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High iron levels?

Posted , 6 users are following.

xomami
xomami

I been trying to figure out what is wrong with me as I suffer with a list of issues that I thought I had a "autoimmune" illness as I had a + 7-8yrs ago. But the DR tested me again it was - however she noticed my blood was showing high levels of iron? I don't take supplements so the nurse was going to let her know, I have a follow up the 31st. My problems are

-Cardiovascular (arrhythmia, chest pains, horrible shortness of breath, sometimes pain when breathing)

-Gastrointestinal (day's I get diarrhea, or constipation, nausea, lack of appetite, dull/pains in my prancreas right area)

-Joint (over the year's my left wrist was affected sometimes it flares up & I can't move it just hurts so bad, now my right wrist is affected, I had random episodes over years of achy joints but now my neck/spine affected I get pains in them can't look down too much, my ankles sometimes feel swollen and hurt, bascially my joint pain is worse than ever I can barely workout like I use too as any wrong movement I feel like I hurt my bones)

-Muscle (I get a lot of leg cramps, working out always cause abnormal swelling & pain than usual, I have had what felt like sciatic nerve issues)

-Mental (I have anxiety and after being sexualy assaulted as well as depression BUT it's different. All of sudden since Feb it's scary and different like something trigger it on a different level I know many illnesses can do this)

-Cognitive (my memory is so impaired now I can literally forget what I am talking about in seconds, mind confusion and fog)

-Reproductive (low sex drive not solely my sexual assault I been this way for the longest, irregular periods, abnormally painful , painful ovulations, sex can be uncomfortable, I also suffer from cysts, random pelvis pains) I am STD/STI free btw also my pap was normal.

Now for general symptoms

-abnormal exhaustion

-thick/curving nails

-weird surges like of adrenaline/tingling

-always hungry

-peeing a lot

-vertigo

-always feeling light headed get faint spells

- get these what feels like a heart burn in rib but not and makes it difficult to breathe in normally lasts several seconds but the other day lasted all day

-I have symptoms of hyperthyroidism /hypothyroidism

-episodes of increase thirst, cotton mouth.

-sensitivity to cold

-hand tremors sometimes

-hands or feet go numb sometimes

-hair thinning/shed hair easily

-back pains

-headaches (like migraines or in my eye get burning sharp pains in head)

-difficulty swallowing

-can't swallow pills

The list goes on....

Many of those I had for year's just got worse or developed.

Could all this be related to Hemochromatosis? As I know many are. Better yet, is Hemochromatosis the cause of my high iron levels? If not what other illnesses cause high levels of iron and relate to my issues?

1 like, 8 replies

8 Replies

  • xomami
    xomami

    Posted

    I forgot, I get bruises all over for no reason.
    • joyce1959
      joyce1959 xomami

      Posted

      Hi,

      All you have written could be me! I have, or have had all that you mention. I was diagnosed with Haemochromotosis last year ferritin 950, which is now down to 215 with fortnightly venesection. I am improving, but the worst has been the anxiety, depression and ongoing palpatations. Good luck hope you get sorted.

    • xomami
      xomami joyce1959

      Posted

      For me it's been the "joint" "cardiovascular" "mental" problems but everything else is quite a bothersome. I thought it was Autoimmune and had her retest as 7/8yrs ago I had exhaustion through roof and difficulty slight joint aches he suspected Autoimmune it came up + but when my current Dr tested again it was - . then she told me about my iron levels I looked into Hemochromatosis I was like whoa this sounds like autoimmune , a lot of the symptoms match my list and I am like my iron levels are high too? Maybe this is what is going on. But I am worried dead because I been having the worse cardiovascular problems ever I developed these issues past 2-3 yes but it's worse this year and as of this week I feel like a fish out of water with chest pains and pain in rib making it hard to breathe like a bad heartburn accept in rib. My anxiety took a scary turn this year I felt crazy at times! Like a surge of paranoia and adrenaline surges I am like no this isn't normal ..... But def having her look into Hemochromatosis as it can affect the organs I am really concerned about my heart etc. Glad to see someone relates! BTW I am 25

  • brenda96493
    brenda96493 xomami

    Posted

    I have just recently been diagnosed and Im 62 female. But 90% of your list could be my list. Ask for the genetic testing. I know many of those symptoms could go with several conditions but the hemochromotosis test is easy to know for sure.
  • Taurinegb
    Taurinegb xomami

    Posted

    I've had an autoimmne disease (Hasimoto's) for 20 years and now I have Hemochromatosis. Some of the same symptoms you have also.

    • xomami
      xomami Taurinegb

      Posted

      I assumed Autoimmune because 7-8yrs ago I tested + on my ANA but this DR did the test it came back - but I read that happens you do have a AI but idk I have a follow up the 31st
  • kristen72701
    kristen72701 xomami

    Posted

    I'm going through a similar situation. I've had tremendous joint pain for some time and decided to get it checked. I thought I had rheumatoid arthritis but my bloodwork came back as everything normal except all my iron levels were off. Doc said I might have hemochromatosis, may have Lyme disease too. Just had more blood work done and I'm waiting again...worrying too... I gave up googling because it made me worry about every disease under the sun. Just wait and see what the doc says!!

  • Kerfree
    Kerfree xomami

    Posted

    i can relate to all your symptoms it has been so frustrating trying to figure out what has been going on .

    Iron serum 192

    Ferritin (my Dr did not order)

    B12 1400

    slightly decreases number in White blood cells

    MCV 100.5

    red blood, hemoglobin, hematocrit normal

    i have been referred to a hemotologist

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