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How did you all tell your Parents that you had MS

Posted , 3 users are following.

Lucy321
Lucy321

Ok, this is what I'm most concerned about for a different reason to what you may all be thinking!!

I've had severe arthritis in my knees and spine for the last 32yrs, since I was a child - it absolutely disables and floors me, completely!! Turns out, that this could actually have been MS all along....now along the way I've had a few problems with my health and whenever I've actually tried to say anything to my parents - They've always been sicker than me, in more pain than me, on more pills than me....it has got to the point where I haven't even told them about all of my tests over the last 3 years; the biopsies due to bleeding and pain 'downstairs', the X-Rays, the ECG's, the many different Specialists appointments....and lastly, the more scary....the Brain Scan!! Very Scary!! I have my Husband with me at every appointment, which is all I need.....but I'm working myself up about telling my Parents!! My whole life I've been talked over by her & ignored and it has left me not wanting to tell them anything really! I've been left with no choice because I know that she is talking about me behind my back to the family - that I don't do anything to help them etc, but I'm in such a state every time I've helped them - even the 3hr round trip to see them makes me so ill......what do you all suggest....I've already got it into my head to tell them not to interupt me while I tell them something......it's driving me insane!

0 likes, 4 replies

4 Replies

  • PaineFury
    PaineFury

    Posted

    I know exactly how you feel Lucy, I've had symptoms for the last 5 years but going half blind is what diagnosed me. I'm the only one of a huge family who has anything wrong with them too, so all of my relatives are spooked and tentative to talk to me.

    My neurologist even managed to convince my Mum that my second relapse was 'stress', but I did get an apology from her when I got my diagnosis 2 months and 1 more relapse later. My brother is also frightened he's going to get MS and thinks my mother and father were carriers for the disease.

    3 relapses in 3 months with no treatment has caused a lot of damage, and my Mum thinks that going on treatment will get me 100% pain free back to myself and I don't bother telling her that might not happen. My brother also thinks that I'm using my MS to get an advantage in everything, and turns every conversation into an arguement and says his life is so much worse. This coming from a man who has 2 daughters he never sees, owes me money and lives rent free with his girlfriend. It frustrates me so much

  • Lucy321
    Lucy321

    Posted

    Hi Paine Fury.....I know how you feel. I don't really get on with my brother either. He thinks I should drop everything and rush down to our Parents whenever something happens and slags me off constantly because I can't!!! Like I said, it's a 3hr round trip AND I CAN'T DRIVE!!!! My Husband goes to work and my chidren are both at a crucial time in the Senior Schooling!! Whenever he's heard that somsthing else is wrong with me at the Dr's, he says I'm a hyperchondriac!! It makes me NEVER want to tell anyone, but because he'saying terrible things about me, It means that I will HAVE to tell them to stop them slagging me off!

    Family eh!!!! I don't really see them very often - so I don't get stressed as much as I used to! Your situation sounds awful, a Jeremy Kyle episode eh!!! My Husband watches those at 4am before work, whereas I always say, 'we all have our own problems to deal with without watching that rubbish!!'

    You take care x

  • patricia48825
    patricia48825

    Posted

    You are wasting too much energy and possibly "healing energy" on worrying about your parents. They sound very selfish. Why not put something in writing to them, that way they cannot interrupt you. I would be very interested to hear if you do get a diagnosis and the result of your brain scan. Funnily I am not at all scared of brain scans - had 16 so far - but I am needle phobic and the only time I was afraid was when I had to have the contrast injected.

    Good luck.

  • Lucy321
    Lucy321

    Posted

    Hi All. I had my Neurologist appt last night. The Dr agreed that I have all of the MS Symptoms, but that the MRI brain scan proved inconclusive. I have to have more tests, possibly a Lumbar Punch, so it's just a long waiting game for referrals! Unfortunately, I cannot even get to see my GP for another 5 weeks, so I'm hot holding my breath! Thanks for caring smile
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