hi girls well were do i start, i'm 24 and was diagnose...
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hi girls
well were do i start, i'm 24 and was diagnosed with pcos in june 2007, it all started when i decided to have the depo contreceptive injection, i bleed the whole time it lasted,so i went to my gp to find out what else i could do, so he told me to come off the injection and then to wait for my periods to settle down and then try something else, so i waited for three months and then went back to my gp and was told to give it another six months and then go back. so i waited and went back again and then i was told that it can take 18-24 months to get over the depo injection so guess what i waited again.
the next time i was due to go i decided to take a pregnancy test before so they could not fob me off again and make me wait again, so i did the test, and guess what it was positive so i am now a mum to a 3yr old son born at 8lb 5 1/2ozs, boy was that labour long, 36 hours to be exact.
anyway as you can imagine after i had my son my husband had turned to me one day and said should'nt your periods have started by now, so with a four month old baby in tow i went back to my gp and i was told to take a pregnancy test and go back when it was done, so the test came up negative and from then on all that was happening was pregnancy tests every time.
so in the end i went to the local family planning clinic, and i was lucky because i went to find out about more forms of contreception and the lady i was talking to turned out to be the head consultant gynocologist, and she refered me there and then. well you all know the rest.
what i have found is no diet i have tried works and no matter how many different forms of hair removal i use there hair is back within two days, i am still trying to find the right treatment for me, if anyone can recommend anything please let me know.
well at least i know it is possible to get pregnant with pcos, and remember chin up girls
[i:e30e8604c2]This message was automatically imported from the original Patient Experience[/i:e30e8604c2]
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Guest
Posted
I was on Depo Prevera injection from Nov 2004- Jan 2006. My periods had never exactly been regular right from when they started at 12. Depo prevera didn't do much to them at first except that they became a little lighter. It wasn't until about July 2005 that my periods stopped.
In August 2005 i tried a weight loss drug Reductil as i was almost 16 stone and had very quickly put the weight on a few years before. I was 10 stone and had shot up to 15 stone in 5 months. At first Reductil was ok, but on my regular blood pressure checks, my readings were getting higher. i had to be taken off them because my blood pressure got too high but after 2 weeks of no taking them it was still too high, in fact had not changed at all.
I was given extremely low dose beta blockers to try to relive my anxiety at the time (stress from college and i'd just met my mother-in-law after almost a year of marriage!), in the hope that it would come down. It still didn't. My doctor tested my urine and full blood works and i even had an ECG. None of them showed up anything, they were all normal.
Off-handedly while seeing another doctor about other weight loss medications, she looked at my notes and asked if i had PCOS. I said i didn't know what it was. After a little discussion she decided to refer me for an ultrasound scan. I had one in December 2005, and i had multiple cysts on ovaries and they were enlarged. The notes said to investigate further as the patient is on Depo Prevera as apparently it can make the ovaries like that of a PCOS sufferer. It goes away after the injection has stopped and the body's back to normal.
Following this i decided to stop Depo Prevera and had my last injection in Jan 2006. I had no bleeding until April 2006. I didn't stop bleeding for 5 weeks extremely heavily. I was prescribed Norathistazone? to stop it. Only 10 days worth. It stopped. no problems. However, after this my periods did not return. I had no bleeding again whatsoever until last week of August 2006. Nobody seemed particularly worried by this. Just told me to eat healthily and exercise as normal. I was told i should have bled within 24 hours of stopping the tablets. I had a pregnancy test done just in case, but it was negative.
From August 2006 i had monthlyish periods with quite a lot of variation. I returned to the doctor, restarted Reductil and was told that after October 2006, so long as the weight loss was going ok, and my health was still good, i could have my ovaries re-scanned to see if they had changed. reductil was fine, no side effects at all and perfect blood pressure.
Well i had my scan on 24th April this year finally, and my left ovary is too large with several cysts. Despite losing 2 stone with the help of Reductil (i now weigh 13st 10lbs) my conditon has not improved. The small amounts of facial hair i was paranoid about before are darker and have spread. My belly button has a strip of very thick dark hair above and below it, and my abdomen and chest have finer dark hairs on them. I have had a piercing dull ache on left side of my pelvis, every month for 6 months now when i am in the middle of my cycle.
I have had 15 day cycles and as long as 36 day cycles. I am so disappointed because the doctors and nurses told me they were sure losing weight would improve everything. If anything it's coincided with worsening of my condition, so that i am inclined to feel that it has made it worse. Now hearing the results of the scan i am not sure what path will be suggested next. i am desperate to start a family but everybody just tells me i'm too young and don't worry there's plenty of time. Clearly there's not. I'm about to finish the first year of my degree and am torn between giving up and still having this years student debt and trying to return to it later so i can try for a baby; or carrying on and finishing the degree and starting to try afterwards so i am in no extra debt by having to return to uni and perhaps
Guest
Posted
Anyway Im just writing to say that I now have a 10 month old daughter and I didnt have any fertility drugs to help me get pregnant. If you have been told you cant have children then I am proof that doctors do get things wrong. If I had known at 17 that I would be, a mother at 22 it would have saved years of heartache. Don’t give up hope.
Guest
Posted
When my sister was 16 she was back and forth to the doctors with period problems until she was referred to the hospital for a scan. She also has excess hair growth but has lost weight recently. She was then diagnosed with PCOS. She is now 18 and about to be married in the summer and looks forward to having a family in due course... so although she was told her fertility is reduced it thankfully has not put her off the idea of trying for a family. My other sister also has PCOS, since I can remember she was having very irregular periods but she now has 3 children, she did require hormones to become pregnant the 3rd time. My 2 other sisters get chronic pain and sickness with each period and have to stay in bed for the first day or so... and one of them also has a son...
After having this information about my sisters I have been doing some research of my own. I also have excessive hair growth and put it down to genes but now I am unsure since reading about PCOS. I have two children so I obviously didn't suffer from the infertility part, but had high blood sugar levels with both pregnancies and am wondering if this is in regards to the insulin producing hormones and PCOS. Luckily my periods are pretty regular but as I was still in my twenties the nurse decided I should try the combined pill as I was taking the POP (mini) pill because I had been breastfeeding. After a 6 weeks trial I had my blood pressure checked and the nurse instantly put me back on my previous pills saying my blood pressure had gotten excessively high. I was then going to try the injection contrapception as I was still bleeding in between periods and had heard that they stop altogether, but when it came to the day I decided to stick with what I was already taking as I could not be bothered to upset my body again, and the leaftlets had said that some changes would occur and sometimes there is irregular bleeding anyway.
I am still waxing, threading, shaving, hair lightening etc. etc. and was delighted to see the Shazia Mirza programme this week on BBC3 F*** Off I'm a Hairy Woman... I hope this information inspires some girls that you can have a life living with PCOS... be it a hairy one!