Hi, I've been diagnosed with undifferentiated mixed connective tissue disease/Lupus.
Posted , 3 users are following.
I have been struggling all my life and have only just been diagnosed. I hav been treated for so many different ailments and due to a skin rash,
painful joints and muscle pain last summer, I asked for a lupus test which came back positive. I am now seeing a rheumatologist and am on prednisolone tabs and many others to say the least.
I am working full-time at the moment after a phased return since January of 32.5hrs, but currently am not able to do morning's. I have requested to visit my OH Doctor to review my hours. I take everyday as it comes. Some days are difficult and I just pace myself. I do enjoy my job. I am a librarian at a primary school in the borough where I live and adore working with the children. We can only try to do our best with what we have in our lives today.
God Blessings be upon us all.😀
2 likes, 4 replies
sandra39631 shirleygirly
Posted
     All I can say is listen to your body, rest when you need to and keep stress to a minimum.I hope all goes well for you.
shirleygirly
Posted
It seems we have a lot in common. Do you still take the prednisolon tabs. Because I tried the others but found they made me ill, as I am allergic to anti-inflammatory meds.I feel so much better on the preds it has lowered my low grade fever and I don't sweat at nights as much as during the day, also I am on a high dose of
Tramadol because my difficulty lies mostly in my back with
really bad sciatica in both buttocks and legs.
Each day is a blessing for me as I would hate to lose my independence.
Would love to hear what you think?
sandra39631 shirleygirly
Posted
 I agree about losing your independance. I lost mine for the first two years after my major flare and would hate to be in that situation again.
      I still have the night sweats but hey that could be my age. lol
 I must admit I have tried Tramadol for the pain but it made me sleep way too much and I was groggy all the next day so that ruled out the tramadol. After all these years I think I have gotten used to coping with the pain without taking so many meds, and on the really  bad days I rest as much as I can. Not working and having  grown-up  children that live away from home makes this easy.
 The best advise given to me was listen to your body, rest when you need to and don't stress the small stuff. I lost a few friends and also some family who saw me as being well and didn't understand that although I looked well I felt so ill, but I was told to expect this when I was first diagnosed, so no surprises there.
 Hope you continue to improve, life with lupus isn't all bad.
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michelle81002 shirleygirly
Posted