Hi all, I've been following this discussion for a while and feel it's time to add my experiences. I'm 61 and had a sliding HH since I was about 20 with no real probems apart from from heartburn and reflux at night which I managed by copious amounts of bi-carbonate of soda and raising the head of the bed by 5inches.
In Jan last year I had an endoscope and it was confirmed (again) that I have a small sliding HH and a small section of Barratts. In the months following this endoscope I developed high BP, bloating, cramps, palpitations, light-headedness, difficulty breathing, tightness on the left side of my head/face and a few other things. I too get palps if I bend forward or stand up quickly.
My partner and I set about researching these things and everything pointed to Vagus nerve irritation, BUT - don't suggest this to any consultants because they think you're a stupid internet melodramatic (I know, I was called this in a letter to my GP) and then refused an appt because (I had already pre-diagnosed myself without sufficient knowledge of a condition that is impossible!) Research for yourselves the problems a HH and Vagus nerve combination can cause and you will be amazed at all the symptoms and similarities! I felt that there was pressure on the back/left side of my heart and was told that this was absolute nonsense by an upper GI surgeon, then an ultra-sound clinician told me that she'd actually seen - on numerous occasions - pressure on the heart from a sliding HH! 2 heart specialists have actually admitted the possibility of this happening recently, but I still can't get a gastroenterologist to investigate it, they all seem to want to treat the symptoms not the problem! So go do your research (avoid the websites that want to sell you a cure, go for the medical websites) and have a shock at how common this really is!
So what did I do? I set about the long task of finding everything that sparked off any problems, these are some of them : lemon, garlic, olives, lime, refined sugars give me day-long palps the next day! Pastries of any type, sweets (sugar again) green tea and so on. You must avoid refined sugar at all costs! I now have 2 juices or smoothies (containing 75% vegetables 35% fruit) and 2 small meals a day. Next you need to strengthen your stomach muscles, try doing pelvic thrusts and diaphram exercises - it really does help!
A last thought - you will also find that walking, talking and sitting upright will cause you problems, lying on your stomach or right side will alleviate this.
Hope this is of some help, if anyone finds a specialist willing to investigate please reccommend them! The 10 minutes that the NHS gives them is not adequate for us. 0
reply to mickpayton