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Hi I was hoping you could help and maybe post my post in the group, I am 32 years old from London - for about 18 months now I have been suffering horrible symptoms, random muscle twitching, muscle pain all over, sharp stabbing pain everywhere, electric like shocks to, around temples and all over scalp, pain in strange places like between thumb and fingers on both hands, thoughts, middle of arms, neck muscles hurt 90% of the time (hot baths and massages help) spaced out feeling, pins and needles in legs and arms much easier than before pretty much a few times a day, the feeling like I'm going to stop breathing, pain just above ribs (pretty constant) feeling like I can't relax anything inside my body and my body isn't working automatically if you like (if that makes sense) get random number patches all over body, mainly calfs don't feel like there mine, and get same in stomach and back to which is horrible, neck muscles hurt a lot to, sometimes feel like throat is going to close up, I get jerks sometimes to like my leg or arm will have urge to jerk not loads but enough you know which is horrible and finally I suffer from bad bloating and ibs sometimes not even after having fatty foods or beer! Just random, my belly goes really painful and hard and so uncomftable hhhh .The symptoms seem to be worse if I have had a busy weekend, if I have been and tired my body or had a night out and had a few drinks I get the symptoms about 12 - 24 hours I have slowed down. I mentioned the alcohol yes if I get very drunk and have a big one the symptoms can come and hang around 2-3 days sometimes more, but they still come without alcohol to if I have had a hectic couple of days, however if I do go out and drink or even stay in and drink when I get to around beer number four 99% of my symptoms go away!!! Crazy as that sounds but as I said sometimes for days after I feel 10 times worse. When this first started 18 months ago half my body went numb and I had a massive panic attack whilst on a plane, them after that all my symptoms started and I have about 8-10 panic attacks over course of a few months at random times, sometime when driving, at work, out and about, random times, during this time I have seen so many doctors, I have had MRI brain and spine to check for anything serious, I have had my nerve systems both tested to the extreme, had my muscles tested for everything (weakness etc) every blood test under the sun about 15 times over, which covered everything from cells, to vitamin levels, I have visited chiropractors, sports massages specialist, reflexology, acupuncture, and after 15 month of all that with not one bag thing showing in anything (apart from a little wear and tear in lower back from football for 20 years) and hospital visits my GP and rhemotogist came back and said it's fibro and to try yoga, swimming etc which I have been!!! - laying here now it hurts to press my skin in certain places and pains in my head shooting around! But if I go out and play a football match, or if go for a ride on my bike, I did the other day and covered 24 miles!! I can still do all that and get through it usually no problem.
I have tried everything I can I'm still not 100% convinced it's fibro - I have got allergy tests coming up and seeing a dietician too so hopefully that will help.
I would really love to hear from anyone that is or has suffered from anything like this and if so if they have ideas or tips or if there is anything I have missed.
Thanks so much in advance - I just want to try and get back to me again.
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