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hi everyone fibro getting worse but theres hope!

Posted , 3 users are following.

melissa30395
melissa30395

just an update not been on here for a while been up and down with it all. my knees swelled up again and i couldnt walk properly i go that sorted and they have only come back AGAINsad tendonitis so yet again reissued same meds now taking them again round 2. I am so fed up with taking all these meds everyday!!sad my doctor has now told me i am to bad and that i shouldnt work at the moment i really miss working and its getting me down big timesadi  know myself i am not able at the moment i am now on esa and i am slightly relieved but very stressed out. i have been advised to go on pip but im 32 and i dont want to be classed as diasabled i just feel angry all the time as i cant do anything i used to be able to do and i feel like a different person alltogether now! i feel i will get lost and categorised then theres no way back for me no light!! anyone else feel like me????

3 likes, 8 replies

8 Replies

  • kaz_40
    kaz_40 melissa30395

    Posted

    Hi Melissa30395 I know how hard it is not too be able to work, and not be able to do what we were once able to do. I have tried to push my self on so many occassions because of frustration and not likeing or wanting to give in to how I am now. BUT each time Ive done this fibro has bit back and bitten back hard. I eneded up in so much pain and felt very very ill. Fibro does change us as a person. to be honest I dont recognise my self any more. its like Ive been taken over by an alien. Its ahorrid horrid condition to how it affects us both physcicall and mentally. But all we can do is take each day as it comes and get through it as best we can. and get as much help support as we possibly can. None of like to not work and to claim things like esa and pip. we all want to be independant I dont like being classed as disabled. I do sometimes feel like theirs no light at the end of tunnel. But what helps me is being on this forum, where we all are going through the same we understand how each other is feeling and how it affects us. as I have personally found no 1 else seems to have a clue or understands what it is like for us. At least being on here we can support help each other through it. Take care gentle hugs x kaz
    • melissa30395
      melissa30395 kaz_40

      Posted

      its just a good job i have a very understanding boyfriend he does a lot for me and i let him play on his xbox so i think its a fare deal haha. i know i find it useful being on this forum because when your having a bad day just to come on here and read everyone elses you begin to realise this isnt just in your head and there is that many people with this condition now something has to change soonsmilei know everyone is telling me to apply for it just sad thats all xx
  • janet26165
    janet26165 melissa30395

    Posted

    Hi Melissa.

    Don't feel bad about venting on this forum. We all do it at times. It is hard when you get the depression linked to the fibro.

    I also have the depression and have just had to have it increased again.

    You can apply for pip as it is meant to help with daily living.

    Unfortunately it can take us all along time to admit that we have a problem, we need to admit that we have an invisible disability and it is hard to come to terms with that.

    I hope that you start to feel better about things. Try not to worry too much as this will make your fibro worse.

    Take care and gentle hugs

    • melissa30395
      melissa30395 janet26165

      Posted

      i find it all hard somedays then other days i get up think im gonna be stronger today than i was yesterday and i set myself mini goals. i know thats the thing they say stress makes it worse but i struggle because i have a anxiety disorder and any little thing sets me off and anyone around me sees it and they are like looking at me like what is up with this girl but to me its real and i am panicking for a good reason its horrible. had a ok day today but feeling it now. i find it good to vent on here i feelguilty about tho haha x
  • Boqer
    Boqer melissa30395

    Posted

    Hello Melissa

    Nice to hear from you again 😊 sounds like you are having a rough time of things. I had a tendon problem last summer in my feet and had to go through the treatment for that, and for all the tendons were better my feet seemed just as painful if not worse at times, and now I think the tendon thing is coming back again. I too am diagnosed with fibromyalgia, anxiety and depression, and have just been successful with my ESA assessment. So I can appreciate how you are feeling.

    We just have to try and distress, which is the most difficult thing! But I feel it's the only way anything is going to get better, and the ESA does take the pressure off things. Perhaps you could try something part time rather than full time and see how it goes, at least then you will feel more productive, or do you have any hobbies that you could peruse, you never know what may come of something or where it may lead.

    If you apply for PIP, don't look on it that you are disabled, it's just an extra bit of help, and you can still work while on PIP. You mutant feel like you have been discarded, you are still a beautiful person, and you still have a lot to offer, it's just that life has changed from what it was and none of us expected things to turn out this way, but we can still have a life in spite of everything.

    Anyway, I'm going on too much, but the main thing, as I'm sure you know is to distress, "relax and enjoy!" 😊

    Take care, hugs

    Boqer

    • melissa30395
      melissa30395 Boqer

      Posted

      oh god so you know exactly how im feeling thinking worrying stressing and panicking then all at one whilst thinking your dying because your body should not be in this much pain and your hearts racing that bad you feel like thats it??thats how i feel all the time.the tendonitis is like someone has invaded your body that you could easily take a saw and chop your legs off cause you just want the pain to go.im finding it hard to bend my knees at the minute properly and walking around is harder than usual and usually its hard!i tried to look after my mum last year as shes not well at all with heart problems,disc in back problems,thyroid,athritis etc... but i found it difficult and had to stop as i was taking her diazapan to get through the day this was before i was diagnosed.im hoping that esa will help me a bit i do have thibgs i like doing but cant do a lot of them anymore as i struggle with my hands back knees and legs on a daily basis now it was neer this bad i used to just have it in my knees then it went in my back and rest is now history. i have been out today to treat myself to a couple of items which cheered me up but feel crappy tonight. how do you deal with yours? as it would me nice to know as you have all the conditions that i have? how bad is your anxiety levels?
  • shirl21730
    shirl21730 melissa30395

    Posted

    Hi Melissa I can relate to how you are feeling at the moment when I was in my early thirties I was diagnosed with chron,s and fibro I was working part time and was a single mother of 3...my kids were 8 12 and 16 and I liked going to work so when I had to give it up due to my health problems I hated it and became depressed and took anti depressants...I was in a lot of pain my energy levels had dropped and I walked round like a zombie every day seemed a bad day I didn't want to go anywhere or do anything I just took co codamol painkillers 4 times a day and laid on the sofa and watched television (I realise now feeling  this way was stressing me out and making my illness worse) I liked watching all programmes on interior design I tried to be strong for the kids but my daughter seen how it was affecting me and suggested looking at doing a college course on something I was interested in so I enrolled for a 3 year course in interior design 2 days a week I had a great tutor who understood I needed to be flexible due to my health problems and sent me work to do at home... I got all my qualifications and then went on to learn to use the computer..i started to have more good days than bad I like to go swimming and go to aqua aerobics at the local pool  I have had fibro for 28 years I have frozen shoulder at the moment it is manageable I don't feel the need to lay on the sofa during the day I have more energy I take paracetamol and use voltarol gel twice a day to take the edge off  I feel this is down to me wanting to stay active for as long as I am able I am 58 years young lol...I have come to realise over the years when I am unable to do something I have to accept this and find an alternative I am able to do... I wish you well fibro is a journey we are all taking and we find  we are all different what works for one may not work for another but with trial and error you will find what works for you I wish you well and hope you can find your alternative to give you the boost you need.

    gentle hugs

    shirl

     

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