Hiatus Hernia with back and arm pain

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Has anyone out there with a Hiatus Hernia experienced what feels like heartburn in your back and left arm. I have been diagnosedwith a Hiatus Hernia and take 30mg of Lansoprazoleonce a day and 10 of Motilium 3 times a day. But it doesn't seem to help the pain I have. I have had pain every single day for the past 2years and swapped between meds i.e omeprazole etc but nothing seems to work. I lot of the symptoms on research only states chest but I get it bad in my upper back around that knot thing in your kneck then it goes down my arm. Just wondered if anyone else has had this. Before I was diagnosed I thought I was dying I had seen every consultant you can imagine from heart,back brain to stomach. The docs seem to think now I know what it is I should feel less anxitey, well I don't as still feel really bad pain every day and meds not working.

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  • Posted

    Hi pinkmignon123

    I have had severe oseophagitus caused by reflux, and I did experience the frightening upper back pain - it was worse right between the shoulder blades. I felt as though a burning spear was piercing through me! My pain was also under my armpit, although I know people who have felt it down their arms.

    It had gone now as my condition is under control. Healthy diet and meds for a long time I am afraid.

    It is terrifying - keep on with the meds, it does help.

    Suze

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    • Posted

      What is the oseophagitus?  I have a very large hiatal hernia, and I about 2 years ago would only have a problem for about one hour every six weeks.  It is always when I am eating a meal, I thought it had to do with eating too fast, swallowing lots of air.  I would get an extreme pain under my left lower rib and it would radiate down a few inches.  I get sometimes it in my chest really bad and into my shoulder.  It is so painful.  It always totally goes away in an hour to 2 hours and then I am fine.  I now get it every other week.  I have had endoscopes and the doctor gives me medicine but they just want me to have surgery and I am afraid to do that,  The thought of not being able to burp or vomit, scares me that I would be worse off.  If you or anyone on this board can give me advice but I am just so grateful I don't have it last all day and not every day.  I am so sorry for those who are miserable all the time.  It is horrible pain almost like labor pain.  It doesn't affect my system with other problems that I know of.  Love to hear if the surgery helps .

       

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    • Posted

      Hey, I have had the gastric surgery for reflux and I fully recommend the surgery. I have had one incident where I did vomit, it hurts, but still don't regret the surgery. The symptoms I was dealing with daily was far worse than the surgery. It is a rough recovery but, again, well worth it. I had to change my eating habits because it causes you to have excessive gas. Honestly, as painful as your daily symptoms are the surgery will be manageable. My doctor was amazing and took great care of me with recovery.

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  • Posted

    I too have suffered hh for 2yrs now & also get pain in my back - under my shoulder blades & down my left arm. It isn't constant, but when I get it - it is very painful. I used to think it was a heart attack, but I am pretty sure it's 'wind'. Drs say you shouldn't get 'wind' there, but my father used to get it in his neck (though the drs said it wasn't possible). He would rub where the pain was - & belch, & the pain would go. I have tried rubbing my arm when I get the pain & often find it will go. Try it - it's worth a go.
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  • Posted

    Hi

    I know how you feel.

    I have suffered with this also for many years.

    It does drive you crackas.

    I have got another appointment with the specialist tomoz and I am pushing for an operation, does your stomache swell up? mine does, it is also worse in cold weather.

    Steve

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    • Posted

      Hiya Steve I get really bad pain in my chest, back, arms and my throat always seems sore ? I too have the stomach swelling it is dreadful ! my GP says it is IBS ?? I am gonna push for the operation too.

      I feel like I cannot breath and when I lie flat i can't catch my breath ? does anyone else suffer with this ? I also feel like there is something moving in my chest and throat and the pain is awful so I have to prop myself up ! sick and tired of it all

      But yes tummy does swell

      Sandie

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  • Posted

    Hello

    I am a long term sufferer with Haitus Hernia and had the op plus a 2nd repair. I also now have Chronic Pain Syndrome. from other operations. The pain in the arms and back could be some kind of displaced pain from IBS type symptoms. Pain travels and so does wind- if it cannot go the normal route - and you can literally get pain anywhere in the body as the Central Nervous System gets distorted.

    Hiatus hernia operation can be very quick and easy - maybe a 4-6 weeks if it is relatively straightforward and the surgeon has experience in this procedure - make sure it is not the junior surgical registrar doing this procedure, unsupervised as can happen with these type of operation. But it is major surgery despite what the surgeon may say - my GP says it is one of the most difficult and traumatic operations going. Make sure you really need it as it one of those procedures that surgeons like to perform to get experience! They tell you - after three days you will be back at work which is complete nonsense.

    You tummy does not swell up but it is excruciating painful for at least a week and for me this went on much longer so take the painkillers for a while - not anti-inflammatories at all even with Lanzopruzole as some doctors try to give you - this will irritate the scar tissue. Use Tramadol or Codeine and take laxatives. Follow the instuctions about diet and be very careful to stay of a light liquid diet for as long as you can. No meat. Begin to love vegetable soups and carrot juice! Hope that helps.

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  • Posted

    Hi pinkmignon I don't get the acid feeling you have discribed in the arm and back, but I do get pain under the left arm in the armpit area and my left arm seems to twitch of its own accord also get palpations in the left side of my stomach. Had the same kind of anxious feeling as you thinking I'm having heart attacks and ect.GP's can be very frustrating they don't seem to understand much about your condition and one I saw did'nt seem too care too much. I finally meet a great GP who referred me to a consultant. My advice to you is too keep goin back to your GP  and explain what affect this is having on your day to day life and mental well being and don't take no for an answer off them , Until he or she refer's you. Some times he/she who shouts loudest with the nhs shouts last!! Best of luck hope you get sorted soon.
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    • Posted

      Hi Luke. I think I get the same as you. I was diagnosed with hh but I've never had the acid reflux. Started with kind of palpitations or spasms on my left side. I burp a lot and get travelling pains in the back, buttocks and feet. Very weird. Makes you tired and feel weak. Been on tablets to stop acid but I don't get acid. Really fed up with my gp. Doesn't seem too concerned but I'm getting frustrated feeling like this now
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    • Posted

      Hi Steven, thanks for the post. I am experiencing exactly the same as you and I wasn't aware that buttock pain, palpitation in my left arm and pain in my left foot could all be linked to a HH. I have been trying to control things with a strict diet and lots of water plus 30mg of Lansoprazole for the last two weeks. Things have improved a little but are by no means cleared. How are you now? I notice magnesium being discussed in the thread, have you tried this or any other remedies? Thanks.
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  • Posted

    Hi, you posted over a year ago and I wonder...

    how are you coping with the hh now? 

    I'm scheduled for surgery on the 9th Oct and frankly I'm dreading it, but hoping it helps as my symptoms are similar to yours and unbearable. Im in a lot of pain already so not worried about that but I'm bringing blood up which is controlled by lansoprazole though it comes back within a few days if i have to stop the the meds for any reason (ie the horrendous tests)

    I hope you are faring better and that I hear back from you.

    Babs 

    I

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  • Posted

    hi same here have suffered like this for 4 years now been seeing a orthapeidic consultant because i do have a bulging disc however he informs me that the problem is not my back and refers me back to doctor who is sending me to have the camera down into the stomach because he says i have a hietus hernia my syptoms are it starts when i lay down get rib soreness which in turn makes me feel like i have belly ache also i have this niggly pain in my back between the shouder blades comes right through to my chest also hurts when i breath get a burning feeling under my arms can`t sleep i average about 3 hrs per night which is draining me of energy the nhs is very slow at giving appointments i have waited now for 3mths not very happy have worked all my life and have contributed into the system

    just have to wait and see now hope you start to feel better and hope my reply helps thank you albert

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  • Posted

    Hi there,

    You posted over a year ago and I wonder how you are getting on?

    I have been unwell since last October with symptoms similar to yours, but with chest pain too. I am taking the same medication but this doesn't work, have seen umpteen doctors and had tests galore.

    Eventually diagnosed with small hiatus hernia. The ph manometry test revealed my LES is too tight! so it seems surgery is not an option for me.

    Hope you are feeling better by now!

    Lynne

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