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On October 2014 my mom had a stroke which let her left side
shoulder, arm and leg weak, started to recover But suddenly
horrible TN disease appeared. And is destroying her day after day
, turning back everything upside down.
She is prescribed with tegretol on 800 mg daily now.1 month now. unfortunately Without any results or realif . She getting worse
everyday. She has 2 days that she only vomiting, she doesn't eat she doesn't sleep, she's not active anymore at all. She's very
weak And has pain Everywhere.
Here in Albania the doctors do not have enough experience with
this terrible and rare disease.
Her neorologist doctor has prescribed tegretol,Cymbalta, and
tramodol for pain, besides horrible sides effects she is not
improveing, just worsen. Had her doctor tried to change the
tegretol to switch to another one? At least!
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