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Hoping for some answers

Posted , 6 users are following.

may66088
may66088

I have been feeling so awful sine I started on Pred in April 2016.  I have read about people feeling energised. I have never felt such fatigue before.  I am breathless and have numb and tingly hands.  I saw a rheumy last year but did not get a proper diagnosis.  I asked my GP if I could go to get a second opinion.  I am finding it hard as my husband is ill.  I wanted to go to Chapel Allerton but found that it would be up to 18 weeks to get an appointment.   She asked me if I would consider going privately. She phoned and I am going on Thursday to  Leeds I am seeing Dr Colin Pease who consults in Chapel Allerton as well as the private hospital I am going to.  Wish me luck!

0 likes, 9 replies

9 Replies

  • Anhaga
    Anhaga may66088

    Posted

    Good luck, I hope you soon get the answers you need.  
    • may66088
      may66088 Anhaga

      Posted

      Thamk you.  I will let yo know how I get on.
  • amkoffee
    amkoffee may66088

    Posted

    It almost sounds like you have more than one problem going on. PMR can cause a lot of fatigue and prednisone alone is not going to fix that fatigue but if you feel that lousy you may very well have something else going on. Your rheumatologist would be the one to get to the bottom of it. One thing to consider would be your thyroid that would certainly cause fatigue it can also cause achiness. So if no one's checked your thyroid I would certainly suggest getting it checked or if you're already on the medicine you may need it so definitely get that checked. And if you're achy there's also RA that should be considered which of course your rheumatologist can test you for but it may be that you're simply not on a high enough dose of prednisone. Has your GP been the one to be monitoring your PMR up to now?

    • may66088
      may66088 amkoffee

      Posted

      Thanks for replying Amkoffee.  I have been on thyroxine medication for about 25 years.  I hope I can get some help when I go tommorrow. Iam vertainly looking forward to the consultation.
  • catherine34621
    catherine34621 may66088

    Posted

    Hi may, you are exactly in the same position as me, I started on Pred. 5months earlier than you and am still not diagnosed, I am also being referred to Leeds to see people who treat suspected GCA. Let's hope we both have better luck!

    • catherine34621
      catherine34621 may66088

      Posted

      Hi May, Catherine here from four months ago, I was wondering how you got on at Leeds with your diagnosis as I have now also been and seen a Professor at St,James's. Any good news?

       

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