Hiatus Hernia Repair - Yay or Nay?

Firstly, I am so sorry to hear of your situation. I am desperately seeking advice myself. I was diagnosed in 2014/15 and I am now 25. At the moment, nothing I do works, medication, lifestyle or gaviscon etc. I was wondering since this was 3 years ago, did you get the surgery? what was it like? are you symptom free? I am hoping to have a baby but wondered if I should get surgery first or after? It is completely controlling my life that I can feel myself go lower and lower into a depression.

I need help and advice!

Shannen

I am 60 years old. I have essential thrombocythaemia, a type of blood cancer, and Beals Syndrome, a genetic connective tissue disorder. Having had severe GORD since 2011 I was booked in for the LINX proceedure on 4th Jan this year.

however when they operated they found that my small hiatus hernia was in fact massive, so they did the 270 Nisson wrap instead. Sadly this has now failed as apparently my diapragm is too weak so the stitches did not hold. I was told that there was 3 hrs of suturing!! So now worse than square one, on max dose of PPIs and not much hope of further surgery. The surgeon is considering his options! I don't see any.

Hi again, sorry it took so long for a follow up.  BF(Jeff) I never mentioned, is a Dialysis Patient, and takes a small dosage of blood thinner. Which caused mutiple challanges for the all the Dr,'s to jump trhough and work around. My spelling is almost bad as my computer knowledge, so bare with me.  He was set for his Surgery, the night before appearantly he Aspirated(?)- because of his barrets esophogous, stomach acid comes back up especially is you lay down to soon after eating, When the Acid goes back down, it sometimes goes into the lungs also. Which then comes Pnenmoniae, he was going into the Hospital 3 days earrly to bridge the Blood thinner to make it safer for Surgery. Surgery off the table, treated the Pneunmoniae intstead. They knock that out, rescheduled Surgery, everyhting fell in place. Dr and PA figured out that he was such a low doseage of blood thinner that only 1 day was needed for bridgeing. bridgeing(takeing off of blood thinner to heprin. Which keeps blood thin but leaves the body faster. (I do not have any Medical schooling, getting lots lately lol.) Jeff had his Robotic Laparoscopic Gastroesophageal Valvuloplasty Surgery. on  5-21-18.dicharged on 5-31-18. the last 3 days was extra because he has takes pain meds for so long for his Kidneys, his bm are not normal. lots and lots of walking for recovery. He wanted out so bad, he was up to 3 miles the last 2 days he was in the Hospital Surgery went Great, he was suppose be in ICU for up to 24 hours, but was in his room late that night, Jeff was on a Ventalator for less than 2 or 3 hours. which could have been a lot longer. it was possible so early for both because he had me with him  almost the whole time, since someone had eyes on. ICU Crew was Great and nice enough to let me stay with him instead of just visiting hours. It helped, with Jeff anyway, I'm sure it's diff. with everyone. I had the time everytime He woke up to explain were he was and why he couldn't talk and why he couldn't take that uncomfortable tube out.  I was told, I believe, ususally they give the Patient,  IV pain meds, sslow and steady so it was unusual for the Patient to keep wakeing up. But bacause of being a Dialysis patient they pushed his pain meds every half hour and had to figure out his tolereance level. By the next morning out of bed, in chair, evening on lap walking around the Nurse's station, We thought he was doing good.  Dr. said OH No thats not a lap. LOL So Next day  Jeff had it measured out 13 laps around Surgical Floor 1 Mile. 3 laps 1st day, 20- 2nd day. 40 day 3.by the 4th and 5th. he walked 2 and then 3 miles per day. PA said He was doing everything he could just gotta get his insides woke back up.  Come to find ou: His Stomach had went upside down in is Chest Cavity, and truned around  180 degrees.( Up through his Hiatal.) Lots of drinking fluid, carefully chewing food only when it was time. And his final follow up is coming up. all done hopefully,Esophogous will take up to a Year to heal and go back down to size but , normal.  back to work soon. the Dr. said he had to make 8 small insisions,one staple in each to heal, which have very nicely. lightly brown dots on his stomach. Jeff doesn't like to be out of work , and We did not expect he would be out this long, had to be done. He says, "I wouldn't of done this if I Know it was going to take this long,"  I say "Oh H yes He would of, if it hadn't of killed him first. His Stomach was literally in his chest pressing against a lot all those organs. Heart< Lungs. Could have been so much worse if He had waited any longer. A Previous Dr. refused to fix the Hurnia because he was overweight.,and try to force him into weightloss surgery. Which We almost caved. Now 100 Pounds lighter on HIS OWN, A WONDERFUL DR. GHARAGOZLOO,AND A GREAT TEAM! Jeff his one step closer to a normal life. I hope That Your feeling better, Sorry if I was too descriptive, just wanted to let You /Others what You might can expect.  Now that He feels like eating and can. He is really working on keeping himself in check.  Have a great day.

Forgot, His valve was torn/ worn/stretched so large that The dr. I mentioned earlier had to reapair and use a meterial to close the large hole more. I probably wont do PA, explanation justice, but Dr, G doesn't use the mesh as some others do, he uses a material that he came up/invented? that is better and is more like what is naturaly in The Body,,

Hi Robyn, i am at a similar age as yourself. I have been going through similar sympt's as yourself and have HH. I have been reffered for surgey. I was wondering if you had the surgery after all and how it all was ?