Hips bothering me at night

Posted , 4 users are following.

my first signs of PMR were bilateral hip bursitis more noticeable at night since I am a side sleeper.

last few nights side sleeping becoming uncomfortable where sleep interrupted to change positions. 

I am on 10.25 for 7 days after alternating with 10.5. Last week I had a minor medical procedure which resulted in pain until yesterday. The last couple of nights hip symptoms. I'm ok during the day. I decided to go up 1mg for a couple of days. 

Any ideas?

0 likes, 7 replies

7 Replies

  • Posted

    Hi Karen, I shall be interested to see what response you get as I have hip bursitis too tho it is worse on one side.  I have found that avoiding walking too much does help in reducing the inflammation and usually a couple of paracetamol before I go to bed helps too.  The NHS website does make other suggestions as well although whether they are effective where PMR is involved I don't know.

    • Posted

      I take this recurrent bursitis to mean my pred dose is too low for my underlying disease. I was fine on 10.75-10.5. This is how my PMR first symptom emerged- then shoulders- then legs.

      PT usually helps but made it worse. 

  • Posted

    I get flares of the hip bursitis and nothing really deals with it for any length of time except a steroid injection which does work miracles for months usually!

    No - I think it is far better to deal with it separately. The bursae don't have a wonderful blood supply so you tend to need higher doses of pred to have much effect on the bursitis than you would need for the rest of the PMR. It's a bit like washing something with a real stain on it - it is relatively easy to get the rest clean - the spot needs special treatment. What does tend to happen in PMR though is that rest and physio don't do a lot as the inflammation is being topped up all the time, you have to really clear out the local inflammation to give it a chance then to heal itself.

    • Posted

      Eileen, come to. Think of it, this morning I noticed my shoulders getting that feeling. I took an extra mgm pred this morning making it 11.25 as today's dose. I suspect I am close to my best lowest dose ~ 10.25/10.5.

      i wonder if the stress of my last week medical breast recon tattoo with resultant pain/ terrible itch was a bit of a stress. My surgeon didn't think having this done on pred was a big deal but it became a stress for me. If the hips are the only symptom after a few days I'll go to my rheumy for injections. 

      Before I was diagnosed and had that awful bursitis where walking was difficult I had multiple steroid shots in the hips by a pain doc. The thing was right after the hips were relieved then the shoulders really started. At that point my pain doc suspected I had a systemic inflammatory disease.

      We also just had a severe cold front arrive.

      I was diagnosed Dec 1, 2015. Felt miserable several months before needing to be dressed by my hips and and even unable to turn in bed. 😱

    • Posted

      I meant needing my  husband to help me dress and put on auto seat belt.
    • Posted

      For goodness sake - an op isn't a big deal for a patient on above 10mg pred? What world is he in? I used to be in a heap with a stressful phone call. Any pain is stressul and add in the cold - I think you have your answer!!!

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