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  3. Ankylosing Spondylitis

Hi family !

Posted , 3 users are following.

Friendly1
Friendly1

whatever i wont talk about how i suffered ... i am 16 years old and i take humira for 3 years now , my body is building a resistance and its not working as efficient it used to be .. i am just sad with my life ,, its really painful guys i need someone to talk to smile

1 like, 4 replies

4 Replies

  • peter21326
    peter21326 Friendly1

    Posted

    Hey,

    ?   i'm sorry to hear that you are dealing with this stuff so early in life.  You didn't mention it specifically but I'm assuming that you have been diagnosed with AS or some form of spondyloarthritis?  I'm assuming also that you are seeing a rheumatologist who is managing your disease? 

    ?  This is a very frustrating and demoralizing situation for anyone because sometimes  it just seems relentless.  We all get that.  Just remember that you are in charge ultimately.  Make sure that your doctor knows that the effects are slipping.  Your dosage can be modified and there are other TNF inhitors out there if Humira loses its effectiveness for you.  You are much better off if you stay ahead of the disease.  My wife does not have AS but has rheumatoid arthritis.  She was wheelchair bound and in agony but has been on Remicade and it has been a Godsend for her for the last 13 years so autoimmune diseases can be managed.  Hang in there and make sure your doctor understands your situation.

    • Friendly1
      Friendly1 peter21326

      Posted

      Thanks peter <3 .. i really appreciate your words really what makes me hopeful that i am not alone here ... stay strong together

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