Hip Dysplasia

Hiya,

I wanted to reply to your post as I am in a very similar situation. I am 25 years old, I wasnt diagnosed with CDH until I was almost 2. I am now experiencing similar pains especially when walking far or in cold climates. I have been to a specialist twice in my twenties and have been told the same thing! This can't be the case surely?!

Do you have anything that you take (medicine or otherwise) that helps with the pain?

Thanks xx

Hi, im 29, currently going through days of extreme pain and days of no pain. i was diagnosed with CDH at 2 years old after my mother was fobbed off with being told it was my nappy making me walk funny, i have two older sisters so my mum knew something was wrong.

Ive had 3 operations between 2 and 4 years of age including the traction. Ive seen surgeons every so often until i was 15 when i started seeing them once every 5 years (or when they noticed i haven't been seen). I am currently waiting a consultation this November. I was told in June by that I have OA in my right hip and should expect a partial hip replacement soon, but this was by a full hip replacement specialist and so they re-referred me. I was previously told not to expect a replacement until I am 40 but really can't wait that long anymore. i have also been told about reforming the hip or loosing the use of my leg by cutting the muscle which is twisted. However I did find the cortisene injection extremly helpful but you can only have a few. I had four in 1 year.

I also use a 1 inch step inside my shoes on my shorter (right) leg, though not good when wearing high heels.

I have no children yet but am scared about what will happen when I do decide to have them.

I just hope they do something soon because this is really beginning to grind me down now.

I had CDH, of my right hip, but it wasn't reated until I was 5 years old. I was put in traction, and then a frog plaster - treatment took 2 years. The hip socket is very shallow, and my right leg is a lot shorter than the other. I have my shoes built up at the heel, which helps. I only get occasional pain from my hip, but I am starting to get pain in my lower back if I walk or stand for too long. I had a baby daughter, who was in the breech position, like I was. She was delivered by caesarian, and had to have 2 scans of her hips - thankfully, her hips are perfectly normal.

Hi there,

I wanted to reply to your post because I too have a very similar story. I was diagnosed at 18 months old and underwent a number of operations tractions etc. I started dancing at age 3 and had to stop at 18 due to pain in my hip. I am now 27 and living with severe osteo arthritis. I have successfully managed my pain to a certain extent, and remained fit and active but my pain has become too much. next week i will be going in for my first hip replacement. I am actually looking forward to living pain free after the surgery. I've been blogging about my expereince. check it ot if you are interested www.limitlesslemon.com

Hi all,

I'm 20 years old and was diagnosed with CDH at 13 months old (after my mum taking me to the GP twice who told her she was an over-anxious parent) I was later diagnosed with complex hip dysplasia. Since then I've had numerous procedures including bone grafting, traction, frog plasters and may more..

In December 2012, I had my first total hip replacement. The first 5 months were amazing - words cannot describe the change it had on my life; no pain, more movement, less of a limp and a permanent smile on my face. However, last month my replacement hip has dislocated twice and I now require revision surgery - which nor me or my surgeon know exactly what he needs to do as my xrays look fine but my hip feels unstable.

Just want you to be aware of the risks before jumping head first into "solutions" - I don't regret my hip replacement, just wish I'd planned it a bit more carefully and thought about the risks and the time it takes to recover - for me it was much longer than the 12 weeks the surgeons tell you (because of my previous surgeries and lack of muscle etc on my left side)

Emma x

Hello everyone!

I'm only replying to share "my answer" to my hip dysplasia and the increadible amount of pain that I was in (not being able to walk very far or for very long, limp, clicking, etc). Since my hip joint hand't deteriorated (osteo arthritis), I was eligible for a surgery called "periacetabular osteotomy" also known as PAO. You can find clips of the surgery online on youtube if you are curious (my favourites were the Swedish (?) doctor in a short clip, a BBC program with a British doctor and an American doctor from Boston helping a little girl - don't worry, none of those were gory). Apparently there are about 5 surgeons in the UK that perform said surgery (I heard that, don't have any proof, so don't know how reliable this information actually is). And the ones that I contacted work with the NHS and privately. 

I had my PAO done 2 months ago and I'm no longer in pain, havent taken any painkillers for awhile. I'm still using crutches, but only for a little while longer. Now I just need to carry on doing a lot of physio exercises to regain muscle strength on the operated leg. So very soon I'll be "independent" again! Thankfully I have an amazing husband helping me, as I don't know how could someone fair without physical and emotional support! 

Good luck to every one and stay healthy!  

No this is not the case. I was the same as you. Born with hip dysplacia, had traction and frog plaster for 9 months. Firstly you can ask for (and you will have to ask as they don't, for some reason, suggest it) a steroid hip injection that will help, but, it may only help for six months (which is how long I got from my injection). I am now having a THR on the 2nd sept after seeing the consultant who showed me my X-rays. I have oesteoarthrits and it's bone on bone. The pain started a few years back with aches, limited movement but now I get pain and hip snapping. I hope this may help you.