Hidradentinitis Suppuritiva

Posted , 5 users are following.

Hey everyone,

Here latley i have been having troubles with understanding HS. I am a hypochondriac but, i get very worried about my boils and wonde if i was missdiagnosed with HS. My more common areas of HS are my groin, inner thighs and under my breasts. It seems like i constantly get them in the groin area, it is always on the part of the vagina where the hair grows i currently have 6 in the vaginal reigon and only one has a head which has burst so my first question is 1)Does your bumps when burst and draining turn red? 2)how long does it drain ; and how long is it that the reddish color last?

3) Do you sometimes have two bump/boil heads that are side by side one another ?

4) Does it ever itch fir you?

5) Do you sometimes get a bump/boil that goes away but never breaks skin, and it comes back and repeats this process till finally it breaks . ?

please help assure me im not alone in these symptoms your chat will help greatly.

thanks

0 likes, 7 replies

7 Replies

  • Posted

    Hello, I am so sorry that you are going through this. Unfortunately what you are describing is what we have/ are all going through. I take bleach baths. to kind if jeep them down. i add one cup of bleach to a tub of water. soak for about 20 mins. Then I stand up and take a wuick shower to get the bleach smell and residue off of my skin. I also used Levicyn spray. Its prescribed by a dermatologist but it really keeps them down. You may want to find out what your trigger are to keep it down. In this group some people say Sugar, chocolate, dairy, beef, nightshade vegetables etc. I wish you much relief

  • Posted

    This describes HS to a tee. I can always tell when it is going to be a large owie when it itches first. I have been trying to figure out my triggers. Gluten and sugar for sure. I also take CBD pills ( no THC) and that help a LOT. I also have some antibiotic gel that works well topically. I tried Humira and low dose antibiotics for years with no relief. You have to find what works for you. I broke out in a rash from bleach baths. So I wish you the best and hope you can find answers!

    • Posted

      Be careful with CBD pills that do not contain THC. Studies have shown that THC (even in extremely low percentages - that can't have a psychological affect) is actually necessary in order for CBD to work. Substances that contain CBD but not THC are derived directly from the hemp plant and contain multiple known carcinogens. If this concerns you (like it did me) there is plenty of research online that can be found. Wish you the best!

    • Posted

      thank you! i have a few cbd rubs!! glad i am not alone you guys have helped

  • Posted

    Hi,

    Unfortunately, your description is extremely accurate for my HS as well. It is a nuisance to say the least. This forum is helpful in that it's good to know that someone else understands the challenges of living with HS.

    My flare ups are worse during the summer. Not sure why...

    • Posted

      yea mine are bad now that it is summer, i think the heat makes it worse from whag i have been told it likes to thrive in warm places

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