Hip clicking present since birth, new symptoms emerging, what shall I do?

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I'm going to be giving a lot of detail, in hopes it may help constructing a more accurate response. And I get it doesn't completely fall under 'hip dysplasia and disorders' but it seemed most relevant here, plus I'm new to this website.

It was recorded by medical professionals, as an infant, my right hip clicked/popped as I moved my leg towards my body and back away, it is still present to this day and still gives a loud pop, and I can feel it popping from one position to the other (was never diagnosed with hip dysplasia).

Past 7 months I've been experiencing a new symptom in this hip. If I sit cross leg, or with my right leg tilted to the side (so my right knee is faced away, opposite to the midline of my body [abduction I believe it's called in physiology] ), I struggle to bring it back to face forward again. It takes me between 5-20 minutes to get full mobility of the right hip again. I physically cannot force it back because it causes intense pain and a sensation that it will just pop out of place. I generally will sit/lay down, slowly moving my leg from different directions to try and face it forwards. Even while it's stuck in the position (knee facing away from body), I can still bend my knee/ankle. The only struggle is angling the hip back to face forwards.

I'm only 17 (female) and have had this issue with other joints (I don't have full mobility of my right shoulder and it grinds in the socket), also my ankle joints and sometimes my knees will grind and cause a lot of pain. My elbows, my wrists, they all grind and pop and don't have fluid movement. Even my jaw will sometimes stiffen and lock (only this occurs mainly when I'm required to take prednisolone for my asthma.) And my ankle/knee joints are quite weak and are easily rolled/sprained (funny story, I managed to roll my ankle while sitting down..)

I'm concerned because these issues began arising around age 12. Should I bring it up with a doctor now or should it settle during adulthood?

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9 Replies

  • Posted

    Hello! It sounds to me like you are having significant issues with mobility and pain. If I were you, I'd get to an orthopedist as soon as I could so for proper diagnosis and treatment for all of these difficult symptoms. It is possible you will need to see some other kind of specialist. Medical professionals should be consulted, in my opinion!

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    • Posted

      Thank you! I never thought it was something worth telling a doctor about because it was always musculoskeletal, but I guess I probably should see someone about it, especially the way it is getting now. I'll probably go to a doctor first to see which kind of specialist is appropriate, I wouldn't know the last thing about what specialist is what! Haha. Thank you for responding, I'll definitely follow the advice I've been given from this post.

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  • Posted

    My 15 year old daughter has similar problems that you've mentioned. Her left hip is always popping, she just had surgery on it this summer. She has seen every type of doctor , chiropractor, physical therapist, you name it. She now is seeing a rheumatologist who has diagnosed her with hyper joint mobility syndrome. We now understand why her joints move and act differently than normal. She's on medicine for joint pain, and we have seen alot of improvement with pain. She's working with a physical therapist and strength trainer to keep her core, pelvis, hips strong to prevent her joints from getting to loose, which will cause further problems. This has been going on for awhile, so yes you probably should see a doctor and get it figured out. Good luck to you. I hope you find something that works.

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    • Posted

      Thank you for responding! I'll definitely see a doctor then. I'm currently getting my shoulder already investigated because it has been causing chronic pain in surrounding areas, perhaps when I get the ultrasound on my shoulder I'll speak to the doctor too about my hips/rest of my joints. Again, thank you.

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    • Posted

      Tell the medical professionals everything! These things may be related. Even if not, they need to be addressed. Good luck!
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  • Posted

    Hi there

    I would recommend you see your doctor asap for an xray. Also, please stop doing those movements - you could end up with a dislocation or sublux on your hands. Sorry for being blunt.

    I was 17 when my hips started playing up again (I'd had many childhood surgeries). Bilateral THR and 2 revisions so far.

    Sounds like you need to be referred to a specialist. Do not leave this - arthritis id very painful and you want to delay the onset as much as possible.

    Best of luck.

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    • Posted

      I've partially dislocated my wrists before from simply stretching in the morning, to say the least they were in a lot of pain for a while and had swelling.

      This has happened in my shoulders as well doing the same thing, and as my body is recovering I always end up with horrible nerve-like pain. Still never sought help from any medical professionals because I always thought it was something everyone experienced on at least a weekly basis.

      I'm getting an ultrasound on my shoulder so when I go in for results I will definitely bring up everything else.

      Thank you for your response!

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    • Posted

      I think you should try seeing a rheumatologist. It sounds like you have a form of EDS. Having dislocations for unknown reasons is a sign of it. Try googling it and see what other symptoms you also have. There's a Beighton score test you can do which will give you a better idea if this applies to you. My daughter has been diagnosed by a rheumatologist and orthopedic and they are working now too help her manage it. Good luck

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    • Posted

      I've checked out the symptoms for the different types of EDS, it's hard to say, some things I exerpience do fit the criteria but then some definitely don't. Some of my joints are extremely flexible whereas some others can't even stretch to what would be average.

      I guess for now it's a matter of telling my GP, having them probably do a general assessment and seeing what happens from there. I won't forget to leave anything out about what has been going on.

      Thank you for helping me out though, I never really took attention to how important it was that I had this problem looked into.

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