High liver enzymes, chest pain and gallbladder sludge?
Posted , 6 users are following.
Hello, I'm using this as a last resort because hospitals don't seem to be helping me at all. I am a 21 year-old, white, female living in the UK. Medications I take daily are propranolol and sertraline for depression and anxiety. In 2016, I was admitted to hospital for a week due to severe vomiting, diarrhoea and back pain radiating in my chest. As I was there I spiked a high temp and was given bloods, a CT scan and other forms of tests. My doctor found a cyst on my ovary but other than that he could not conclude what was wrong with me. He did bloods, and my liver enzymes were fairly high GGT - 291 (normal: 10-53) and ALT - 123 (normal: 10-50). The weekend came and there was strikes for doctors so unless you were severely poorly he said, you were discharged and since I was undergoing investigation and he couldn't seem to work out what was wrong because they ruled out tummy bugs etc he thought it was a kidney infection perhaps, and I was sent off under his care in outpatients. He sent me to a gynaecologist, sent me for a colonoscopy and an ultrasound. The ultrasound showed 'grit' in my gallbladder he said not a whole lot, but I might be prone to gallstones in middle-aged life. Fast-forward a year, in June 2017 I started with a terrible pain in my chest in the middle of the night. I was awoken at 3am and it radiated into my back and was in the centre and towards the right-hand side. I put it down to stress because I have anxiety and waited until the pain had stopped which was about 8am. I later returned to uni thinking it was a one-off. It kept occurring sporadically for the next few months, the same pain in the middle of the night and lasting 5 hours or more. It felt like a crushing pain and I would become breathless. I went to my GP at home and she thought at first it was stress, I then went back at a later date (few months) and she thought it might be acid-reflux so gave me omeprazole. I took this but chest pains still occurred randomly in the night. At a later date, she suggested it could be costochondritis but still presumed it was acid. Anyhow, exam time came around in 2018, and I had a really bad one - worse than any before and it lasted throughout the next day which doesn't usually happen, it's normally sore as though I've been punched and there's a bruise, but it was the same pain that I have in the night. So, I decided enough was enough and my boyfriend was concerned so I rang 111 for advice. They wanted to send an ambulance out but I refused due to a passed incident where an ambulance was called through 111 and I got into trouble by the uni because apparently you should contact the porters first. So, they got a Doctor to call me back and he said go to the nearby Drs in the morning and it's most likely stress. I then, went to sleep still in pain but was awoken at 2am with the most excruciating chest pain. I couldn't breath properly and was rolling around in pain. I felt so nauseated (which I usually do) so my boyfriend took me to A+E. By the time I got to see a nurse it was starting to calm down (it starts just really bad, and then starts to very slowly calm throughout the night). She took an ECG - nothing. And bloods showed a high D-Dimer which I have Factor V Leiden (makes you more prone to blood clots) so they wanted to rule out a possible Pulmonary Embolism, which they did. I was then discharged with an unknown cause, yet again. I went back to uni and my Mum begged me to go home, I refused because of my exams. The next day, I got them again (in the day this time) and my boyfriend rang my Mum which she picked me up and took me to A+E. After a 6 hour wait, it was starting to wear off. The doctor wanted to rule out a PE again, which they did. They told me that it was possibly costochondritis and that I should take paracetamol all the time to keep on top of it and to double omeprazole which I did. Btw, the omeprazole has not helped in the slightest with these pains. The next day, I went to see my GP because I was fed up of getting nowhere with the hospital. She recommended more bloods and gave me some codeine. The bloods came back with a high GGT, ALT and C-Protein - she wanted me to have an ultrasound of my gallbladder and liver. I didn't ask for the numbers because it was telephone consultation and it slipped my mind. I had the scan and it showed that my gallbladder was jam packed full of sludge which was the grit my consultant referred to in 2016. My doctor suggested I should have the gallbladder removed and referred me to a gallbladder specialist. Before this, though (I've forgot to say) I've hardly had an appetite, not ate much at all, and have been having a lot of joint pains and extreme fatigue and nausea. A couple weeks later, and the consultation came around and he was awful. He made feel so uncomfortable, he was very rude. He decided to send me for an MRI and GI endoscopy (camera down the throat). But he seemed a lot more concerned with the liver than the gallbladder which I didn't understand due to my GP being a lot more concerned with the gallbladder. He wondered if I had a blockage in my bile duct as well. So, on the 28.06 I was ill again with the chest pains, breathlessness and nausea including dizziness and abdominal pain. My mum called 111 for advice and stressed it's not cardiac related and biliary tract related though the operator didn't take that on-board and sent an ambulance. After an hour and half they arrived. The paramedics were wonderful and rang a Doctor to ask for advice because they knew if I was sent to A+E they'd do the same they've done before and just throw me out with out any conclusion. They suggested I visit my GP and take more codeine. On a side-note I also have a rash I've had since all of this happened, it only appears on my feet and hands when I saw a dermatologist she wrote I was self-harming, which I am not. It's like a blister and is wet and then scabs over they sort of look like burns. Anyways, the paramedics believed that could be to do with the gallbladder and I was surprised my GP or Drs haven't made this conclusion before. I went to my GP the next day (29.06) and I finally asked my bloods for the liver enzymes: GGT - 436 and ALT - 200 which obviously have elevated since 2016 and I didn't realise they were so high. Apparently, GGT (when I've googled it) is in relation to alcohol and I literally don't drink a drop (it's not my thing). So, she suggested just to ring the specialists secretary and ask for the MRI date (which I have and they don't know when it'll be) because I've got my deferred exams in August. And I'm not well enough at the moment to be revising. So that's the end of my story, I'm still have no conclusion as to what I've got and feel at a loss. I just want an answer and some help so I thought someone might have had a similar experience or know what I can do to help myself? (I have had this chest pain/attack over 15-20 times in the past 12 months)
0 likes, 16 replies
Scottie13 TMK16
Posted
Really does sound like your gallbladder is causing most of these issues. When a bile duct gets blocked it really messes up your bloods and it sounds like it’s been happening a lot. I was initially told I had a urine infection after a really bad attack. Couldn’t get into any position that was comfortable and no amount of strong painkillers helped. FYI some people say codeine makes their pain worse too.
I’d keep going back to GP and see if they can speed things up. I was sent to surgical unit as an emergency for cholecystitis twice and ended up with the gallbladder out on second admission. Honestly unless the surgeon has actually had that kind of pain then they have no clue how much it hurts and fob you off. Please keep going back to GP/out of hours/a&e until something is done xx
TMK16 Scottie13
Posted
Thank you for you reply. Did you have high enzymes in the liver too? My doctor has wondered if it is a blockage in the bile duct but they aren't too sure until I have the MRI. I have found nothing really helps the pain other than waiting for it to subside. But my doctor recommends it, so I have been taking it though it doesn't really touch the pain. Gosh, I am so sorry you have had a bad time with the gallbladder too. The thing I don't understand is I eat healthy and have no (apparent) causes of gallstones/gall sludge which doesn't make sense to me. Did you have an ultrasound for you gallbladder? Thank you, I will. The next time I have one, I am going to go straight to A&E, as my Doctor recommended. Thank you again for you reply and hope you are doing well after the surgery. How is it now that the gallbladder has been removed? xx
Scottie13 TMK16
Posted
TMK16 Scottie13
Posted
I wonder why my bloods are always so high!? Ah that makes sense, my GP told me the smaller ones are worse and they are the ones that can easily get into the bile duct. I asked for a HIDA scan to the gallbladder specialist but he said there was no point in that, which I didn't understand. Oh gosh, that must have been terribly painful. I am glad one listened also. I think sometimes the patient knows more because it's happening to them!! How long was the recovery process? That's good, I am glad you are feeling better. Have you stuck to a low-fat diet since removal? I keep reading you have to eat low-fats after removal and was wondering if you actually do? xx
fernando90225 TMK16
Posted
Sounds like gallbladder to me. High level from liver. They are putting you aside for now. With sluge in gall and stones is not good. You need to insist you are having gall attacks. And need it out. That will stop attacks and nausea. You need zofran or raglan. For nausea. Bad fall can ruin your whole digestion. Good Luck you. 😎
fernando90225
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TMK16 fernando90225
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Thank you for your reply. I have insisted but no one seems to take it seriously because by the time I see a doctor in A&E (which is usually a six hour wait) the pains have calmed down. Ah okay dokes, I will ask my Doctor about the medication for nausea - thank you. Thank you again
Guest TMK16
Posted
Certainly no-one here can diagnose you it's just our experience and we all have different ones. It's totally unprofessional of any paramedic to diagnose they aren't qualified to do so.
To be honest there are so many symptoms in your post which may or may not be related to each other and seems there have been both a lot of tests and a lot of specialists involved it sounds almost like a too many cooks situation.
I was misdiagnosed and treated for 2 years before the (gallbladder) cause was found. I had to ask for a change of GP and a change of consultant twice.
It feels like a constant fight against the system and it's both draining and depressing but its really all you can do.
In your current situation I would discuss with my GP the symptoms and general possible causes and get a referral explore the issues one specialist at a time from the most likely to the least.
Do some research about both the hospitals and consultants in your area and if one seems good to you ask for referral to that particular one. For example if you believe it's gastrointestinal ask for referral to a totally new consultant.
Best Wishes
TMK16 Guest
Posted
Thank you for your reply. I know, no one can diagnose me but I wondered if anyone had any input just because I am so lost and confused with whats happening and I have read other discussions on here which have seemed to have helped people with similar problems. I wondered, but they were so nice and one was a nurse for several years so they said they'd seen similar skin rashes on those with celiac or gallbladder problems. Yeah, perhaps you are right - that is what is confusing me because I have had so many problems it is hard to recognise if they are related. Gosh, that sounds awful, I am sorry. Did you have chest pains with the gallbladder problem? Yeah, it really is draining I think I may change consultant after the MRI. He was so rude, my Mum asked questions and he didn't even look her in the eye and she asked if the gallbladder could burst because it's so full and he said 'if a cup of water is full, does that mean it's going to burst?' so with which my Mum replied, 'so it can't burst then?' and he said 'yeah, it can' !?! He was just awful. I know it can burst and perhaps not through gall sludge but there was no need for his rudeness. Yeah, that's a good idea. I am going to make an appointment soon so I'll discuss options with her soon. Thank you, for your reply and help and hope you are doing well. Best wishes to you too
Guest TMK16
Posted
Hi yep, with anxiety as well your GB will wreck havoc with you and yep you have other things going on but sounds like the GB for sure. On my ultrasound the Stenographer rolled me from side to side to show how the sludge moves and which is why it is worse than large stones because the ducts can easily become blocked and inflamed or infected. All 3 organs Liver, GB and Pancreas have issues with me so its not surprising my symptoms are weird to the normal GB issues.
I was so glad to come here and find others who were like me and getting the same inadequate treatment from Specialists and Dr's. It infuriates me when they REFUSE to accept your symptoms even when the evidence is right in front of them. The fight goes on, a HIDA test proves that the GB is functioning to the other 2 organs, I believe this is refused or not warranted to be done simply of cost issues. but they waste time and energy sending you on a whole bunch of other exams which do not mean anything in regard to the GB.
I wish you well and a speedy conclusion where as mine now is not happening until next year now. The NHS is failing lots of people and some get good service, it really is a lottery.
TMK16 Guest
Posted
Thank you for your reply. I didn't know anxiety could affect it, that is worth knowing, thank you. Ah, I had never heard of sludge until 2016, I didn't know it was a thing people could have in their gallbladder. Mine was slightly there in 2016 but the Stenographer, in 2018 (second ultrasound) wrote on my notes it was jam-packed. Do you have rashes like burns or chest pains or high liver enzymes? I have odd symptoms too, I think that's why they can't figure out what is going on exactly. And I don't have any of the tell-tale signs, like eating a high fat diet or middle-aged. I asked my consultant as to why I could have sludge and he replied 'female'!? Really? I know, it can be a cause but surely that's not just it plus not every woman will have sludge? (He was horrid). Yeah, my GP is nice but she doesn't know what is going on with it really and all she can do is refer me to the specialists who keep on not helping in the slightest. Have you had a HIDA scan? I have asked the consultant for one but he said that there was no point in it? Thank you. I doubt I will have a speedy recovery because like yourself, we are just on the 'never-ending' (so it seems) waiting list. It really is a lottery. What are you waiting for, until next year? An operation? I hope you are doing as okay as you can be!
Guest TMK16
Posted
I am no chemist but thats what I have been told, the same as kidneys. I was talking to my diabetic Nurse and she is a prolific stone builder and they cannot work out why, it amazing to talk with people who have been through GB issues and get info but humans being humans we are all different yet we expect our symptoms to be all the same
.
I was just glad to come on this site and find others in my situation.
Hope you get well soon and good luck with exams, another bad thing with stress.
matt57085 TMK16
Posted
Poor you, what a terrible state of affairs.
Many, many people have been here that have known exactly what the problem is even though some of their tests have come back normal and got fobbed off but 99.9% of the time it was a gallbladder problem. You have classic gallbladder symptoms, test's have shown small stones and sludge and your bloods are elevated. What more do the wan't?
When you have your scan ask for an MRCP with your MRI as it's a more specific scan of your bile ducts.
I've felt unwell for 2 years now and had all the classic gallbladder symptoms for 21 months and the NHS has sen't me round and round in circles. I asked the gastro i saw who was very, very OBTUSE and fobbed me off. I won't give you my whole story but after being referred to the surgery team (no surgery given) i've now been re-referred back to the gastro, had my appt come through today for Sept, which means i've had to wait 5 months again. Luckily the gastro that i saw last year has now left so i'm seeing somebody else.
Good Luck
matt57085
Posted
TMK16 matt57085
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Thank you for your reply. I know, it is terrible. I really don't know what they want to prove that something is wrong with the gallbladder. I just want it fixed. I think he has already specified a MRCP with it, as I rang the MRI unit and they said I was having an MRCP but they don't know when it'll be. Gosh, you had that a long time, I am sorry. My specialist was awful too, (I don't know what is with these specialists) oh gosh, that is a long time. I am so sorry to hear this, can you not pester to get a sooner appointment? I know, someone said earlier, that they don't give HIDA scans due to the cost which is very frustrating when a lot of people, so it seems, need one! Again, thank you for your reply and hope you are doing okay. Good luck to you too.
matt57085 TMK16
Posted
Hope you get your MRCP soon.
I waited 4 weeks which wasn't to long a wait. I waited 5 weeks for the results though.
Good Luck?