even though the pain wasn't in its normal place.

I've got to rush heading off food shopping now. speak later xx

Hi Carmella, are you ok? I haven't heard from you so did you get an appointment with your gp?

Let me know how you are when you're able

xx

hi hun sorry ive only just got back to you have been trying to phone the doctors all day they are so busy they have nothing for today but ive got to phone again tomorrow morning and try and get one its so hard to get a appointment at the moment. how did your shopping go hun and how did you feel after? i just had egg and mash again last night also had a bath aswell. i know the feeling hun of having this for so long i think i also had symptoms of this way before but they kept thinking it was other things until it got so bad i ended up in hospital then they thought might be gallbladder and then found lots of gallstones and like you said i just wish it would go its been so long being like this and i wish they would give me another scan aswell bit it seems they are trying to hold it of?. ive also been having these burning pains under my ribs do you get that? xx

Hi Carmella, thats no problem, I was just getting concerned as I hadn't heard from you. Thats not good that you can't get to make an appointment at your gp's. Its not as though they didn't ask you to make an appointment. 

Shopping was ok but I get really tired and in the end I just have to come out so I end up not getting all my shopping. I went to bed in alot of pain last night. We had sausage pasta and I think the sausage had too much fat in them. I normally grill them so the fat comes out but my husband cooked last night so probably had more fat in there than normal.

I seem to get alot more left sided back pain now which I didn't have much before. My right sided pain was really painful last night and its still very tender all along the ribs, do you find that? I seem to get a temperature if I over do things also, its like my body is telling me to stop and sit down.

I'm going to head into work for a couple of hours tomorrow over lunchtime just to help my husband out.

We're going to a pub for dinner on Friday as its his mum's birthday and I'm really not looking forward to it as I'm scared of being ill afterwards. Also I haven't been out since the operation except next door for a casual drink so I'm a bit worried about how I'll feel.

How are your pains today? Are they the same as yesterday?

xx

hi hun i know how you feel about the going out i have not done that yet as im scared to like you i would be scared of getting ill when being out. its so horrible isnt it. its good you got some shopping done i do find if i walk for to long i start to feel sick which is like my body is saying its had enough now. i am getting the same pains hun my left side pain had now turned in to this burning type pain aswell and the right side sometimes does that to also with the sharp pains etc i also get it across my chest and that horrible lower pain and back pain. i sometimes feel like ive got a temp but i take it and it says its normal? im going to have a bath again tonight to help try and relax hopefully ill get a doctors appointment tomorrow if i do ill let you know hun. how are your pains now hun are you still taking pain meds i still have to after 5 weeks i would of thought i wouldnt even need to take pain meds anymore i just wish we could get better xx

Hi, I went out again tonight with  my husband to buy a couple of things and my pain started quite badly under the ribs, just where my gallbladder was. We;ve eaten now but even before my right side was really hurting, its now gone through to my back and I can feel it heading upto my shoulder blade but that'll probably be worse when I go to bed later.

I know how you feel about pain meds, I'm taking as many as I did before, this is really ridiculous and not fair. What have we done to deserve this, it really is life changing. I try to do more and then I regret it as the pain is so bad. Sometimes I wish it would get bad enough so that I need to go to a&e and then at least they can give me something stronger and I might be able to get some sleep. I know I've done alot today and I've probably done far too much for only being 5 weeks after surgery but then they do say you can go back to work after 2 weeks so why is it taking so long?

I wish I could get my appointment for the consultant, at least it would be something to look to.

I hope your bath helps you. Fingers crossed that you get an appointment tomorrow as you shouldn't still be feeling like this, its not right. 

xxx

hi hun not good you have been in so much pain ive had the same all over the right side. i didnt really have a good sleep again because i started getting that pain in my back and took a long time to get to sleep. same here hun about the pain meds im taking about as much as i was before aswell it really is not fair to still be like this and it really is life changing. I know what you mean hun ive thought of going to a&e a few times so atleast might get some tests done etc.Thats the thing i dont understand is why they say well be better after like 2 weeks i mean some people have felt better very quick but there is a lot of people that have not so i dont think they should say that because i think i depends on the person on how quick they heal and how ill they were before etc. I finally got to speak to a doctor today they phoned me back i said im still getting the same pains etc and he said they will try and fit me in tomorrow as i might need to have blood tests done etc but because they have been so busy this week they are going to try to fit me in tomorrow so they are going to phone me back with a time and hopefully ill be going tomorrow. He did say on the phone aswell about it still might be from recovery pains but they want to make sure there is nothing else going on so i am hoping that they might send me for some tests ill let you know when they phone me back what time and if its going to be tomorrow. How are you feeling today hun with pains etc xx

Hi Carmella, I don't know why they didn't do some blood tests last time you were in there, I do hope you get to see someone tomorrow otherwise its another week gone.

I don't understand how they can still be recovery pains that are this bad when others are eating and going ahead with their normal lives. 

Did your gp phone you back?

I've been busy today, I had to go into work for a couple of hours and then I've been doing a bit of gardening at our holiday let as we've got someone in on Saturday. So I expect I've over done it as usual as its really starting to ache now. Go to do the same tomorrow so I can try and keep on top of things.

Have you been eating ok? I really don't feel hungry at the moment, I just eat cos I need too.

I still haven't heard about my appointment yet with the consultant, but I expect it'll be at least another week before I hear anything and then a few weeks before my actual appointment. 

Have you still got the same pains? Have you had to take any pain relief today? 

What are you going to eat tonight? I'm not sure what we're having yet.

xx

hi hun sorry ive also been busy trying to sort this doctors out they did phone me back in the end and ive got a appointment for tomorrow at 3 so thats one good thing. I know what you mean when the doctor phoned back and said it could be still healing i was like well most people get better about 2 weeks later and im still having alot of pains for 5 weeks and thats when they said i think you need to come in and do more tests etc. Its good you got out today the weather was lovely here so i went for a walk in the garden with eating i find it strange sometimes i feel really hungry and sometimes i dont but then when i start getting into what im eating i feel more hungry but i know if i eat to much it will give me the pains. Hopefully they will get back to you with a date soon hun its all the waiting is horrible. I have took pain relief this morning but not in the afternoon so done well today but i will have to take some soon as back pain is really starting up and side pain. I had chicken egg and mash today so had a big dinner i thought i would try and eat a bit more today but my back pain has started now. what did you eat hun? and how has your pains been? xx

Oh thank god you've got an appointment tomorrow. Tell me something have your pains improved at all since the operation? I know mine haven't if anything at times its worse.

It was lovely outside today wasn't it? I love creating my garden so its good when I see things coming up that I've forgotten about but I've got a couple of fruit trees to plant soon and I haven't cleared the space yet!.

Its strange isn't it sometimes you want to eat and you start and enjoy it but you know that you'll pay for it later. Sometimes its instant pain that gets worse other times its a gradual pain.

I've had to have pain meds today too, I just wish I knew if this is the sphincter of oddi dysfunction or healing inside but all the symptoms are correct for this dysfunction and the surgeon said the side pain thats constant wouldn't go after surgery. 

I was really naughty tonight and had a grilled bacon, lettuce and tomato roll, it tasted lovely as I do love bacon. I was in alot of pain before I ate so lets see if it gets bad and how bad, if it does.

I feel really tired now though as its been a busy day and it'll be the same tomorrow but I've got a lazy weekend planned. I'm just hoping that it'll still be good weather then I can rest in the garden.

Do you feel tired all the time? xx

hi hun sorry i didnt get back to you i have now been to the doctors they have give me more antibiotics for two weeks he thinks the upper pain is still pain from the surgery and i said can it really still be recovery pains and he said yes because it can take about another few weeks to settle down and everyone is different with this surgery. he said with the weight that its because my body is still trying to sort its self out and getting used to not having a gallbladder and because ive been having stuff with no fat to very low fat ive got to start testing food with a little more fat in. also i found a really strange lump near my side cut last night and that really scared me so i said that to the doctor today and he said it could be from where the blood had came down from the surgery and it take a while for it to go and that can also give lots of pain. He as got me some blood tests for next week to check my liver etc so thats good and he also said if this does not work then im going back to the surgerns finally some good news but still got to wait though and he said the left side pain because its been burning could be bile or acid reflux coming up. The weather has been lovely hasnt it hun i also went for a walk in the garden yesterday and today how did your bacon roll go down in the end? i always feel tired hun i also get this strange headache when i get really tired aswell. hopefully the pain clinic will be able to help you find some answers when you have your appointment hun. My pains are really strange its like sometimes they feel worse then other times i find movement is the worse or if i have slept funny will start my back pain of and the way i sit or if i sit for to long but its hard to tell because i was in so much pain before the surgery and some of these pains i get now are different. Have you try a bath yet hun they are great for relaxing what are you going to have for dinner today hun and how do you feel today have you been up to much xx

Hi Carmella, sorry for the late response, we've been out for dinner and I found it really difficult to find something suitable to eat, so I just had some quiche but I'm still struggling at the moment with side and back and shoulder pain.

Thankfully you got some answers today at the doctor's and at least they are now thinking about referring you back to the surgeon. Do you feel better now that he's taken you seriously and listened to you?

Yes today was lovely wasn't it, I went into work for a couple of hours then I had to finish sorting our holiday let out so I didn't get into my garden until late but hopefully it'll be nice over the weekend and then I can enjoy it.

The bacon bun was fine, no additional pain to what I normally have but then I did grill the bacon and made sure there was no fat on it.

I feel so tired as we've been out all evening and I was getting really uncomfortable sitting at the table. Its strange itsn't it when the pains come and go the only thing I know is that it gets worse with food. 

Its strange that he said that burning could be bile as when I was sick the other week it was all bile that came up so I suppose it could be.

How are you feeling now? xx

hi hun thats ok i just got out the bath It must of been hard to out and have dinner out and sit for that long hun thats what i am scared because i dont think i would be able to sit still for long enough and with the eating aswell i would not be able to eat much i still get really scared of eating new things. I am so happy that todays meeting with the doctor went really well i had longer to talk to him this time aswell which was good and atleast im getting some tests done now to check liver etc and if the pains still there they will send me back to the surgern after a few weeks and yes i think it is bile as there is something called bile reflux and acid reflux and he thinks ive got both going on and thats whats making the burning feeling he also said aswell if the pains get really bad and the lower pain gets worse then to go to the A&E over the weekend again he said that last time to but i think he is just making sure incase it does get worse. Thats good your bacon roll went down good hun. i find these pains are so strange when they come on and of it seems its food and moving or sitting for to long aswell. i have got my right side pain with right side back pain starting up again at the moment. Today and yesterdays weather was lovely wasnt it hun like you said if its nice tomorrow have to go in the garden how are you feeling now hun xx

I still haven't managed to have a relaxing bath, perhaps I'll get to have one tomorrow night. 

It was really difficult with the meal after a while I just felt really uncomfortable and very tired and all I wanted to do was to sit in my own chair. Unfortunately it was really diffcult to choose something on the menu as it was a pub. I've got really bad side pain at the moment which is going through to my back, I think I'm going to have to take some pain relief which I haven't taken much today because I knew I would be driving back from the pub.

It seems as though you get over one thing and then something else happens, its just not fair is it. 

I'm really tired, I think I'm going to head to bed plus I think I got a bit of a headache, you had problems with these didn't you.

Roll on a better day tomorrow, fingers crossed for sunshine. I'll speak to you tomorrow xx

hi hun yes have a bath its great for relaxing i had one last night it did help for a while. it must of been difficult going out for that long and driving aswell plus with eating is so hard aswell and finding something we can eat is hard. i also had side pain and back pain last night i had to take pain meds before i went to bed but i can never get to sleep for so long i think because i had been to the docors it make your stomach play up more after and he was checking my back pain aswell so i think that added to it. i know what you mean hun its always one pain after another. i have been getting really bad headaches hun im not sure why that is but its horrible. its such a lovely day here today im going to walk around the garden. how are you feeling today hun xx

Hi Carmella, What a lovely day its been, I've been out in it most of the day just doing little things but I'm hurting now, mind you it started soon after I started eating first thing.

I don't think I'm going to go out for a meal for a while it really hurt, I just can't do it and I'm not ready for that yet.

I wonder if your headaches are due to you healing and perhaps if you have an infection its from that.

What have you been eating? Have you tried anything different? I think we're going to have a jacket potato with some chicken and salad at least I can eat all of that.

I'm still having trouble getting off to sleep it doesn't matter if I take any pain relief before I goto bed as the gp suggested it still takes me ages to get off and then I wake up early and feel to tired.

What have you been upto today?  xx

 

hi hun yes its been a lovely day i went out in the garden today aswell had a little walk about then had to sit down. yes it must of hurt to go out my doctor said with some people it takes longer to heal like weeks. it might be that why im getting headaches hun but it might be ive not been drinking enough water aswell. I just had fish and mash for dinner and toast before. your dinner sounds nice hun. im the same with the sleeping i dont get to sleep until about 3 in the morning then also get up really tired. im going to have another bath tonight seems to help abit  xx

Ah yes keeping your fluids up is a must. I find I get headaches if I haven't drunk enough.

How's your pain now? Mine's getting really agro and the pain is going upto my shoulder blade. Its really hurting along my rib line. There just seems to be no let up, are you the same?

I wish I could get my appointment to see the consultant, I just feel as though its never ending the wait.

I hope you enjoy your bath xx

hi hun yes i must drink more water i was drinking lots but i really need to drink more now and hopefully it will go. ive got the back and side pains going on now and cant sleep again. i really hope you dont have to wait to much longer hun. i did have a great bath hun but pains are back now as normal. hope you get a good nights sleep hun xx

Hi Carmella, How are you today?

I've been in the garden again today doing little bits and pieces but its now aching me, mind you I woke up with right sided pain, it just goes up into my shoulder blades when it starts to get bad.

I'm having a rest now for a while otherwise I'll be rubbish later.

Hope you've been out in the garden.

xx

hi hun yes ive also been out in the garden lovely day today. I know what you mean with that right side pain i also have that came on now. im having a rest now to ill be the same later hun always seems to get worse as the day goes on i find. hows your pains now etc xx

I know its terrible isn't it. I've got that back pain constantly at the moment and the side pain, it would be such a relief to have a day without pain.

Yes I've been in and out of the garden most of the day and went out for a drive earlier and just sitting down it seems to bring it on or I suppose its resting after doing things and noticing the pain more.

What are you going to eat tonight? I think we're having a lasagne so I'm going to try some and see what happens. I've just made some lemon biscuits which I tasted and sent down well 

At least this week is a short week as we're closed on Good Friday and not back in until Tuesday so I won't need to go into work for long.

I'll speak later  xx

hi hun it is terrible. ive got that side pain going into back pain on the right side today. today is not such nice weather here so im going to have a rest day i think. i know what you mean with the pain coming on i find going in the car and moving around for to long or just sitting can start it of. i had egg and mash last night something light to go down easy. Your dinner sounded lovely hun how did it go down?  Its good you have a short week this week so you can relax more how are you feeling today hun with pains etc xx

Hi Carmella, its awful isn't it, that this pain just continues and is relentless. I woke up in alot of pain this morning and I'd hoped not to go into work but I had to go in for a little while and I've just got back. It makes me feeling really sick and the pain in my back now goes into my neck. Does yours do that?

Its not too bad here but the wind is cold, it was a bit overcast here yesterday too, I think I'll go for a walk down the garden in a bit and see if I can find somewhere in the warm to sit.

The lasagne was lovely but I think I eat too much as I was really enjoying it.

I think I'm going to make a quiche tonight with a jacket potato so that should be nice and light.

You just don't know what's causing the pain, standing, sitting, in the car it all seems to aggravate it does it?

xx

hi hun yes its so awful i just had to go in to the hospital to have blood tests done and now my pains are really bad down my right side and back but aleast they are done now i know there checking my liver on those blood tests but not to sure if they are checking any thing else. hopefully will find out the results at the end of the week im hoping yes the weather was nice here yesterday but today its cold and not great. your dinner sounded lovely hun and the quiche sounds nice. im not to sure what to have for tonight yet. i agree hun everything seems to start the pains of its just so unfair its always one or another pain and never seems to be no pains its horrible xx

How many vials of blood did they take? if they took more than 1 then they're probably checking for other things too. They may well do a full blook count as thats a general one. Yes you should get your results by then it only takes a couple of days.

Decided not to do quiche tonight as I don't really feel like it so I'm doing a jacket potato for me with sausages for my husband. He's got a meeting so won't be back until late.

I did manage to go into the garden for a while but the wind was so cold I couldn't stay out there for too long.

The pain is going straight upto my shoulder blades now, its so uncomfortable and its right under my ribs generally at the edge where its always been.

What are you going to eat tonight? Are you going to try something new?

xx