Hope I can explain myself!
Posted , 7 users are following.
Have had PMR 5 yeras now, with Fibro as well....I have (or had) a rheumie that dosen`t listen, so doctor works with me (mostly) I have been in so much pain recently, but doctor still wants me to drop pred dose (was 11mg) agreeing for once with rheumie that I mostly have fibro pain!....I have dropped on the very slow method to 10mg over many weeks....but I am in intolerable pain...legs/Lower back/hips/groin/shoulders.....I am struggling evan to sit down . I have been last two weeks to physio, had very gentle massage/acupunture, only result beeing I actually got a few hours sleep!
My question is.....I know I have to up the dose again (much to horror of doc and rheumie) but how come if I up to say 12mg the pain eases, or higher, and then drop quicker to 10mg again it halts the pain, but can start lowering......why dosen`t it ease the pain on the slow method??
Eileen for example, has said she had to up her dose several months ago.....it eased her symptoms, and she was able to drop to lower dose quick again....but why is that....I just don`t understand....what am I missing here.....
I know I have two things going on, but it certainly is more PMR pain.....everyone seems hell bent on getting me off pred......I wish! would be happy just to be at 5mg and stay there!
Sorry for this muddled posting.....hope someone has some answers, before I go to the doctor.....in a few weeks...or before if I can`t bear it any longer!
Thank you....
0 likes, 25 replies
robin11917 linda17563
Posted
One of the things that gave me great relief was heat. Often a hot pack helped and best of all when I was at my worse I would get into a hot bath. I imagine a spa would also help and on a couple of occassions I have used my daughters spa for relief when pain was bad. This was all pre diagnosis !
EileenH robin11917
Posted
But beware of getting in a warm bath if you are alone in the house! And don't lock the door. There are several of us on the forums who have had embarrassing incidents either getting stuck in a rapidly cooling bath or being unable to get out without heroics due to PMR!
linda17563 robin11917
Posted
Had a shower cubicle put in a few years ago, could not get in and out of bath.....stand in the morning with very hot water in shower, which helps me to get moving a bit.....all these little things help!....Keep well