Hi my name is Patrick, I live in the UK and would like t...
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Hi my name is Patrick, I live in the UK and would like to hear from other people who have the condition Achalasia,I was diagnosed at the age of 30y I am now 41yr. It is frustrating that I have never been able to locate a person in the UK with this condition, and further more there was no web site for this really to take place, until NOW!! I have spoken to others in the U.S and gained a little from them, but I hope that others will join and explain how they manage their condition, plus if they have had surgery. I hope that this will be the start of sharing information and the start of discussions and to gain support. I have always had a problem with swallowing from the age of twelve. I remember one Christmas as I had an attack of the munchies and looked at the turkey, started to eat it and was in trouble immediately, I had to go to the toilet and regurgitate, this was the beginning for me as I remember. As a young boy I would always have plenty of liquid at the table, my choice was milk never water, and I would always eat my food fast, and drink the milk quickly. After being diagnosed it was like a jig saw puzzle being completed, and now I understand my problem and manage it effectively. I have bad days like everyone, but we all know the bad days are simply from hell, and i have seen my doctor and used nifedipine to relax the spasm, which is a muscle relaxant as we know. This has helped in a small way, but it tends to be a waiting game for ease to come so that I can drink and eat again. I get my GP to agree for an endoscopy each year for my peace of mind, so that I am healthy, I have had chest infections from aspirating in bed, I am concerned about my lungs and the health of my oesophageal track (barrets disease) at this moment in time my general health is good and i am in control, I plan to stay this way too, please send your information as i am keen to know as much as I can, and share what I know.
I look forward to speaking to you all.
Take care and speak soon.
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I've just been diagnosed with achalasia after suffering since February with swallowing difficulties. I've just been advised, today, that the only solution to help me is to have surgery. Kia I'd be really interested to hear how you got on with the op.
Anything that you can recommend I try would be appreciated. It does help to hear of other people's experience as no-one I know knows much about this.
Jo
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