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horrendous pain in eye

Posted , 8 users are following.

margaret22251
margaret22251

i have just had the most horrendous pain in my right eye, it was so bad i started sweating, has anybody else had this.

Yesterday i got a trelephone call from a NHS call centre regarding my visit to the doctors with the pain i was getting in my neck.

she asked various questions and said the hospital physio will write to you to arrange a time for your physio, i explained what was wrong, and she seemed to think it was not what i required, but said this is what your doctor has asked for.

What i want to know is when i go the hospital can refuse treament if i think it will do me more harm than good, i know after five years some say i have PMR others say its RA, i know its hard to tell whats what, but if you have RA do you get any of these symptoms i am getting, as its like talking to a brick wall to my doctor. She is good, but i believe she does not know much about pmr like the other doctor i saw.

My bloods have been <5 - <6 for the last three blood tests, this is one of the reasons the doctor said i have not got PMR, but why am i getting all this pain in my neck, shoulders, and arms.

0 likes, 13 replies

13 Replies

  • Flutterbie57
    Flutterbie57 margaret22251

    Posted

    I have been getting severe sharp pain in both eyes for the last few months. It does not last long, but just comes out of the blue. I have had eyes tested. Nothing found. My sight is OK except for a few floaters. I am down to 6mg and was told I would suffer from weird things while going down. Another weird thing is the painful needle pricks in all sorts of places on the body. Blood tests are nothing in comparison

    • margaret22251
      margaret22251 Flutterbie57

      Posted

      I have increased my nightly pred from three to five for a f ew days then will reduce , funny when ihad my last blood test it hurt like hell, and normally i dont fell a thing, weird and wonderful pred, but were would we be without it.b

  • EileenH
    EileenH margaret22251

    Posted

    I know - it is a constant fight when they don't listen. Blood markers being normal means you are on enough pred to keep them low - but you can start to flare before they rise. Some people's tests never rise again when they are on pred - it is just so.

    If you have that sort of pain again call 111 and ask for advice - or even 999 and expalin. There are various things that could cause pain like that and some are emergencies. But otherwise, why not make an appointment with your optometrist (a proper optician who can examine your eyes and do certain tests, not just dispense specs). Boots, Vision Express and Specsavers can all offer those tests and so can many independent opticians.

    • margaret22251
      margaret22251 EileenH

      Posted

      Eileen can i reduce back to 3mg after three days at the moment night is 5mg

      hope you and OH are keeping well.

    • Flutterbie57
      Flutterbie57 EileenH

      Posted

      My blood markers have always been 'perfect'........ My new doctor likes to point out with a suspicious lingering look. 😃. I know we have to have a deep and meaningful talk about my health when I get back from holiday. I keep putting it off.

    • Silver49
      Silver49 Flutterbie57

      Posted

      I like that Flutterbie. Nurse told me to come back in the month of my birthday but she didn't say which year and a year has gone past since she said it!! Oops.

    • EileenH
      EileenH Flutterbie57

      Posted

      My current rheumy accepts normal levels - but he did spot that while MY personal normal is low single figures, I had bumbled along at 16-18 for my ESR while I was in hospital for a few weeks and for a few weeks after. No-one would have picked that up in isolation - and hadn't for years and years. Now I have relatively easy access to my historical readings since being here via my GP - and come the autumn I will get an access code to go online myself, can't have mine until I'm an italian pensioner!

    • EileenH
      EileenH Flutterbie57

      Posted

      After 42 and a bit years of contributions, at the age of 67 and (as of next month) when your age plus the years of contributions totals to 100.

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