Hi, I am approaching my 23rd birthday in 3 months and h...

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Hi,

I am approaching my 23rd birthday in 3 months and have just been diagnosed with my 3rd blood clot in 3 years!

My first happened when i was 19 and i spent my 20th birthday in hospital as the doctors weren't sure what it was causing the pain in my leg. After 4 days they did a 'doppler' scan and found a clot. I was put on Warfarin for 6 months and went on my merry way!

6 weeks after coming of Warfarfin i got another clot in the same place, this time i has to be on warfarin for 20 months, and came off it in December 2005. I also had a lunch scan done as i was complaining of chest pain so they suspected a PE. Luckily nothing was found.

A month ago i started gettign the familar pain in my leg - but worse. Went to A&E and surprise surprise i have another one. This time it's worse though as it's in a major vein in my leg not just a small one. I've seen the haematologist and had all the tests but as yet they can find no known reason for this to keep happening to me. They've told me know that i'll probabaly be on anticoagulation therepy for the rest of my life!!! Lucky me.

Anyone else had similar experiences?

:D

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5 Replies

  • Posted

    I have to tell you that you are one lucky person to be alive. I had DVT too and lived to talk about it. I too will be on blood thinners the rest of my life too. Think about it this way, all you have to do is take pills once a day to live to be a ripe old age so what. Thank God that is all you have to do. I know I felt sort of awful too when my Surgeon told me I had to take blood thinners the rest of my life. Well, at least I will have a life to complain about and so will you. You are so young and have many happy and healthy years ahead of you. Thank God.

    Take care of yourself and take time to stop and smell the roses. It will do you so much good. Be happy.

    Regards

    Susan

    [i:4df493183b]This message was automatically imported from the original Patient Experience[/i:4df493183b]

  • Posted

    Hi There

    yes! I had my first DVT when i was 23..but of course it was not diagnosed. Had one after both babies...but it was called something else..it wasn't until I was fifty two that I was rushed to hospital not being able to breathe that it was correcty dignosed. Two hours before this, I was being sent home by a doctor with "a Virus".

    since then I have had 2 more...

    It would appear this condition is genetic. So I too am on warfarin for life.

    However..Don't despair....Just feel happy it a) It hasn't killed you and b) you are now monitored and the condition is controlled.

    :cheers:

    I am 61 ,active and So happy to be alive....

    :D

    If you are on warfarin do be careful what you eat. I have found mangoes,red lettuce,cranberries etc all upset my INR just keep a tabs on what new foods you eat if yer blood range varies wildly.

    Good luck to you all reading this...and remember there is life after a DVT....even tho yer leggies look a mess and it's hard feeling provocatively sexy in those compresion socks!!!!!sad

    [i:748db2149d]This message was automatically imported from the original Patient Experience[/i:748db2149d]

  • Posted

    Hi there, I also have my first dvt at 23, but ignored the warning sign and ended up in hospital, thought I was a gonna I ended up with a PE. Had my second one 6yrs later, didn't ignore them signs again, had 5 days of stomach injections and took warfin for 6mths. I had a test done to see if my children would be a risk later on in life, thank god it came back clear. I have'nt had any treatment since the last one, and can honestly say spend time counting the clock down to next one. I have noticed since having the last one that my leg has a constant ache in it, anyone else get that.
  • Posted

    I have been put on life long warfarin after having post partem dvt then having another blood 6weeks after coming off warfarin, I am having tests and scans done because they don't know why its happening to me as its not in my family history of any blood clots xx its not just you don't panic!!! I am now having to wear sexy white surgical compression stockings for 3 years and having blood tests and all sorts to find out what's gone wrong xx take care and good luck!!
  • Posted

    If you take birth control pills, it most probably is a side effect from them:

    "Yaz, Yasmin, Ocella, Zarah and Gianvi have been linked to the risk of blood clots which can cause pulmonary embolism. Experts believe Yaz and Yasmin have a prothombotic effect due to the progestin drospirenone or drsp. Drsp is a diuretic which can cause an increase in potassium. Unsafe levels of potassium in the blood, also known as hyperkalemia, can disrupt heart rhythms and slow the flow of blood. This can lead to blood clotting. Yaz, Yasmin, Ocella, Zarah and Gianvi blood clot side effects are more formally known as thrombosis. Thrombosis is the formation or presence of a blood clot (thrombus) in a blood vessel. If the thrombus breaks loose and travels through the bloodstream, it is a thromboembolism. The clot may plug a vessel in the lungs (pulmonary embolism), brain (stroke), gastrointestinal tract, kidneys, or leg."

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