Horrible eczema on Penis Shaft - Dupixent?

Thanks @Wee_Dugie!

I found a caring knowledgeable doctor who is at Saint Louis University Medical School. Their genital skin unit is for women only (typical here in the States). The closest genital skin/dermatology clinics are at Stanford California and Boston, MA - both 1,000 miles and not on my insurance. 😦

They did do a "Grand Rounds" at the Medical School. Doctors split between eczema on shaft and LS spreading (it consumers the entire upper half of my penis where the circumcised skin is located).

I know my derms are the people to turn to but in your informed non-professional opinion, does it look like LS? Or eczema?

Thanks again!

Yes, genital skin disorders are disproportionately suffered by females and this is why the majority of services have developed in units and departments typically used by women and girls. Often these are gynaecology based services. This is common in the UK too.

One line of approach you could take with the doctor at St Louis is to ask a question that would make your problem personal to them, something like: ' if this was you with this condition, where in terms of medical professional help would they be going to to get the issue resolved? '

I have little knowledge of health care systems in the States, but as I mentioned, there are a number of professional bodies which practicing dermatologists must belong to.

This could be an avenue you explore further as I would suggest there must be a derm with this professional insight that you can access in your own State, if not your own region, or perhaps a nearby city. I would be checking all the Dermatology professional associations and bodies to see if there is a genital specialist nearer to where you are. Some such associations and bodies may even have a phone helpline to help identify professionals in different regions, and so on.

And yes, in my personal experience this does not look like the typical symptoms you would have with LS - only to say that, in the 'early' years that I became aware I had a penile skin issue present myself, I tried a number of things to make it better.

Therefore I can understand that in circumstances where precisely the 'wrong' things have been applied to your penis, and more specifically on your shaft, then it is possible that LS can flare in this manner.

I would therefore trust the biopsy that was done on the shaft which revealed the chronic spongiotic dermatitis - you could ask for another biopsy to check again. I found that LS symptoms that I had on the head of the penis disappeared quite quickly once the correct medication was put in place, I can therefore see that it is possible for symptoms to spread or remain more persistent. with on the foreskin, or main shaft as you have.

In terms of the sex I know most would want to continue a level of sexual activity - unfortunately what takes places normally during sex for a healthy penis is not something your genital skin can cope with - I would certainly recommend staying away from Lubes and certainly condoms can potentially cause a major reaction if you happen to use them with regularly or from time to time.

I certainly would not want to suggest anything that you could use that would be anywhere near safe

So helpful!

Yes, as in wrong things I wonder about clobetasol. It has been trial and error - it seems to dampen the severity but how much is enough is another question.

One thing I have discovered: the Caverject Impulse injection makes it so easy to have a very hard erection. It doesn't hurt and the erection lasts an hour. That reduces the rubbing necessary for sex to a minimum.

As for lubes, I continue to use the same one as always. (For a tightly circumcised man with no frenulum and no foreskin going without ANY lube is impossible).

Just to give my take on clobetasol: if you are familiar with the fingertip unit I would say that I typically use one-fifth of a a FTU and certainly no more than one-quarter.

The regularity or frequency of application is critical - my findings suggested that I needed to use it everyday for quite some time, and this could have amounted to the best part of two years.

Once the skin became as healthy and strong as it was going to be I could lessen application to every other day. With the other critical factor being rubbing it into the damaged / unhealthy skin so the active ingredients were absorbed. I would say I spent between 3 to 5 minutes doing this, when the skin became strong enough I used gentle massage type movements and also deliberately stretched the skin, again gently - and this was to regain suppleness and elasticity in the foreskin, in the main.

All the major issues I had were to do with not applying the clob sufficiently frequently enough - I found that I had to start from scratch on a number of occasions - going back to everyday application and taking several months, if not longer, each time to build-back strength and resilience in the LS affected skin.

Certainly the other observation I would highlight is that while you are building successful management of the LS infected skin is that you should completely avoid applying anything else - so perhaps the first things to go were the thought that the LS skin could withstand soap, shower gel or any other body wash. Then soap replacements I found were a total waste of time - and even harmful to the successful management of the LS skin.

So these would be my suggestions to you. I do not know what you would make of the suggestion of abstaining from sex for a period of months? However, based on what I found - specifically, I had a period of the best part of a year where I simply was unable to engage in sexual function = no sex. no masturbation. The weird thing was my penis shrunk to the size it was when I was around 8 years of age - certainly nothing to impress the Ladies with.

But this was part of the essential of building back strength in the skin, other wise, as I say, management of LS kept going back to zero and I had to start the process over again.

In conclusion: yes I know it would be really difficult for you, but if your issue is, or has an element of LS to it - the ONLY way you may get to manage it is not to engage in sex, AND NOT to apply anything to it until the skin has developed strength and resilience and become as healthy as it is going to be. Certainly this is not a quick process and could certainly take anywhere between 7, 9 months a year or even more.

Thanks, @Wee_Dugie! I have been following your advice since you offered it a year ago. Yes, I have gone up to 6 months without sex or masturbation and it looked better. I then tried sex/masturbation and it flared into a horrible mess again. Now the GLANS has been able to take it but the SHAFT does not.

My dilemma is that the doctors are split on whether the SHAFT is LS. It is either eczema (per early biopsy) or LS. So do I apply clob as if it was LS? Or as if it was eczema (and then be more cautious about daily clob).

Stretching: I have started stretching in the past week or so. I will let you know how it goes!

The ideal would be to get another Biopsy done on the problematic area of the shaft of your penis.

If you have regular or ongoing contact with a Dermatologist you could seek a 'Do You - Don't You' guidance from them on using the Clob.

FOr sexual function that you recently tried did you use the regular lube? If so, part of the long-term solution may be finding a safe or 'safer' lube that simply does not have the same impact on the damaged / unhealthy penile skin that you have.

Ultimately, the decision to use the Clob on the shaft may either be dependant on knowing what impact Clob actually has eczema affected skin - or if you want to simplify the whole thing - try it anyway and see what happens. And yes, a more cautious approach is certainly advisable.

You would need to do this in full-light that there may be unintended consequences of this - best advice, as I say on this would be from a Dermatologist, particularly someone that is familiar with what has taken place since you first started dealing with this .....