HI, I HAVE BEEN SEARCHING IF ANYONE HAD EXPERIENCED THE ...

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HI, I HAVE BEEN SEARCHING IF ANYONE HAD EXPERIENCED THE SAME AS ME. I HAVE BEEN DIAGNOSED WITH CATAPLEXY, HAVE EXCESSIVE DAYTIME SLEEPING, APNEA, RESTLESS LEG MOVEMENT AND I HAVE HAD APPROXIMATELY 60 STROKE LIKE EPISODES FROM 10 MINUTES TO 4.5 HOURS. ANY INFO IS NEEDED

[i:7595c0d006]This message was automatically imported from the original Patient Experience[/i:7595c0d006]

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3 Replies

  • Posted

    hi i have 30 years of info good and bad:roll:

    [i:e510bf4b85]This message was automatically imported from the original Patient Experience[/i:e510bf4b85]

  • Posted

    Hello There!

    I have narcolepsy & cataplexy, so if you are still looking for assistance, please confirm.

    Regards, Mike

  • Posted

    I've suffered from Narcolepsy and Cataplexy for 40 plus years. I have written a report about my own case and the wider picture. Anyone interested in seeing a draft copy of the Report can leave a message and I will contact them.

    Please feel free to comment.

    Alex

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