How best can a kidney decease or infection diagnose

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Dear all, How a  kidney decease or infection diagnose? I need to hear the experience that any of you have gone through.

I am KCD 3 but doctor did all different kind of blood tests including a biopsy, but nothing was found what has course this problem. In the biopsy report, 9 out of 4 granulas have deposits, that's all basically came out. The reason could not be identified. Deep in my mind, i think i should have a kidney infection/decease. I had a slight BP problem for few years, did not monitor frequently, but more or less under control and my physician told me that can't be the course for this in my age (44yrs). My sugar is normal. I am desperate to know the reason.

Thanks, CS

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  • Posted

    I understand what you are saying.  I too am diagnosed as CKD 3.  Why?  Because my creatinine level is 1.8 or 1.9, and they calculate a formula that says my GFR is in the 35 to 40 range and therefore I am CKD.  But they give no consideration as to why.  I had one kidney removed due to cancer to the one that remains does not handle the workload that two used to.  Does that mean the remaining kidney is failing, or that the prognosis is terrible?  They can not answer that just as is your case.  The system used to classify CKD does not take into account the severity, or lack of, or your own personal disease.  In an ironic way you should be glad that they could not find anything.  It is all a crazy classification system.  Sure you kidney's are not working as "normal", but it sounds like no reason to be overly alarmed.  NExt doctor's appointment, be firm with the doctor and tell them you do not understand.  Ask if this is a dangerous condition, should you be worried, what is the prognosis, etc.?

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    • Posted

      Thank you very much, I will talk to doctor firmly next time, which is on next Saturday. CS
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    • Posted

      Good, I'm glad to hear this! As you talk with your doctor about your data you may also want to discuss two additional issues:

      1.  Does he or she think she or he can stabilize your renal function? If so, what do you need to do, specifically, to help that happen?

      2.  What does your doctor see as the long term prognosis for your renal function? Upon what is he or she basing that long term prognosis?

      Both questions are important as many people with CKD can, with effective treatment stabilize their renal data for many years-/meaning no significant progression for many years. That is often the treatment goal of the doctor is unable to achieve a rebound in renal function.

      The second question is also important as many people who have CKD do NOT progress to Stage V, renal failure. Your doctor may not be able to comfortably answer the second wuestion at this point or ever, but I definitely think it is worth asking.

      While it isn't great having CKD, it is often a situation that can be effectively treated. As I've shared in s few other posts on this forum,  my father lived over 40 years with CKD. 

      So, definitely, talk with your doctor. I find that getting answers, even bad news, is much better than not knowing. I hope you leave your next doctor's appointment with definitive answers to many of your questions.

      Marj

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    • Posted

      Thank you Marj, 

      I had various S. Creatinine levels in 4 to 5 months from the identification of this issue. This was diagnose in a regular body check up and I was shocked in the first place, had no symptoms. But i had bubble in urine. 

      Then creatinine levels, 

      November 2017 : 3.2 (after a heavy drinking night, i gave the sample, and that was my last drink smile 

      December: 2.2 after a proper diet 

      January 1st 2018: 1.08 (I was very happy for this result) 

      Feb 2018: 2.1 (again sad)

      March 18, 2018: 1.7 

      Above results are very confusing, and doctor did not give me a proper answer.  

      Thank you, 

       

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    • Posted

      Colombos,

      My creatinine data bounced around like that for the first 12-18 months too. It did stabilize after that. I think it took me some time to learn how to manage both the renal dietary restrictions along with those I follow to manage my Type II diabetic condition.

      I've had no difficulty with the diabetes management, thankfully. I'm not on medication for that and my A1C falls consistently between 4.9 and 5.0.

      But the renal diet has been another issue. I don't struggle with the low sodium, low fat, low cholesterol part of the diet. I'm also okey with protein intake. However, I really struggled for some time with the low potassium requirement. I'm supposed to eat no more than 2000 mg of potassium daily. I'm doing that consistently now. But as a major vegetable eager all my life it has certainly been a struggle for me to adjust to that restriction.

      Now that I'm consistently adhering to the low potassium too my renal panel data is looking quite good overall--my potassium, phosphorous, and the other electrolytes and vitamins are always in the normal range now. My potassium used to be mildly to moderately elevated most of the time. But that is no longer the case.

      Anyway, for me, finally managing to adhere to the renal diet consistently really helped stabilize my data. 

      I know nephrologists can't always identify the cause for deterioration in renal function. But even if they can't identify the cause they are still frequently able to stabilize your renal function thus preserving the remaining renal function for years.

      I'm hoping you and your nephrologist will be able to at least stabilize your renal function. And, perhaps with an appropriate treatment plan you'll see your renal function stabilize with the higher creatinine data you've seen recently rather than the lower creatinine data.

      But no doubt, this is really stressful!!

      Marj

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