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Once again I am taking my experience and sharing it here because this is where I get the best answers from fellow/members.
I was hospitalized last night for an acute exacerbation because my symptoms have continued to worsen. I am more sob and my lungs seem to ache, and I am slowed down. I can get around fine but it is slower and I have to rest. They did not see anything on X-ray but gave me iv antibiotics and prednisone. Still taking the prednisone. I do not feel any better but at least I know I did what I thought was best. I know I do not have an infection but also that I was cared for when I was scared. My pulse ox is between 95-97, all other vitals fine.
I just flew back from taking care of my parents for 5 weeks. I keep thinking of Jude who said you can't push yourself. I felt great before I left, no symptoms. Then after the plane I felt worse......this time too. Dr does not comment on the flying. I think a combo of that and pushing. But when I pushed, I did rest a lot. I have turned the corner to some new and scary place. My lungs seem sore and I just don't have the strength I had.
I have not exercised per se because I was busy enough. Now that I am home (alone) I am concerned about anything that will make me feel more energy. Does the exercise help? Is it essential?
Thanks so much. I am going to ask about pulmonary rehab soon. If they won't cover it I just have to do what I can.
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