hot sweats
Posted , 2 users are following.
have PRM, started 15 Lodotra last night, no change today, is that normal? also I read about hot night sweats but I get these in the day particularly if I am anxious about anything, although I have all the symptoms of PMR, I get worried that although I have difficulty lifting my arms have a job turning over in bed cant do my bra up, none of these are unbearable and in the day lead quite a normal life apart from not wanting to eat properly and feeling tired
3 likes, 5 replies
EileenH vanessa66630
Posted
You effectively took your pred dose at 2am, I took my first dose of ordinary pred at 10.15am and first noticed the difference at 4pm, 6 hours later. Some of us get that sort of miracle effect but by no means everyone does. The criterion used to confirm that PMR is the correct diagnosis is a 70% relief of symptoms within about 48/72 hours and a return of the symptoms in a similar time frame if the pred is stopped. Some people need a week to get good relief and some parts of the pain can take far longer - if you have bursitis or synovitis then this moderate dose of pred will take some time to work on that.
You should notice some improvement by this afternoon if you are a "rapid responder" but it could be you have to wait until after a few doses to notice a significant improvement.
I did say you shouldn't build your hopes up too far in advance - unrealistic expectations are unfair to the drug company and yourself. If this is all "bearable" without pred then it is to be expected you will have a less dramatic effect. Mine was so severe I COULDN'T lift my arms, it wasn't just difficult. I crawled up stairs on hands and knees - all day, not just in the mornings. I couldn't hold a cup of tea in one hand - I needed both not to drop it. You notice a change from that.
And if the tiredness and not eating is due to the underlying autoimmune disorder that causes the PMR symptoms, they may not change as much as the stiffness. The pred does nothing against that and the fatigue often lasts much longer even while you are on pred. Even a couple of years into taking pred I would go out to ski and do a few short runs (all I could manage anyway at the beginning of the season) and think "I feel fine, just one more run..." only to find half way down that I felt as if I had hit a brick wall of fatigue. Others have gone out for a walk and had a similar experience - one lady was found by a neighbour sitting on his garden wall because she couldn't put one foot in front of the other so he took her home to the next street in his car.
hope4cure EileenH
Posted
Sounds way too familiar.. I really, really hate that wall!
vanessa66630 EileenH
Posted
EileenH vanessa66630
Posted
hope4cure vanessa66630
Posted
Hi vanessa,
It's a modified release pred. tab. The dose may need some tweaking.
give the med some time u just started it generally takes time to show signs of improvement. U will know the difference.
TC & GB