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Hospital check up today

Posted , 6 users are following.

Kat94
Kat94

I'm going in for my usually check up today, my symptoms have been a lot worse lately because I haven't been looking after myself,

I kinda just wanted some support because I'm a single 23 year old living by myself, none of my family even live in the same state as me, I'm by myself,

I've got friends but they don't really understand my condition and I don't like talking about it and bumming people out..

I was going really well when I had a boyfriend he was doing everything for me to keep the symptoms away, we even went a few more tha without sex just to get it healthy again.

It was absolutely perfect, no symptoms at all couldn't even tell I had LS,

sad but now I really am finding it hard to cope, especially because I am pre-cancerous and don't have the motivation to eat healthy and look after myself, I just want all of this to go away

Sorry for the upsetting status sad just some nice messages would be nice x

0 likes, 13 replies

13 Replies

  • powerwoman
    powerwoman Kat94

    Posted

    Hello Kat

    So sorry you are feeling low.  And you so young to have this disease! You poor girl.

    I know exactly how you feel.  We all do here!  Do you know the things that triggers an attack?  If you can identify some of the triggers you can work on eliminating them.

    Also what treatment are you using?

    You have to try and be positive and look after yourself.  

    Cut out the things that make it worse.

    Things will improve and you will be able to have a normal a life as possible.

    You will get better.   You have to believe that.

    Be strong.

    • Kat94
      Kat94 powerwoman

      Posted

      thankyou : ) 

      i have found poor diet is the biggest trigger.

      breads/or maybe gluten, fast food, alcohol, sweating,

      all these things are so bad

      but when i had my boyfriend around, he researched everything for months, and then pretty much was determined to cure LS.

      he had me on a diet cutting out all bad foods except for once a week, because my Chinese doctor said you cant cut out bad foods completely because then your immune system will become weak.

      so i was eating organic foods and drinking only pure water, i saw massive improvements in my skin, hair and nails, and i was feeling amazing

       I was using goat soap (not the stuff from woolies, that still has bad chemicals in it) but from a goat farmer i met at the local markets,

      his soap is the only one that doesn't make it feel worse down there!

      ill get back to that again because i know is possible, then i wanna help out all the other women who cant seem to find relief.

      i cant wait, once i tackle this stupid disease once and for all, I'm going to help the world.

      i wouldn't wish this disease on my worst enemy.

  • caroline16811
    caroline16811 Kat94

    Posted

    You poor love, wish I could give you a big hug. I have LS but recently had double pulmonary embolisms and I felt much the same as you, I couldn't stop crying - I was in shock that I could have so easily have lost my life. It was shock and trauma. I felt and hopelessness. But 2 months later and I can see improvements and feel more positive . so what I'm trying to say is. You're entitled to feel the way you do but now is the time to act.

    Try not to do everything at once. Just concentrate on getting your skin back in good condition. You had it that way once, you can do it again my lovely.Back to basics, use the Dermovate or Clob. Twice a day for a month, then every other day fire s month then twice a week for maintenance. Rinse with water after visiting the loo. I use bicarb in a spray but you can just use water. And lots of moisturiser. I use HYDROMOL.

    When you start seeing the skin improve you will probably feel more inclined to then tackle your diet.

    I hope this helps hon, you are not alone, we truly care and are thinking of you. Keep in touch, If you want to send me personal message, feel free.

    Baby steps, then you'll get there.

    God bless, keep in touch x

    • Kat94
      Kat94 caroline16811

      Posted

      That was really lovely thank you so much Caroline. I really appreciate that.

      i will definitely try those tips, how are your symptoms? What do you find tends to make things feel worse down there?

      had another biopsy today (third in a year) so will have results in 4 weeks to see if there's anything serious going on, : ) fingers crossed and in the mean time ill do everything you said xxx thank you so much

    • caroline16811
      caroline16811 Kat94

      Posted

      I'm doing really well, all the skin is pink, no white or itchy bits for over a year now. I also use a dilator to stop vagina shrinking which works brilliantly. Stress is the main thing that used to kick mine off but a lot of women find sugar brings on a flare up. Can't say I noticed it doing that. The one thing that did set it off big time a couple of years back was chlorine in a swimming pool on holiday so last year I plastered the area, right up to the ants with Hydromol to act as a barrier and whoop de doo it worked. No problem whatever. It's an auto immune disease so I guess any time our immune system is hit we may be likely to see a change. I think the importable thing is to knock it on the head straight away and get back on the daily steroid for a week the every other day the beach to twice weekly. That's what I and a friend have been told by two different skin specialists and a gynae. My friend had frequent flare ups and just used the steroid for a couple of days which didn't work. Now she uses the aforementioned method out clears up quickly and she goes much longer between flare ups. House you are feeling a bit more positive hon. It's a pig of a disease but knowing o other ladies know EXACTLY what we are going through and feeling really helps I find. I felt very isolated and helpless before I found this fantastic forum. Xx

    • caroline16811
      caroline16811

      Posted

      Right up to the ANUS I meant not ants ! Blimey, as if I haven't got enough problems in that area , don't want ants as well !!! 😁

  • lorraine72329
    lorraine72329 Kat94

    Posted

    Hi kat,

    So glad you got your check up today,

    You can get back to where you were before,

    You can do it,

    It is so heard,I know, but I'm sure you can ,we are all behind you,

    Your in my thoughts ,

    Please look after yourself,

    Massive hugs and tons of love xxxx

    • Kat94
      Kat94 lorraine72329

      Posted

      Thank you so much Lorraine, that means a lot to me.

      i walked out of the hospital crying, but i went to work afterwards and was strong.

      i got yet another biopsy, this time in a different spot, abit more higher up and a lot more of a sensitive area, its really sore, will wait 4 weeks til i find out the results if anything has changed,

      i hate getting a biopsy because it irritates the area and that's the last thing i need, but your kind words really help, thank you so much xxxx 

    • lorraine72329
      lorraine72329 Kat94

      Posted

      I'm glad your biopsy over and done with,

      We are all with you love,

      Keep strong , xxxxxx

      Still sending those massive hugs xxxx

  • joanna43-
    joanna43- Kat94

    Posted

    Hi Kat, how are you doing now sweetie? I pray you are loving yourself and looking after yourself! There is a really good and informative forum on this site called "an experiment with Borax". I would encourage you to read it from the beginning. I have experienced remission of all my symptoms as I followed the instructions on that forum! There is a truly good life possible LS!

    Love you and CARE for yourself because YOU matter! 😘. BTW I have 8 granddaughter's around your age 18 - 25

    • Kat94
      Kat94 joanna43-

      Posted

      Thankyou so much for the kind message Joanna. I did just recently go through a bit of a depressive state where I was drinking a bit, but!! I've just gotten out of it so this week I've been exercising and eating healthy, and cooking healthy dinners for myself every night! So I'm doing really well now smile

      I just realised finally that nothing's going to get better unless I do it myself. I look after myself and I determine what kind of future I'm going to have smile

      Thankyou so much for the website I will check it out now smile xx Thankyou so much!

    • joanna43-
      joanna43- Kat94

      Posted

      Practicing a positive attitude and caring about yourself will make ALL the difference honey! LS hates stress and anxiety BUT with what you are now choosing it will greatly benefit you! Small inroads make Big changes, be patient and kind with yourself and take one step at a time 😊

  • ashleyk1997
    ashleyk1997 Kat94

    Posted

    I am having a hard time coping too sad I am 19 and recently diagnosed.. I understand what you're going through, wespecially with sex. My boyfriend gets it and is sympathetic but I'm depressed about losing my want to have sex .. and when we do I bleed and am sore for days after.. I wish there was a cure ..

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