Posted , 4 users are following.
I had HIFU in Mexico with the most accclaimed doctor, Steve Scionti from Hilton Head & Boston, he flew down to meet us in Mexico, the hosoital was perfect, staff was lovely, We were in at 8AM and then on the beach having lunch at noon, feeling a bit grroogy with a foley cathereter. If only that would have been the last of it, My first PSA was ,2, then ,3, then ,4 Well at least it wasn;t 8. like it has been, but the rise gave ma a knot in my stomach made of worry. It continued to rise until it was back to 8, this took 8 years. Reluctantly I went back to see Dr. Scionti, who is now in Sarasota, Florida, he has his own health problems now, he has Graves disease, I could feel he was uncomfortable and so was I, He put me on Casedex for 3 months, to keep it from growing . After 3 months I went back in and he gave me a biopsy of 12 needles, which shocked me, I was unhappy about that as there was no question my cancer had returned, (Later I would request a copy of this and he ignored my request..... how do you guys feel about that?)
So, the next day I had another HIFU, he announced that he had gotten it all, I was given the catheter & bag to void in and went home. I noticed very little grey in the bag, my first HIFU had a lot of cooked tissue. Once again, no pain, no loss of function.
After 3 months I had a PSA.....it was 13.50 SHOCK, Scionti said sometimes the gland takes a while to heal and could put out high readings,... wait and test again. So, 4 months later I test again....16.88 So, in 7 months since HIFU my PSA has doubled.
What could have caused this? The biopsy? Dr. Scionti wants to give me a bone scan now, to see if it escaped the gland. Wouldn't his MRI guided ultrasound have found that - if it was the case? I really know very little. Does anyone have any thoughts on what I should do? I am 72 y.o.
0 likes, 3 replies