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I'm so sorry to hear you have all been going through the same sort of pain as I have been struggling with. I first experienced this pain following knee surgery when I lived in Chicago 15 years ago. I attended several consultants, even spent a week at the Mayo Clinic in Rochester trying to get a diagnosis & to get answers to what was causing this excruciating pain. Eventually, I was diagnosed with RSD (Reflex Sympathetic Dystrophy) It lasted approximately six years, slowly decreased with medication (Gabapentin, Amitriptilyne, Effexor) & consistent gentle exercise like swimming, walking, Pilates. I had to take a 5 year career break from my job as a teacher. Since then the pain has come back every so often but has been mild and responded quickly to Gabapentin ...... until 2 weeks ago.
I have had a very stressful three months. My little grandson passed away in December & my beloved sister died a month ago. I have come to the conclusion that my neuropathic pain must be related to stress, as it has returned with a vengeance. I now live back in Dublin, so have no access to the doctors I attended in the US.
It helps to read about your experiences & suggestions & would appreciate any further thoughts. Thanks!
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