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Hi,I'm a 24 and i have "post-thrombotic syndrome".

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Hi,I'm a 24 and i have "post-thrombotic syndrome". Two years ago I had a DVT that ran from my foot to about the height of my belly button. I have recently had a "doppler" and the clot has only partly cleared. It is still badly blocked in my thigh region and I've been told it wont break down anymore. I'm on warfarin and wear a compresion stocking. I have 2 ulcers on my ankle which are at least 3 months old. This condition has totally upset my life and I am desperate to get back to normal. Dr.s I have seen have said what I'm doing now is all I can do. I'm not satisfied with that at all. I feel no one is taking me seriously! I'm too young for this. Can any fellow sufferers give me some advice??Thank you very much for your time.Wade BradyVic, Australia

[i:e5a5e4e478]This message was automatically imported from the original Patient Experience[/i:e5a5e4e478]

1 like, 33 replies

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  • mia28947
    mia28947 Guest

    Posted

    Hi

    I'm 22 and in August 2019 I was suddenly diagnosed with chronic bilateral DVTs in both legs up to my stomach. This is as a result of an atresic Inferior Vena Cava Vein (IVC). I'm now taking life long anticoagulants - 10mg BD of apixaban. I've also still been suffering quite badly with post thrombotic syndrome. Does anyone have any experience of how to manage pain from leg swelling?

    • steve68220
      steve68220 mia28947

      Posted

      Hello, I know your message is two years old and I don't have anything ground breaking but I found putting the legs above the heart when lying down relieves the pain. I found the legs in a straight line rather than bent at the knee let the blood flow more efficiently. How are you doing these days? I hope you are doing well.

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