HIFU Treatment didn't work
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I had HIFU treatment in March 2015. At that time, my psa was 7.31. The biopsy showed 9 samples out of 12 had a gleason score of 7 and 8, and a tumor grade T2C. I had the whole gland ablated.
After the treatment, the psa was close to 0. Two and a half years later, it climbed to 5.5.
HIFU could work on patients who only need a partial ablation. But in my case, the whole prostate had cancer cells. Another thing that I should mention. I ended up having impotence.
So for the men who have prostate cancer in the entire gland, HIFU treatment might not be the best choice of treatments.
0 likes, 9 replies
barney34567 Davey22
Posted
I am sorry to hear your treatment didn't work so well. Have you had any recent scans to determine the extent of the PCa?
Davey22 barney34567
Posted
I'm getting another PSA test in a couple of months. If the reading is higher, I need a Axumin PET Scan to determine if the cancer hasn't spread beyond the prostate gland. If the test is negative, I need another biopsy done with the assistance of a 3T Multi-Parametric MRI
barney34567 Davey22
Posted
1. Look into undergoing a PSMA PET CT rather than an Axumin PET scan as I believe the PSMA has far more documented history as to the quality of the imaging. I had three such scans in a year.
2. It may be the case the the PSA rises even if there is nothing visible on a scan. That means that the PCa is microscopic and is too small to image.
3. If you ever need a biopsy then I agree a 3T MRI before the biopsy is vital. And the iopsy should be an ultrasound guided transperineal biopsy, which has a much lower risk of sepsis than the common trans rectal biopsy.
Davey22 barney34567
Posted
Thank's for all your info barney. I wasn't aware of a PSMA PET scan.
I'm getting in touch with a couple of doctors for their opinions and comments. I'll let you know the outcome
billwill Davey22
Posted
Pills helped to get a reasonable erection. A penis pump and a c**k ring helped even more. The thing that helped the most was penile injections as it gave me more girth, length and firmer erections that any of the other things I tried. Still I have definitely lost length and girth compared to before HIFU
As time went on I was able to handle the incontinence with one pad a day.
My psa started to rise gradually over the last 2 years and was up to 1.6, An MRI on June 11/2017 showed abnormal looking tissue on the anterior of the prostate. The tissue was removed July 14/2017 during a mini TURP as my doctor called it and was shown to be cancerous with a gleason of 3+4. I will be having another PSA test within a couple of weeks to see if it has gone back down to near zero. If it has great. If not radiation.
Since this mini turp I am used 4 pads or more a day or 2 if I use the penis clamp. As for an erection not so good.
Davey22 billwill
Posted
I went to Can-Am HIFU in Toronto,
Procedure done by Dr. Barkin
billwill Davey22
Posted
Davey22 billwill
Posted
I remember talking to him on the phone before I decided who would be doing my procedure.
They use the Ablatherm and Can-Am uses the Sonablate 500. In my case, I believe that some was missed in my treatment, now I have to go through the whole process over again. Now I have more knowledge and I'm getting the 3T Multi-parametric MRI fused with the biopsy which I didn't receive before. I'll see what the doc recommends for treatment.
billwill Davey22
Posted