How can the medical community not be helping us more?!
Posted , 3 users are following.
Im 47 and I am miserable right now as i type this.
I've had a partial hysterectomy (8 yrs ago) then had to have my fallopian tubes removed two yrs ago, due to them swelling with fluid. I would say looking back I started peri 5 yrs ago but hit the symptoms hard after the tube surgery. Every month it is progressively getting worse. I also have hashimoto and this meno experience has really whacked my thyroid out so that doesnt help things. I've had EBV reactivate this year and I am so sick of being sick. So is my family. I've gone to several specialists, as the symptoms came on so fierce and quickly that i seriously thought/think something else is wrong. Here enters severe health anxiety. Every few weeks its a new scary symptom that Ive never experienced in my life. In addition to hot flashes and night sweats, Ive had migraines for two months straight, aches so painful in legs, heart palpitations, racing heart, anxiety, GI issues, itchy skin, burning tongue, gum issues, massive inflammation everywhere, dry eyes, and although i gained weight during peri, im now underweight even though im forcing myself to eat 2500 calories a day. i cannot gain weight. I've lost all muscle and i am doing strength training daily to build it up again. Asthma like feeling, coughing up phlegm, sore throat, sinus issues, tingling in arms and legs.... Like every symptom possible. i've had x-rays, ct scans, mri's, ekgs, heart monitor, and loads of blood work and two trips to ER. a few dozen dr appts..... Nothing is wrong, heres some anxiety meds and antidepressants. Seriously, i have a hormone problem! Dr said he doesn't think i need hormones because its better to go through it naturally if you can. Heres a referral to a mental health clinic. I read all of your posts and the medical community is making a ton of money on us. Yes we go to ER and ask for imaging etc, but I for one didnt know what to expect or even what was going on when it started..... I just knew I was not right and something was/is wrong. I am so glad for the internet to help us ladies bridge this gap and share our experiences. Dr has told me many times "thats not a meno symptom"..... ummmm it is. Why isnt there more training for drs in this to help us. Yes it prob becomes a mental issue, only when we've been written off and are made to feel like a hypochondriac by the medical world. If I didnt have this forum I would swear that I had several diseases, all at the same time. I keep telling myself to hang in there , that it wont always be like this but I literally cry everyday because i feel so crappy. How long can i feel like I have the flu before my body breaks down, or my stress is too much. Thanks for reading ladies, I guess I just needed to vent because my poor hubby has heard enough over the years. I meditate every day, take cbd oil, and i have also tried a couple functional medicine drs which made me feel worse and i was sold $500 worth of supplements a month to take.... who can do that?!?! I feel like Ive done everything I can. Hubby says I have to just accept where I am but I am so fearful that it wont get better and I'll be feeling this way for the rest of my life. I find hope in that I will be a beautiful butterfly when I am done with this transition. I am both glad and sorry that Im not alone in this. Tomorrow will be a better day! Hugs to you all.
0 likes, 1 reply
Gypsy014 Shaunap2020
Posted
Yes to all of this! I could have wrote this myself.. The advice I have is to do the best you can to support your hormones / thyroid the best you can through diet and some exercise.. Yoga stretching. And the meditation is awesome for the body as well..your husband is 100% right accept that this is how you are at this moment in time! It is rough and exhausting.. The thyroid in itself when out of whack is disabling.. All of it is disabling..the migraines are horrendous.. And all the other crazy symptoms are as well..I changed everything, I eat to sustain life quite honestly nothing is enjoyable I can't eat chips and pasta and cookies my body pays for it with sore joints that are not just sore but excruciating..the inflammation that comes from a bad diet is the pits..I am gluten free , no histamine foods all though I do cheat with the no histamine some, I drink milk and water , I eat plenty of salad vegetables fruits but not the sweet kind apples melons applesauce I eat rice eggs lean turkey meat for protein.. I have some regular milk chocolate bar squares after dinner so I don't feel totally deprived..you just have to eat what works for you.. So many foods can make you feel so much worse causing your symptoms to be 10 fold...example if I eat any fruit with citrus I get burning mouth .. So I skip them.. Wine causes night sweats and migraine attacks with vertigo and very red face..basically you just have to learn what works for you and your symptoms and tweak as you go..accept the symptoms are going to be there day in and day out and come and go , just try and make them as tolerable as possible.. The fluctuations in the hormones are there on a daily basis and worse around ovulation time and the time you would have had a period had you still had your uterus approximately 12 to 14 days after ovulation..its like we are going thru puberty in reverse all over again..hang in there take each symptom as they come at you.. And don't be to quick to run to the Dr as they are not experiencing any of this, and unless you've gone thru this you have no idea how bad and disabling this really truly is..that is as long as you've ruled everything out thru all your Dr testing and you have a clean bill of health..its frustrating...