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My mum has recently been diagnosed with Vasculitis. Her main symptoms are swollen and painful limbs (not just in her joints but random places) and burst capillaries, but my main concern of late is her mental health. My mum is a tough cookie but this has really knocked her for six and I was after any advice as to what I can do to help her?
She has had X2 courses of steroids, which help temporarily, and is currently taking painkillers regularly which just about take the edge off. We are awaiting a kidney biopsy which will hopefully determine whether she is prescribed Methotrexate or Cyclophosphamide to help her condition.
I have looked into dietary requirements and have adjusted accordingly but is there anything else I can buy/do to help? I am clutching at straws here but is there something to assist her getting by in everyday life? Oils/ointments? Something to help to tackle stairs when this flares up? Anything to lesson the tightening in her calf’s? Anything to help her reach cupboards when her arms ache or general advice to help when she is feeling low?
Hopefully, when she is prescribed drugs this will ease the symptoms but I really am open to any suggestions meantime. It’s difficult seeing the strongest woman I know decline mentally as she is frustrated at not being able to live her normal life for fear of pain. She is also suffering fatigue and tires very quickly.
I can’t seem to find anything on the internet other than drugs so any advice would be greatly appreciated!
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