high ESR

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After reading an earlier discussion ESR was mentioned. I have had unexplained high ESR for almost 9 years (and high crp). Could this be connected to my recent diagnosis of hyperthyroid?

 

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  • Posted

    Hello Netti:

    My name is Shelly and I am a nurse in the USA.  I have Hashimoto's thyroid disease since 1987.

    You most likely read my post about ESR.  It is an important test to show markers for autoimmune disease and cancer.

    Yes, it can be related  to Hyper and Hypo autoimmune disease and also to Lupus, and certain types of cancers. 

    If you had it for 9 years, then you very well may have an autoimmune condition like Graves disease in you.  Some other tests are: TPOA antibodies and TGab also.

    ESR is a good test to help show markers for certain autoimmune cases, that could be missed by the other tests normally used.

    Any questions just ask,

    Shelly

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    • Posted

      Hi Shelly. I have a strong family history of autoimmune! My mother has hashimotos and polymyalgia rheumatica. Her father was type 1 diabetic. Over the years since the ESR was picked up at a routine blood test I have seen numerous doctors and have had scans and further testing but nothing was discovered. At the time I had no obvious symptons so eventually I asked to be discharged from the various time consuming clinics.

      I am feeling much better in my energy levels recently although my heart still is too fast at times and bothers me at night leading to insomnia. I take propanolol 40mg x 3 daily. I am taking 20mg carbimazole per day (in the evening). I'm also on ferrous fumerate to get my ferritin up.

       

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    • Posted

      Hello Netti:

      Autoimmune can lay dormant inside of you for many of years, and sometimes pregnancy triggers it or stress on the body can trigger it.  In some people it hardly is a problem and others it ruins your life. Both my sister and I have Hashimoto's mine is worse than hers.  My father had no symptoms of Hashimoto's but his sister  (my aunt), did.

      The  ESR test can show markers for autoimmune which can include Hashimoto's,  Type 1.5 Diabetes, Lupus, Rheumatoid Arthritis and even cancer.  Most of these diseases can be passed from one generation to another via DNA.  In some people it can skip, over a male and then hit in his children. 

      As long as you are doing well on Carbimazole and the Propanolol that will keep it in check that is good.  It is a good idea to know what is in your families DNA so if it gets worse you know what you have.

      Yes, keep up the Ferrous Fumerate, we need all our minerals and vitamins to be in proper order.  This is so important!  Avoid gluten it is a trigger to bother autoimmune diseases.

      Keep me posted if any changes, any questions just ask.

      Shelly

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    • Posted

      Hi Shelly, thanks for your interest. My younger brother has also been hyperthyroid and had RAI at age 27. My elder brother is wondering if he has escaped! My youngest child is 18 so been a while since I was pregnant :-) However since I was 40 I have had numerous ailments that hang about for a year or so and then go. eg frozen shoulder, vertigo, occipital neuralgia.

      After posting this morning how good I was doing I have had a bad afternoon - that's the last time I tempt fate like that! It's probably that I've been doing too much to catch up what I didn't do for 2 months. At least no work today so had a nap instead.

      I am writing down questions to ask my doctor next time I see her - the first one is: am I menopausal or is my lack of periods thyroid related. I'm 49 and haven't been regular for about 5 years now. Last one was September 2015

       

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    • Posted

      Hello Netti

      Normally anywhere from age 48-52  menopause happens. So the rule is 1 year without a period is considered  to be menopaused.

      Most of us can be delayed or be irregular  due to our thyroids. I  would say they can draw for your  Estrogen and can tell from that.

      Most OBGYN's will say 1 year without a period is the rule.  I also heard that for some us it can take a long time to change phases (up to 10 yrs)  from "Peri Menopause"  or in between  to fully menopaused and that is no fun.

      I am in the same boat with you.  LOL.

      Regards,

      Shelly

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    • Posted

      Hi Shelly. I saw the endo again yesterday. My T3 has dropped to 10 (just under range (11-20) so I'm to halve my carbimazole to 10mg. I am feeling so much better than when I was diagnosed in December (T3 at 55 then). My bad day above was the last time I had one. Really hoping I can continue at this level and start living again. Spring around the corner so it has come at the right time. Hope you are feeling well :-)

      best wishes

      Netti

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    • Posted

      Hello Netti:

      Good news! YAY!  It is nice to hear an update and keep getting better everyday.  If you ever need anything, only an e-mail away...

      Shelly

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