How can Ménière’s disease affect you?

Posted , 4 users are following.

Hello Group, I found this information, I wanted to share this. This is the best explanation I have found for how meniere's has affected me. I am in stage three and have been for several years now  

Symptoms vary between people and over time. The main problems are unpredictable attacks of vertigo with nausea and vomiting. Attacks can last from a few minutes to 24 hours. There may also be tinnitus, hearing loss and a feeling of fullness in the affected ear. Periods of remission between attacks can vary from days to months or even years; making Ménière’s an unpredictable and distressing illness. As it progresses the vertigo may be less severe; however there may be periods of imbalance, adding to the distress. In the later stages tinnitus is more prominent and fluctuating hearing loss develops. There is permanent damage to the balance organ and significant balance problems are common. Usually only one ear is affected, but up to 50% of sufferers may develop the condition in both ears. It is useful to divide the course of the illness into three stages:

Stage one (early): unpredictable attacks of vertigo

The main feature is intermittent attacks of vertigo which can last from a few minutes to hours. During the attack there is a variable amount of hearing loss along with a sensation of fullness in the affected ear.

Some people may experience tinnitus or an increase in tinnitus in the affected ear. The fullness in the ear and tinnitus may precede the attacks of vertigo, but they will often occur without warning. In between the attacks the hearing and sensation in the ear return to normal. There are periods of remission between the attack, which vary in each person making Ménière’s disease an unpredictable and distressing illness.

Stage two (intermediate): attacks of vertigo; tinnitus; hearing loss

The attacks of vertigo continue with variable remissions however may be less severe. After or perhaps before the attack the person may experience a period of imbalance and movement induced giddiness. Permanent hearing loss develops and continues to fluctuate with the vertigo attacks. Tinnitus becomes more prominent often fluctuating or increasing with the attacks.

Stage three (late): hearing loss; balance difficulties; tinnitus

In the later stages the hearing loss increases and often the attacks of vertigo diminish or stop. Hearing loss can be severe and distortion, loudness discomfort and recruitment can be a problem. There is permanent damage to the balance organ in the ear and significant general balance problems are common, especially in the dark The patient suffers from chronic dizziness and related nausea, There are usually issues with vision, since your vestibular nerve is damaged and unreliable, the brain becomes more dependant on your eyes for information to maintain balance. This can lead to a variety of vision problems, your eyes are busier than normal not only to provide you with a view, but to provide the brain with information about your body location. Visual stimulation can cause a major decline in balance information to the brain, such as grocery stores, sports events or anything absorbing your vision. The more you concentrate with your eyes. the less balance information is reaching the brain. 

 

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6 Replies

  • Posted

    First of all thank you for sharing..😊...i was diagnosed with MD 5 years ago...the stages r pretty much on point I think although I had progressive hearing loss from the beginning and never fluctuated much. Vertigo duration and severeness has lessened although I don't know if it's from the diamox, serc im taking or the 3 series of steroid injections that I have had once a year for 3 years now....i feel they have helped or maybe my vertigo has lessened because of the stage I'm in...ughhh...either way it sucks that this disease is so unpredictable...well best of luck on your journey...once again thanks for sharing..😊

    • Posted

      Hello Deborah, You are very welcome. I just want to help anyone I can Best Wishes Bertman 
  • Posted

    Thank you describing this progression......Much more than any doctor would know!  Like you I am in stage 3-titinus and noise sensitivity are my issues and attacks can be lessened with diet and low stress.  One ear has severe hearing loss.  It is a crazy disease.   Thanks for sharing!
    • Posted

      Hello monstermama, Thank you for your response, Meniere's is a strange fellow, You never know what will pop up when it comes to symptoms. Have a great evening, Bertman  

  • Posted

    Have had menieres for almost 5 years. Best thing I ever did was get the low dose gentamicin shots. That's what my ENT doctor decided to do with me. There are 4 or 5 options of which they will use the least invasive to start with that has a pretty high success rate. I guess steroid shots are about the same, but its not poison and killing the ear. If your a good candidate for the steroid shots an ENT will tell you. There are a couple surgery's that are used only as a last option.

    • Posted

      Hello Robert, Thank you for your response, We appreciate you sharing with us, Best Wishes Bertman 

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