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I have suffered with RLS since i can remember, some of my earliest memories as a child are of RLS.
Over the years i have complained of this condition to many Drs and specialists, i have had xrays and blood tests, most Drs or specialists laughed me off, one even said it was spiritual.
After one very bad night, i was near suicidal, i went to see my Dr and told him if he did not look into it and take me serious i would sit on a train line and wait to have my legs chopped of. He did take me seriously and over the next few years i tried many many medications, all of which had no effect on the RLS.
I then tried Cabaser, this actualy did make a difference but the side effects were so bad that after a year or so i stopped taking them, durring this time i became agrophobic .
The reason for this was that the Cabaser made me feel like i was constantly shaking inside, i would have to hold on to something solid to steady myself even though outwardly i was not shaking.
RLS destroyed my childhood, my schooling and my youth.
As i get older , im 41 now the RLS is getting worse and effects my hips aswell as my knees.
I was signed of work for a while and with some Prozac and being able to rest when i absolutely needed to things were not to bad, i had no stress and managed quite well.
I was assesed for incapacity benefit and the Drs laughed me away , they were totaly dismisive and did not understand how badly this condition has effected my whole life, i would say it has ruined my life.
Every partnership i have had has failed, twitching in bed, seperate beds, staying up all night and mood swings saw that all relationships ended quickly.
Every girlfriend i have had has asked me after the first night of sleeping together what was i doing all night, they all thought i was masterbating but i was infact just twitching and stretching my legs.
I hate this condition and at times i have been suicidal.
Anyway i am at the moment appealing against the desission not to allow me incapacity benefit but it is realy hard becouse i am infact mobile and have no problems walking, the Drs do not seem to understand that my problem is sleep related.
I am at my whits end, i can not go back to the grind and worry of having to get up every morning at a certain time, if i have not slept all night getting up for work is real problem.
Every job i have had has only lasted about 3 months before i am sacked for arriving late or taking days of to sleep.
What does one do, to be honest having had a life of disturbed sleep i am now looking forward to the Big Sleep.
In the past i have tried many ways to relieve the anguish for want of a better word, i have tried cold treatments, warm treatments, oils, creams, changes in diet, exercise, pills, you name it ive tried it.
I have tried to sleep with my legs raised to stop blood flow, i have beaten my knees with a rubber mallet and pieces of wood, i have stretched in such ways that i have given myself groin strain.
All give very temporary relief, but the feeling always comes back shortly after.
I wish my legs were painful, i could live with that , but this feeling is just too much sometimes.
I put myself in painful positions to override the feelings in my knees, the pain is better than the feeling, after a while the pain turns to numbness which is a great relief but it soon wares of and its back to the horrible feeling and needing to move my legs even though i have just hurt them in the process of trying to find some relief.
This is a living hell and most people i talk to about it simply do not understand, even the Drs and Specialists.
Where does one go from here ?
I feel the Big Sleep is the only real answer but i would like to continue to live, saying that to end it all would be just as good.
Sorry to write such a downer of a letter, it is the first i have wrote on the subject to any website or forum.
thanks for reading, and i hope no1 else suffers this nasty desease as badly as i do, if you do then i fully understand how it effects your life, i wish people could understand how it has and continues to effect mine.
[i:e1ffeecbaa]This message was automatically imported from the original Patient Experience[/i:e1ffeecbaa]
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