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Hi I have just been diagnosed with fibromyalgia and hypermobility after 20 years of being treated for the wrong illness

Posted , 9 users are following.

Rattler7
Rattler7

I also have arthritis and other disabilities I'm feeling emotional as I am in constant pain with no let up I'm a positive person but it's getting to me these past few years it's helped to read a lot of your stories

0 likes, 18 replies

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  • Rattler7
    Rattler7

    Posted

    Hi Jane first of all it's amazing to hear you fought cancer , you have so much going on it's a lot to deal with. I agree with VJ ,be very kind to yourself don't put pressure on yourself if you feel like doing something do it , one of the biggest changes iv made over this last year is not promising to go places or do things I was feeling so guilty over family parties and such like but I know now I have to see how I feel on the day and if people are offended then it makes me a little sad but I can't spend my life apologising. I was reluctant when my doctor gave me amytriptiline because I already take so much medication but I'm so glad I got to iv been able to sleep with much less pain I can only take them on a night but getting sleep has made me stronger to face the day . I'm having a bit of a new battle too with waiting to go for scan etc as I began having problems with my periods and haven't stopped bleeding for a month so that's another thing to make me tired haha . Reading what you have been through and going through is inspirational , take care , everyone on here are so supportive x
  • rachel76740
    rachel76740 Rattler7

    Posted

    Hi how does the hypo mobility and fibromyalgia affect you.im 44 15 and a half stone I can do the splits and stand with Mt feet together and put Mt hand flat on the floor just in front my feet ON A GOOD DAY.my hubby loves this but I don't cus pain is making my life a living he'll. Does the hypo affect your ability to walk and do ur legs give out on you and shake really bad
    • sammy13uk
      sammy13uk rachel76740

      Posted

      Hi Rachel, I have hypermobility, fibromyalgia and osteoarthritis. My legs have been shaking for years with my hypermobility so I'd say it was that which you are suffering with. I too used to be able to do the splits and stand with my legs straight and tough the floor. But I am now in a lot worse condition so I am unable me to do this now. Yes other people think it's great we can do these things but to us it's painful and annoying. Hope you are ok and sorry for such a late reply x

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