Hi new here

Hi all, im a 53 year old women, i was diagnosed with PMR and possible GCA on 2nd Sept after months of muscle pain,( sometimes i could hardly get out of bed in the morning), i also had a few headaches and a bit of scalp tenderness, i was put on 40mg prednisone and told i would see a rheumatologist within 72 hours. Well i didnt actually get to see one until 5 weeks later after 3 cancelled appointments. I had temporal scans done and armpit scans on 9th October and told no sign of GCA , but surely after 5weeks on 40mg its not going to show up anyway. The rheumatologist said she thought i was too young to even have PMR but ive spoken to lots of people that have it in my age bracket. She told me i could start to reduce my pred which i was so happy about because ive been feeling rubbish on it with all the side effects. This is the tapering she wanted me to do. Drop 5mg every 3 days till i get to 10mg then 1mg every month till im off them. Well i started reducing on 10th oct down to 35mg then 30gm on 13th, i was due to drop another 5mg on 16th but started getting headaches in my temples and scalp tenderness, i emailed the rhuematology dept at the hospital for advice, they said up it to 35mg and wait for another appointment. I actually put it back up to 40mg to be on the safe side but after 5 days of being back on 40mg i still have the headaches and scalp tenderness, has anyone else experienced this on lowering there dose and do you think she wanted me to taper too quickly. While i was on 40mg for the first 5weeks i didnt have temple pain or scalp tenderness, i had other headaches but not in my temples, i only had temple pain before i started on pred, i would really welcome your veiws as i am a little worried about it

Thank you in advance

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