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I'm a University student from the University of Johannesburg. I'm currently working on a research project (as part of my honours degree in communication design) based on how families, who have a relative dealing with Alzihmers, could be better prepared for the different stages of the disease.
I was hoping if any of you would mind sharing some of your experiences, challenges, or concerns and how family members could be more aware and be better prepared for the different stages of the disease.
My questions include:
What your knowledge was of the disease before your relative was diagnosed?
What would you have liked to know before the diagnosis of your relative?
What are the biggest challenges you face?
Do you think families should be better prepared for the disease and if so how?
And do you think there is a stigma with Alzheimers?
I do hope that this discussion might help others cope.
As someone who has taken care of a relative who had the disease (my gran), I know the importance of this study and I don't take it lightly in any way.
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