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I am a new follower of this forum and recently registered so as to become part of your discussions. So far, so many of you describe my symptoms to the 'tee', but we are all at a loss as to what is causing it and how to prevent it. It started suddenly 1 1/2 yrs ago, with a left foot that became sore, and more and more sore. Within a few days, it had become very painful, red, burning to where I could not even touch my skin. I went to the doctor and she said she didn't know, but was probably nothing to worry about. Since then, the flare-ups have come regularly about every 2-3 months, getting worse each time, both feet and up the ankles. The whole episode from start to finish is approximately 3 weeks. My skin gets shiny, beet red, and is difficult to walk. The swelling makes my feet TWICE as big as they are. I cannot even put on any of my shoes at the height of the flare-up, only large slippers. I have shown my doc pictures and she still doesn't seem overly concerned. It is absolutely HORRIBLE and puts me out of commission each time. I have read your posts, and have some things in common. I live in the mountains of Colorado, so it is not heat related. I do not have diabetes. I love salt, but always have and this just began in my life and I am 60. I have had no tests or referrals. I realize a second opinion is overdue, but she manages all of my meds and 2 upcoming surgeries I am going to have to have. I went to the Spine doc last week to discuss the cervical disc which is going to be replaced, and it took him 5 minutes to find a 'faint' pulse in my right foot (after seeing the horrendous edema). He said, "She IS taking care of this, right?" When I said she did not seem concerned, he said he wanted a CT Scan right away and she needed to arrange that. He mentioned CHF, which I had already read about on the Internet. He is VERY concerned, and now I am petrified. I am not overweight and used to work out regularly, cannot now, however, because I also have a blown out R knee which has to be replaced, and can hardly walk, causing me to gain weight! I am SO upset that this is happening to me--I do smoke (I know, bad bad--its been a very bad habit for 45 years and seems to be something I just can't get a handle on--so addicting, but I am trying.), so I am torn: worry? don't worry?
If anyone has any suggestions or feedback, I would surely appreciated the direction. I think my spine doc is jumping on this, so I will return to our forum with feedback which may help anyone else. SO VERY VERY FRUSTRATED! Plus, summertime is shorts, bermudas, capris and leggins around here--all of which show the extreme ugliness I feel. I can't get in to anything but shorts or dresses--capris and thong sandals won't even fit!
Thank you, I am so glad to find out I am not alone in this! I'm not sure how one gets a notification if I receive a reply, does it show me I have an email on my computer? I would like to know immediately if someone is responding to me. Thanks again!
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