Hidradenitis Suppurativa: You Can Have your Life Back!

Posted , 72 users are following.

Hi. My name is Catherine and I have been suffering with HS for over 23 years. They first started out as red bumps in the vaginal area. After repeated infections my doctor surgically removed the tissue. That didn't work. The lesions started appearing in the same location but on the opposite side. My physician didn't know what these bumps were and in 2009 he sent me to a dermatologist. She took one look and told me instantly that I had hidradenits suppurativa. I was in shock. I read up on everything I could find. I was put on doxycycline for the next 4 years and was miserable. The anti-biotic would cause me to have yeast problems and subsequently I was put on diflucan to deal with the yeast. It was a never ending problem. Now my red bumps were rupturing and weeping. This was new for me.

I went online to read as much as I could about HS. I read medical information and blogs. It was highly informative. There was a commonality of humiliation and pain, depression and the desire to feel normal. One entry caught my attention. It was about a woman who had suffered from HS and finally went to a Naturopath. He gave her two food sensitivity tests,an IgE and an IeE. She found out what foods she was allergic to and immediately removed them from her diet. She is now HS free.

I couldn't afford to go see a Naturopath and so I decided to start on a diet of protein (chicken) and salad (basic lettuce,cucumbers with olive oil and vinegar), vegetables such as green beans, squash, carrots, english peas,broccoli, cauliflower. I removed eggs, dairy, gluten which is in bread and a myriad of foods which include flour. I also removed Nightshade veggies and fruits.

Once I was stable ...which took about a week, I added eggs. I had no flares. That food was safe. I then added dairy products, again no flares. I added beef and fish with no problems. I was anxious about adding flour/gluten back into my diet as I was sure that this was the food group that I was sensitive to. However, after introducing gluten back into my diet there were no flares. That left me with only one group to test and that was the Nightshade veggies and fruits. This group includes: white potatoes, tomatoes, peppers including paprika (not white or black pepper), gooseberries and goji berries. These foods have alkaloids in them to fight off bugs. Interesting?

So, I added foods from this group into my diet and ....I FLARED!! I finally had the information that I needed. I immediately went through my pantry and removed any and everything with red pepper, tomatoes,and paprika. Paprika is everywhere. It is in hot dogs, mayonnaise, mustard and seasonings. If you eat processed foods...beware as it is in everything. I learned to read all the labels of everything at the grocery store and even double check it once it was in my pantry.

I am in remission and I intend to stay there.My lesions are flat. All that exists are scars and I can live with that.

I am certain that HS is the body's response to a food that the body is allergic to. It is not due to "not being clean enough" or due to being overweight. It will only respond to antibiotics for a short term and then those fail to work. Topicals don't work either. I do believe that once HS comes into your life, it takes over everything that you love. I was a victim to this disease for too many years. I have now, taken back my life. You can change your diet and be free. I recommend that if you decide to find out what foods you may be allergic to in order to be free from this disease that you consider incorporating these supplements: turmeric (wonderful anti-inflammatory), zinc, vitamin c, a probiotic, and green tea for itching It is a natural anti-histamine.

I hope you find this helpful. God Bless You

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  • Posted

    Hi Catherine...great that you had remission.I wanted to know if you are still continuing to be in remission?
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  • Posted

    Hi catherine ,your post just chnage my life,after 5 day without alkaloids im in remission,like a miracle.

    Thx you so much and im working to spread the information

    wish you luck

    peace and love from canada

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  • Posted

    Very interesting reading thank u
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  • Posted

    Hey i am suffering from hs really bad I would like to talk to you so please comment if you can
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    • Posted

      Yes i am i cry every night like now i have one n i can barely walk i gotta constantly miss School (college) because of this the medicine is not working i just want surgery done because nothing seems to work i just want m life back
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  • Posted

    I have just posted up a discussion and this thread has really intrigued me.. Think it's time to go through my cupboards ;-) 
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  • Posted

    Catherine thank you so much for helping my wife and family of 5. My wife is 31 and has delt with this condition since 17 yrs old, probably thinking and feeling she was disgusting "what a horrible feeling for such a beautiful, well put together woman" I can not express enough gratitude with you sharing such a tragic story. We "mostly her" will go to sleep tonight feeling like there is hope, again THANK YOU so much for being such a strong person sharing your story. Again time and time again i have felt only like a number not like a human of god and you now inspire us to write back we want to know if you are still in remission and are looking for your best advise. We are going soon as possible to purchase TUMERIC to start the healing process. I owe you more than you could emagine, again we thank and luv the info... Be strong Live Well... TTYL
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  • Posted

    I think it's fantastic the amount of self-researched information online about HS and potential remedies. I also think it's disgraceful how sufferers are left to sort it out themselves. I've only been diagnosed recently and have only really been having problems for about 18 months, which is nothing compared to many others stories I've read on here. I'm going to try going to a Naturopath but I suspect most of us suffer for the same reasons, and that is an allergy to nightshade vegetables and fruits as catherine aluded to. I may try cutting out these first before paying a fortune to a "professional". I was also shocked to find that a HS charity only had £4k in donations last year. Surely there's more that could be done, it may be the most simple of triggers. Thanks for your story Catherine, it is very brave of you as it is a terrible, embarrassing disease that really deserves more funding and research.
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  • Posted

    Hi Catherine, 

    This post is so inspirational!  I too have been thinking about gluten free as a treatment option.  How are you feeling now?

    Thanks for sharing! 

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