Hi,I also just discovered this site by accident & am soo

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Hi,I also just discovered this site by accident & am soo relieved to find people with similar symptoms to me. I have been feeling unwell for about 4 months now - seems like nothing compared to some of your experiences! Soo very tired that i have no energy, dizzy, heart palpatations, unable to concentrate or remember the simplest of things, feeling like i'm going to pass out, & more recently mouth ulcers. Eventually after many blood tests (and being told i was just stressed, must be worried about something etc) I was found to have very low B12. At only 24, they were very shocked so repeated this test, only to find it had dropped considerably in a week. I've been told that most cases of B12 deficiency are caused by PA (where body attacks itself via an autoimmune disease), but I have been tested numerous times & do not have PA. I have been having the injections monthly (now had 2 in total) in the muscle in my upper arm, and although my arm aches for a few hours after, I promise it really isn't that bad! I feel slightly better about 3 days after the injection, for a duration of about 4 days, but still too tired to work, go out, basically have a life! In the meantime i am waiting to see a specialist for a Gastroscopy(camera & biopsy in my stomach) & possibly a Schilling Test to try to find the reason why my body is not absorbing B12. If anybody else out there has similar symptoms or can help at all with more information???!!

[i:1376997730]This message was automatically imported from the original Patient Experience[/i:1376997730]

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  • Posted

    Please just because you have a very low B12 do not think then you must have PA.

    PA is not I repeat not the main cause of B12 deficiency, that thinking is old hat.

    Determening the cause of your B12 deficiency is not always possible as in my case.

    I do not have PA and I get my injections every 2 weeks and that still does not stop symptoms like the Paraparesis I suffer from.

    Hopefuly you have been caught in time and no lasting damage has been done, and once on the B12 injections you will recover completely.

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  • Posted

    Thanks so much for your comments. I am obviously still hoping for them to find the cause, but after reading your reply I suppose I should be prepard for them not ever being able to determine why I suffer from B12 deficiency. I seem to have recovered any strange memory loss I experienced, so yes, hopefully I am lucky in that it was discovered quite quickly. I have suffered from very cold feet & hands which sometimes get pins & needles in, but I wasn't sure this was relevant to my B12 deficieny as have been experiencing this for a few years and is not really painful as such, like your Paraparesis no doubt is. My only concern at the moment is that the injections do not give me the boost I was expecting. I simply just feel tired for a few days of the month rather than tired & dizzy & faint etc..and then I go back downhill for the remainder of the month, but my Doctor is reluctant to give me the injections more than once a month. I guess how often you have these injections is based on your B12 level? Hopefully I will know a bit more tomorrow after my appt with the specialist?!!

    Thanks for your helpful info & time.


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  • Posted

    Have the injections via the buttocks rather than the arm a lot less painful !! I speak from experiance smile

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  • Posted

    I was told that I have to have them in the muscle in my arm, but after reading that quite a few people seem to get them in their bum, I shall definately ask if I can too!! Thanks!

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