High CRP test
Posted , 4 users are following.
So, I've had hives now for 7 weeks and still cannot get rid of them. My doctor ordered blood work. She said everything was normal but when I got a copy of the report myself, my C-Reactive Protein in 11.64, the normal range is 0-3. She didn't even find this worthy of a phone call to me. The more I read about what this COULD mean, the more worried I get. For those of you who have chronic hives, do you also have high CRP levels in your blood?
0 likes, 10 replies
wendy62425 Meemaw29
Posted
thank you
wendy
Meemaw29 wendy62425
Posted
Kittygan Meemaw29
Posted
Hi Meemaw
I have had Chrinic urticaria for over 4 years, which is is a mixture of hives, wheals and little blisters, I mostly have a reaction to the sun, which brings me out in blisters, hives & wheals, the wind burns my skin because it's so thin from my prednisoline medication has I take 8 per day, the rain makes my skin itch like mad 😫🤦🏽???If I get over heated in my body temperature has I have no control, that can bring my skin up, even down to pressure like someone Squeezing my arm can bring my skin up again, and also Stress and the cold, that's the worst, there are 10 different type of Cronuc urticaria, if you have time, take a look it might help diagnosis which ones you may have.
I am under St. Bartholomews Hospital EC1A 7BE and have been for just over 2 years now. It took me 4 years fighting my doctor and diagnosis my self and after 2 years of test, blood test etc... I have finally been accepted for the Xolair injection alone with another injection called Omalizumab treatment. I had my first 2 injections in June 2017, I had my 2nd lot of injections on 11th July last Tuesday, my skin has come up worst. Am still taking steroid tablets prednisone, I also take Fexofenadine antihistamines 180mg per tablet, I have to take 4 per day so that's 720mgs per day, and that's with out all my washing creams etc,
This is a 6 month course of injections, I also have to fill out weekly Urticaria Activity scores sheet so I qualify for my next months injection and it helps keep a daily record of how the treatment is effecting my skin.
I try deal with my condition the best I can, I don't use public transport because am also a amstma sufferer and when I use public transport I get so ill because of people coughing everywhere and don't cover their mouths and if effects my respiratory I end up getting chest infections and crackling in the bottom of my lungs, so I have to drive everywhere and yet am not intitled to a disable badge and it cost me a fortune for congestion and parking which some times can make it difficult to get to all my hospital appointments.
Now I have also got Angioedema which I get swelling within my Marrow born which causes me to swell like my hands, face, feet and even my stomach and I only weight 7stone 7lb, I spend most of my time in my home and only go out when I really need to that's how frighten I get about mixing around the public people, I don't drink alcohol because Alcohol can also be a trigger for Chronuc Urticaria please remember that.
I would like to arrange a meeting place maybe once per month to help people like me and you come together and share our view and experiences and you never know we just might conquer the Cronic Urticaria with our own experiences and knowledge
Kind regards
Kittygan Wright
P.S I hope I have help you in some way, I fully understand how you feel and what you are going through and dealing with every day on a daily basis xxx bless luck
wendy62425 Kittygan
Posted
you mentioned that you are taking 8 Prednisone a day. How many Mg and how long have you been taking it?
wendy
Kittygan wendy62425
Posted
There 5mg each and I've been on them for around just under 3 years but I've been getting down to 3 per day and my skin flares up extremely bad from my face to my feet.
Meemaw29 Kittygan
Posted
Geeze, that's awful....long term steroids and you still break out! I feel so badly for everyone of us in this forum....it's miserable and no one understands unless you have truly lived it!
helen14499 Kittygan
Posted
Hi kittygen Ive had urticaria now for 6yrs going on 7yrs now & been under a specialist at the Southern General Hospital . I too get omalizumab injections & on my 3rd lot of 6mths injections along with daily doses of Fenofexadine 2x180mg (x4)a day Cetrizine 10mg (x2) Montelukaust(1x) & Rantidine 150mg (x1). In the past couple of weeks ive also been prescribed prednisone starting on 8 x 5mg down to 7 etc etc over 2wk period only to end up in hospitial when my body was covered in rash & my lips had swollen i was given 2 injections of adrenaline & 4mg of chlorphenamine by paramedic on route to hospital. I am now at the stage of hopelessness. & mentally very fragile .And some sort of support from other suffers would be a blessing as no one else understands.God Bless. Helen.
Meemaw29 helen14499
Posted
wendy62425 Meemaw29
Posted
Hello again
my Urticaria seems to be an autoimmune issue due to stress......unfortunately I am dealing with a lot of stress now so I'm sure that is the reason why I'm getting some hives again. Also what you eat is very important. Drinking lots of water. Little caffeine and no alcohol. Quercetin and L-glutamine are good supplements to take. My doctor at Johns Hopkins here in the US has been wonderful. She was the only doctor that was able to get me in remission.
Meemaw29 wendy62425
Posted
I have heard of the Quercetin and L-glutamine but haven't gone to the health food store yet to purchase. I am surprise to see how many people have been on steroid treatment long term. My doctors would not allow me to stay on longer than 2 weeks or so....