hiiii
Posted , 5 users are following.
is anyone else using plaquenil 200 mg for lupus ... or is there any other medication thanksss wendy
0 likes, 8 replies
Posted , 5 users are following.
is anyone else using plaquenil 200 mg for lupus ... or is there any other medication thanksss wendy
0 likes, 8 replies
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1_hand_works mamma71
Posted
My rheumatology team are still trying to work out what I have got ( not decided whether it is lupus or mixed connective tissue disorder), originally I only had a depomedrol injection, it didn't really work so they gave me a different steroid injection last time I saw them and they started me on plaquenil too. It hasn't done very much but I was told it can take between 3 to 6 months before it takes effect. I find the steroid helps quite a bit with the joint problems I get, certainly not as stiff 1st thing and pins and needles / numbness in fingers and toes has calmed down alot. I still have pain which I take naproxen and cocodamol for, and the tiredness through the day is still a problem. When the fatigue hits me, I have to stop, nothing works for that so far. Nothing helps with the ulcers and hair loss either.... but twice a day cetirizine helps with the rash. Hope this helps, good luck
leona18728 mamma71
Posted
I am in pain constantly and have felt very unwell for many weeks now,
So in answer to your question plaquenil appears to be of no advantage to myself,
But I have heard that plaquenil has some good results for people and with this condition it is trial and error I suppose to find the right drug to suit an individual.
mamma71 leona18728
Posted
leona18728 mamma71
Posted
Even though I was diagnosed about 14 years ago learning to live with this desese and learning the never ending things that go wrong or appear in my body I do believe Iv had lupus since my late teens,
Although it was not recognised or picked up back then,
I also work full time and long hours and I'm finding it harder and harder as I get older, but this flare up has lasted several weeks so hopefully it will come to an end and settle down again soon probably just before my rhymatology appointment
I'd like to say mine is quite mild but when I have a flare up like this one I would say it's a lot more serious on times,
It's also learning to know weather it's a lupus flare up or a fibromyalgia flare up,
Wow around the world tour sounds exciting and very exausting
I hope your well at the moment
mamma71 leona18728
Posted
sandra39631 mamma71
Posted
mamma71 sandra39631
Posted
lolapants mamma71
Posted