Hiatus Hernia - Breathing Problems.
Posted , 113 users are following.
A few years ago after an Endoscopy I was diagnosed with a small sliding Hiatus Hernia which I have treated with Omeprezole. Recently I have been encountering some breathing difficulties combined with a staggering amount of reflux and despite doubling to 40mg of Omeprezole the reflux and breathing problems continue. I have just had a further Endoscopy which revealed the same Hiatus Hernia and lots of reflux. I am fairly certain that the Hiatus Hernia/Reflux is responsible for my Breathing problems, but doctors seem to disagree although they can not tell me what is causing it.
I have seen a few similar postings to mine, can not sleep, wake up all sweaty, panicy, can not breathe, but no where can I see where a resolution was arrived at?
So, could the breathing problems be down to the Hiatus Hernia and if so how was the problem resolved.
Grateful for any advice.
Regards
Guy Greening.
4 likes, 199 replies
SES
Posted
I have acid reflux and I seem to have breathing problems as this is what the doctor put it down to after having a lung capacity test and so the asthma I thought I had was ruled out as my lung volume was for a 34 year old and yet I am 36???
http://www.netdoctor.co.uk/diseases/facts/gastrooesophagealreflux.htm
I hope this helps?
Kind Regards
SES
guyofchelt
Edited
Many thanks, information contained in the link that you provided would suggest that my breathing problem could be associated with my Hiatus Hernia.
I have had an Endoscopy that confirmed the Hernia that I already knew about and an ulcerated Osphegeous. My reflux, belching despite being on 40mg Omeprezole is ridiculous.
Rather than undergo all the other not so pleasant tests that the Hospital have planned for me, I think that I am going to return to my Doctor and ask that he sorts out this terrible reflux. I am really confident that this will also resolve my breathing problem.
If this proves to be the case, I will post a further update here.
Cheers
guyofchelt
gwen45436 guyofchelt
Posted
Did you get sorted - I am on meds so why do we still have it.
Would be good to hear how you are doing.
G.
suzanne31904 gwen45436
Edited
anonther side point that happened to me... I seem to have achy legs and little pea size lumps under my skin and when touched, where very painful. Well,they are now gone! It seems with your gut not working your cells then take on the toxins.
I hope this helps you out. I know how horriable this thing is!
laurel09942 suzanne31904
Posted
Once you start feeling better the things you have ignored because they weren't a priority are suddenly obvious. Interesting about the lumps going away. I am feeling pretty good these days but I am going to look for your probiotics next time I am in town. I take garden of life because they are wheat and dairy free.
carolyn85004 suzanne31904
Posted
Cheers
Carolyn.
gwen45436 suzanne31904
Posted
Yes, still on here. Still have reflux and HH. Sorted the chemical sensitivity out with 3 visits to a Kinesiologist - touch wood, I can tolerate smells again.
I have just started Probiotics - a strong one. Some days I am really good and no pain, other days it comes back. It runs your life as you just don't know how you are going to be feeling.
Glad you are feeling better - it does get you down.
Thanks for the reply, appreciated. Keep getting better
G.
emma88655 suzanne31904
Posted
omg i have thise lumps! can you please update your symptoms how are you now?
SES
Posted
Yes I would go back to your GP x
Regards
SES
guyofchelt
Posted
Strangely, I experienced immediate relief to the breathing problem straight after the Endoscopy, but this returned a day later.
The consultant prescribed me 10mg Domperidone for 4 weeks. After one week of taking this medication (together with 20mg Omeprezole) the Breathing problem was much easier. Now after almost a month I get numerous days where I do not experience the Breathing problem at all and even if I do, it is easily much more manageable.
Due to the Doctors tomorrow (11th March) and will provide a further update then if appropriate.
Comment: I am virtually positive that the breathing problem and Hiatus Hernia are related. The only time I get the breathing problem is when I am experiencing Reflux. I therefore believe that if the reflux can be permanently stopped, the breathing problem will be resolved.
bruiser guyofchelt
Posted
appreciated feedback
Cass73 bruiser
Posted
papote53 guyofchelt
Posted
amz08 papote53
Posted
I've been really suffering with the same symptoms as you, have you found any relief? Or further in investigations .. I just can't handle the breathing difficulties, i can handle being sick but not all the weird feelings that go with it.
papote53 amz08
Posted
Hi amz08,
One year later and things getting worse with no answers from Doctors. ;-( They did find I have mild barrets with moderate gastritis. Is my believe is all because they took out my gall-bladder almost 2 years ago thinking this was the reason for all my problems which they were wrong. And now apparently I have bile reflux which could be why I have barrets and gastritis because my acid levels are normal. Still today, I do not have any noticeable stomach issue. I did go a see a rheumatologist and he order some labs and chest X-rays so in 10 days I should have his feedback. How they dealed with this? They put me on PPI's knowing I have normal acid levels and knowing PPI's do not help if you have bile reflux. So I asked for carafate as an added protection because apparently carafate helps with bile reflux which they approved (started 3 days ago). Still my main concern is the breathing problem with the chest/rib-cage pain to which they told me my reflux has nothing to do with that. ;-((((((
amz08 papote53
Posted
Sort your to hear your still suffering , it's just so annoying isn't it , the only relief I get is when I'm laying down after a while .. I have a hiatus hernia , maybe when I lay down I'm stretching my hernia out..
very interesting about the bile reflux .. I'm hoping to have a ph test soon .. my chest X-ray clear ..
papote53 amz08
Posted
Do you have any pain? My pulmo said that sometimes pain is manifested as breathing problems.
That's the problem, my GI said it might be bile reflux but can't confirm it is. So another endoscopy with no clear answer. ;-( For me is bile reflux and it is related to my chest and breathing problems even if my GI denies it.. Hopefully carafate will help and prove that it is bile reflux.
amz08 papote53
Posted
I really hope you get some answers soon..
yes I get lots of chest stomach & back pain , I get very gassy.. I also suffer with my Sinius & wonder if it's connected, I've tried everything I can . I'm thinking maybe try probiotics next.
papote53 amz08
Posted
Is to my belief is all connected - I have sinus problems as well but not congested to often. I also have back problems but nothing I can't manage for now. Did you check for SIBO? Probiotics are good, but if you ask me is you hernia the main reason for your breathing problems. Did you check with a Chiro?
amz08 papote53
Posted
Sibo? I'm just guessing that that's what's causing my breathing problems as they haven't found anything else .. no I haven't actually seen a chiro, I should look into that ..
papote53 amz08
Posted
Small intestinal bacterial overgrowth (SIBO). But I will check first with a good Chiro that knows how to work your hernia.
Chris5128 amz08
Posted
I was diagnosed with asthma at 26 after I had my first child...before that I had never had problems and never been sick! In 2015, after I had my 2nd child things started to get really bad! I was sick every month and getting pneumonia atleast 3-4 times a year and would be hospitalized 1-2 times a year. In the last yr I would say my asthma and reflux have been out of control along with other things but of course they always blame it on the asthma. I was at a check up today and was discussing with my PC how I'm over being sick all the time that it's not normal for a 32yr old person with no previous health problems (like not even allergice to anything which blew my ENT's mind) to be sick all the time and it's not just ASTHMA! My younger sister and dad both have asthma and are never sick like I am so I know it's not that and as far as weight goes I'm smaller then them. I'm 5'7 and 130lbs so they can't blame it on my weight! Anyways, she starts asking me about my reflux and I mention that when they did the scope a few years ago they found a hiatal hernia. I was told it was too small to fix so honestly I forget to even tell dr's I have it because they acted like it wasn't a big deal. Well she informs me that she had a patient that was a little older than me that was also diagnosed with adult onset asthma and reflux. This patient started to get worse also... come to find out she had a hernia. The dr told me that she had it repaired and that her asthma and reflux went away!!!!! So breathing problems and hernia's can definitely be related. She now wants me to skip seeing GI again and go to see a surgeon! I mean she did of course tell me I may not have the same results as this person and that it maybe something else. However she defiantly believes the hernia could be the problem because she has seen it first hand. These days it's truly hard to find a good caring dr. She has restored my faith in dr's or atleast showed me that there are still good ones out there. She made sure to tell me that she would not give up on me nor quit searching for answers until we get me back healthy. Don't give up if you think it's the problem and definitely don't settle that you have to live life like this! Good luck!
stephie2 papote53
Posted
I am very similar. They took out my gallbladder as I was having swelling each night and pain plus struggling to breathe. They told me it was gallstones! 2 years on I am 10 times worse. I get swelling every night, struggle to breathe as the swelling gets bigger so do my breathing difficulties. I get pain and some nights wake myself up catching my breath. I sleep raised up and each night is horrendous. No one knows what my problem is and the hospital have just gave me pills for sickness, pain, relaxants and PPI and discharged me as if to say we don't have a clue so go away and suffer. My life has changed so much now and this rules me. Even going on holiday it spoils it by the evening we have to go home early for me to try and get in a comfy position. Miserable!
alex_38985 papote53
Posted
I also have the breathing difficulties. Have u found any relief 😕? Feels like I can't breathe when I stand sit or eat
Buffalogal stephie2
Posted
First of all, I'm truly sorry you're going through this. Watching my husband going through it, is killing me!He takes 2 Aleve every 6 hrs. This "usually" gives him a few hours to function normal, still limited on exertion. He calls it his miracle drug. He uses ProAir 3 to 6 times a day. It appears the hiatal hernia is the commen factor in this blog. We will be going to a hernia surgeon next. I've read it works. Fingers crossed. He also sleeps on couch to be elevated, this stops him from rolling or sleeping flat. Horrible horrible what you all are going through. Sometimes he takes a Xanax at bedtime to get a better nights rest.
stephie2 Buffalogal
Posted
Thank you Buffalogal
My partner says exactly the same as you. He watches me most evenings with a hot water bottle on my back and stomach, moving positions, suffering and he hates it. He says it is torture watching me like that not knowing what he can do to make it better. No-one seems to know what to do or how to treat things. They do a surgery called fundoplication but they say that it causes more problems so they won't do it in my case. So I just take the pills and suffer. They just discharge you and expect you to get on with it. I wonder if they would think that way if it was their family or loved ones going through it and they had to watch
gwen45436 stephie2
Posted
G.
dave_00547 Buffalogal
Posted
I wonder if anybody also has pain in the lumbar region of the spine? I think this may be what is called referred pain from a peptic ulcer which usually accompanies a hiatus hernia. Incidentally, does ProAir actually work? It's supposed to be prescribed for problems breathing that are caused by a faulty lung. I had my lungs checked out by a pulmonary specialist and they were fine, but when the doctor used ProAir for the examination, I noticed that several hours after I used it, I could breathe better. Unfortunately, the same results haven't been repeated with further use.
dave_00547 gwen45436
Posted
Not all chiropractors know how to massage a hiatal hernia. I don't believe that they actually push the hh into place, but rather, massage the surrounding muscle so that it slides back to where it belongs by itself. This does happen, despite what a gastroenterologist may tell you, but the degree of relief is minimal, at least for me.
stephie2 gwen45436
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I find that after a meal I am rushing to the loo (sorry it sounds gross). I have read about some chiropractors performing this but haven't fully researched it. It may be worth a go if it is successful.
gwen45436 stephie2
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Dave - thanks - yes I have heard that gastros don't go along with this - but then my doc is useless - I also have GERD/Esophagitis - specialist and doc wanted me on taking PPI plumped for Ranitidine.
Whenever I see my doc and say what I think is best for me, she looks blankly then says, yes if you think so - I have not heard of that but sounds like it will help. NO HELP WHATSOEVER AND FRUSTRATING. Basically feel alone with just me n pain n my laptop for hours of researching. Getting square eyes now lol.
Steph - no not gross at all - I get that too - sometimes when in the supermarket - good job they have a loo - I can feel acid just waiting to catch me out. I have read of several people who say that chiro changed their life - we can only have a go. Same with accupunture - some say fab others say not so good. I will have a go at anything to help. This takes over your life and personality - well mine. No more eating out with friends - no more ladies that lunch (and eat) well they do, I pretend to be not hungry.
You all have my sympathy - this is a game changer - just wish fam and friends would understand more. (My hubs does not get it - he has heartburn and "just gets on with it" thinks I should too. Err hubs did you know these things can rupture - no thought not. Any hints from you all, please spill - and I will also.
Non hurting tummies to you guys.
G.
gwen45436
Posted
Buffalogal stephie2
Posted
It seems like each doctor has a five minute time frame and are out for patient volume not personally caring for you. Deals with basic info, gives you some meds and refers you to the next specialist. In the meantime, not one is really listening or focused on your personal story. 8 diagnoses later, you all still have chronic asthma-type symptoms daily, medications are only bandaid at best. Truly my husbands miracle drug is 2 Aleve 3xs a day and proAir inhaler 2-4 times a day depending on his food intake and physical excertion. The doctors all say Aleve is not good for him and that it doesnt make sense. Yet it is the only thing that have given him a few hours of "normal" life. Still chronic cough several times a day. Going to find a general surgeon to discuss possible surgery. We had discussed chiropractic but have not followed thru, but what do you have to lose?? You all have to be your own advocates. What is your next step?
Buffalogal stephie2
Posted
Buffalogal dave_00547
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Dave, I hear you and can relate. My husbands lungs are clear, multiple stays cat scans ECT. Endoscopy showed evidence of Herd. Dah!! Tells my husband to take OTC Olazapram and didn't know why he still has breathing issues, suggested he see a psychiatrist. My husband gets relief from FAITHFULLY taking 2 Aleve every 6 hours and proAir if he exerts himself to a breathing attack, which BTW still continue daily. This vagas nerve sounds interesting, I'll need to research that more. Give the Aleve a try.
Buffalogal stephie2
Posted
Truck to sleep propped up on pillows on a couch. Don't eat after 8 pneumonia. Smaller meals. Nothing spicy or acidity. Just ideas that has helped my husband. Even Vick vapor rub has helped to calm the coughing attacks. Sending positive strength
stephie2 Buffalogal
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stephie2 Buffalogal
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I don't have a next step. The hospital discharged me and basically said there is nothing they can do and my doctor just put me on the tablets and said just take these and that is it. I have resided to the fact there is nothing anyone can do and that this is my life from now on. Miserable outlook I know but what can I do?
stephie2 gwen45436
Posted
I know exactly what you are saying Gwen. I no longer go out for nights out with the girls as I just cant do it anymore. We now opt for the odd spa weekend to compensate for this. Holidays I suffer but try my hardest to stay out until I really need to go back. I know my partner tries to understand but sometimes I know he doesn't and it does cause the odd row because I am in pain and he will want to do something and I don't feel up to it etc. It has changed our life, relationship, outlook on the future - everything really.
dave_00547 gwen45436
Posted
30 years ago mucacataneous candidiasis would have killed me if it hadn't been for the intervention of a nutritionist with a degree in pharmacology. Because of her, I learned how ignorant medical doctors really were, so nothing that anyone on this Website says would surprise me.
Medical doctors are total jackasses. Her (Elizabeth Schultz) partner was a medical doctor with a degree from Johns Hopkins who was totally lost when it came to medical competence. Schultzie and I often joked about his inability to understand what she was doing, but she needed him to procure prescriptions for blood tests that her clients needed.
She once told me that one had to be practically dead before anything of a serious nature would show up on a blood screen, because of the way a doctor would interpret them.
Unfortunately, that criminal organization known as the FDA has put virtually anyone medically effective out of business. What standard medicine today calls alternative or holistic medicine today is a joke. Useless nonsense such as mindfulness, or yoga, or European herbology.
Because 30 years have passed since I was introduced to real medicine, I think that I have a pretty clear picture of how far ahead of current standard medicine these real doctors were. There are still many effective treatments that Shultzy and Hospital Santa Monica in Baja Mexico were using 30 years ago that "modern" medicine still are unable to perform.
To be honest, standard American and European medicine makes me want to vomit. They are killing people and the people are stupid enough to fall for their propaganda. Greed and stupidity may killing us all.
gwen45436 dave_00547
Posted
Blooming heck bud - you go for it! Well, I love to hear fiery analysis of our health system. Yes, it stinks to high heaven. Makes me very very cross.
Don't go to docs unless desperate. And yes greed and stupidity is killing us all.
dave_00547 gwen45436
Posted
Thank you for endorsing my vitriol. Considering, that you've chosen the term cross in lieu of a synonym for p****d off, I have to assume you are British. I suppose it's my contrarian English nature (the English part of my family originated in Leeds), but I often have to take cover whenever I dare question the American establishment in all its "king and his altogether" propagandic glory. And what area of that American establishment has been more deified than its criminal medical community? I presume, because of our agreement, that the same may be said about Britain's current medical situation without fear of appearing foolish.
Buffalogal Chris5128
Posted
Thank you for that info Chris! I'm truly sorry to hear of your health issues and lack of concern by most doctors. You are absolutely right about "it's not just asthma." My husband has had the same symptoms and misdiagnoses. COPD, office job all his life, non smoker, social drinker. We know many older men, heavy drinkers, heavy smokers with COPD and they next to never have daily issues! The doctors have all offered band aid type solutions but have been unable to determine the cause of breathing problems which continue today 18 months later. I'm hoping a hernia specialist will be the answer!! He takes Aleve three times a day to keep the breathing issues at bay (anti inflammatory) makes sense now, it must shrink the hernia back in place, which allows him to function without losing his breath as easy. His chronic cough must keep weakening the stomach walls. He was just at the Gastrologists who did an endoscopy and took 5 biopsies, only to report yes the esophagus looked red and irrated and the biopsies show evidence of GERD. So take OTC acid pills daily, eat small meals and have a nice day. Doctor actually said, "You're 60 years old, this stuff happens." I was appalled! My husband could run a 5k marathon 18 months ago without even breathing hard!! Praying for you and everyone else who is suffering from these symptoms, to find a cause and treatment soon. BTW if he was taking all the different meds he has been prescribed, he'd probably be dead now. I seriously have had to monitor and research what reacted to what versus side effects and validity of results. 2 Aleve three times a day faithfully, has made all the difference at this point. Crazy! Best of luck to you. Karen
Buffalogal gwen45436
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gwen45436 Buffalogal
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Thanks for that - great reply. I have silent reflux along with HH also. Doc just not really interested - PPI or Ranitidine and go away. Asked if I should eat blander - errm - she is thinking - no not really!!!!
Just developed what may be another H - one small cough and pain in right lower tum area - whatever next - don't think I will even go to the doc, think I will go to a Chiro - I think they are far more interested.
Best to you and hubs.
john_j20186 stephie2
Posted
MarvinMartian Buffalogal
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I came here to see if part of my symptoms could be related to acid reflux and hiatus hernia that was diagnosed many years ago that doctors say does not need to be treated except for PPI's. I was very physical and had physically demanding jobs. What struck me was the way your husband gets relief. The only thing that allowed me to stay active was Aleve. It made me feel great and like a teenager, I am in my 40's now. Otherwise, I was always out of breath with a pounding heart and chest pain that every specialist said I had no reason for. Anyways over time, I developed tinnitus and an odd reaction from taking Aleve. My hearing will become super loud and painful over the slightest noise and even earplugs don't help if I take Aleve. Since I can no longer take Aleve I have developed severe anxiety and agoraphobia because I feel so out of breath all the time. I just wanted to warn you about the long-term of hearing effects that are associated with taking Aleve. When I mention how Aleve helped to the doctors they brush it all of to me being crazy with anxiety. This did not start with anxiety but when you have a go get it done mind with energy but can't do anything because you get out of breath it is a bad situation.
tom_83561 Chris5128
Posted
Hello chris, I believe what you say is true , acid can leak into the lungs and cause you breathing problems , I get shortness of breath with sports, the doctors don't say anything just wave me on, also having a hernia the stomach causes more pressure on the lungs, and also acid causes sinus problem which will block air ways, I believe surgery would cure this but doctors are reluctant as they always jusy want to shove you on meds, I feel it's because the government is earnirn way to much money off people like us buying this medication
bernadette29256 amz08
Posted
I have been suffering for a year and 2 months with breathing difficulty and eating. My airway cuts off completely after I eat and i also am short winded a lot. I have had so many tests. After my airway cuts out I get belching and hiccups. I have gallbladder only working at 50 % and I also have been diagnosed with 10 cm hiatus hernia. The strange thing is it does not matter what I have a cracker liquid I loose my air way once it's digested and after its ate. I'm full of bio and feels like a volcano in my chest. I get squeezing sounds in my esophagus and sometimes it feels like a balloon building between my breast right in the centre. On a good day I eat a sandwich turkey most days liquids. It happens when I'm standing / sitting u do not need to be lying down. I also have stenosis in my neck and well doctors are sending me to surgeon for hernia they mentioned something about possible phrenic nerve damage. Vagus and phrenic nerve control digestion. I'm waiting now before I see surgeon to get a SNIFF test and also Doctor wants another barium swallow done this time with marshmallows. I had three endoscopes last year and 1 missed and others said had small hernia. It was not until I had a manometey test that they went in on a closer look at hernia and spent 45 mins that theysaw a 10 cm hiatus hernia and sliding and saw my stomach go up into my chest. Im worried about breathing problem it strangles me and concerned if I get operation and not the problem will I have bigger issues as now is unliveable. I take Ppi's high doses for over a year dexilent twice a day sulcrafate and has to stop taking maxerin as caused my prolactin levels to go up to 80. Was wondering have you got any more information yet ?
carolyn85004 bernadette29256
Posted
So sorry to read of your condition Bernadette, it sounds horrible and send my best wishes for your treatment . My problem seems to be small in comparison. l've had an ultrasound that only showed some fat in my liver. I'm seeing doc on Friday. Regards from Carolyn.
ali14420 Buffalogal
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laurasweden ali14420
Posted
You saved my life. I was pregnant, gained weight.. baby was born.
One day when I was eating I started having problem breathing. I did not understand, I almost fainted, burped and couldbreathe again. This scared ne. Happens once or twice per month. Almost fainting, shortness of air
burping in the last second ....
The anxiety afterwards
...
Now I understand..I have a hernia. Doctors did not umderstand, gave me basic acid reflux pills..said that Imayvehave a hernia.
Thank YOU for your knowledge.. ??😘😘??????
kath59681 stephie2
Posted
how are u now?? plz reply