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hi i wos diagnosed with perthes disease at the age of 4....

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Guest
Guest

hi i wos diagnosed with perthes disease at the age of 4. i can't remember much bout it but my parents have helped me understand what i had and how it can effect my future. even though i was 4 and didnt understand what was wrong with me i acted like an adult. i was well behaved and did what the doctors told me to. all my friends understood what i was ging through and they always made me feel normal even though i wernt allowed 2 everything they did. my parents thought i would do sort but thats all i have done since. i am now currently studying sports at college which may surprise a few docs. thankyou for givin me the opportunity to talk about my experience.

[i:9e330217ac]This message was automatically imported from the original Patient Experience[/i:9e330217ac]

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  • Guest
    Guest

    Posted

    How has Perthes affected your future? What treatments did the doctors use to treat it and have tou had any other conditions because of the Perthese?

    [i:63f0694f50]This message was automatically imported from the original Patient Experience[/i:63f0694f50]

  • Lucyx
    Lucyx

    Posted

    I also was diagnosed with perthes bilaterally when i was 4.

    i was in a wheelchair until i was 8 and then crutches until i was 11. im now 18 and i was discharged recently. i still get pain when i do lots of sport and have to do physio but people are so shocked when they find out i used to be 'disabled'!

    i have done gold d of e,marathons,sport for my school,clubs,and intercounty and there is nothing that my hips inhibit me from.

    actually, one sport i did find tricky was riding...id heard it was meant to be good, along with swimming, for people with perthes...but once i got to the cantering stage it was the most painful thing ever!

    so i dont ride anymore, but everything else is possible!

    xxx

  • dragonskin27
    dragonskin27

    Posted

    [color=black:71020040cf][/color:71020040cf] Hi i was told i had perthese when i was 8 and i still have it now i can walk around but it hurts sometimes i carnt even get out of bed i was told that becouse i have had it so long i might need a hip replacement i have just found this site and wanted to no if there were others like me
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